Okay. So you will see from my posts I am going back and forth, round and round. But now I think I need to take action regarding my latest thyroid results.
Long story short, I have been diagnosed with Fibro but believe there is an underlying cause. I have had two positive ANA results so been looking at possible cause of that as Lupus but also exploring if I have a B12 deficiency ( I now supplement sublingualy) and of course if thyroid is the cause. I also have elevated liver function tests and am seeing a heptologist for possible autoimmune hepatitis.
A couple of weeks ago I woke up one morning feeling I was going to die. My glands were swollen enormously, I ached all over, I was slightly yellow (I could tell my liver tests were raised again), I was shaking and nauseus and I just had to sleep, not moving for around 48 hours. when I could muster up the strength I went to the GP and asked her to run some tests. I said it could have just been a virus but felt like something 'different'.
As expected my liver function tests were elevated again - this time the Gamma GT was very raised as well which is usually associated with alcoholism - I rarely drink.
But also my thyroid test was as follows:
Serum free T4 - 9.8 (7-17)
Serum TSH 2.14 (0.4-4.5)
Obviously I know from being on here that my T4 is way too low and that my TSH, at over 2, is probably too high also. I also know that according to the results and the NHS I am considered 'normal'.
My Vit D though did come back abnormal. I take a good general vit supplement but also a high Vit D3 supplement.
The Vit D3 was 56.2. But my Vit D2 was less than 10 which is I believe way too low.
Oh and guess what, despite not eating bread, rice, pasta, or fast food my cholesterol was also flagged. My 'bad' cholesterol was 3.3 (<3.0) and my total was 5.2 (5.0). My good cholesterol was just about up to scratch 1.2 (>1.2). The total ratio was 4.3 (<6.0) so the ratio is okay.
So I am now going to bite the bullet and seek a private consultation. I already have the Endo list and the practitioner list from Louise but I was wondering - should I take a thyroid urine test first (most on the list who don't go off blood tests seem to only give treatment if the urine tests show something)??
Or should I wait until I see the private endo as they would order the tests anyway and I will end up paying twice?
It is all so confusing, I am not thinking clearly at the moment and making a decision is pretty impossible!
Also a few people have PM'd me doctors they have seen in the past but I would be grateful if people could recommend any on the list - I think I would rather see a private endo first but I have read so many horror stories on here even with private docs. I have been toying with the idea of seeing Dr P but not got round to it as he has been ill though seeing patients again now. Would I be best seeing someone who might prescribe??
Obviously my test results are 'normal' so I need to start with an endo who will look at my symptoms as well as borderline results to start off with. Or would I be in a better position if I had the urine test to take with me. Or, should I just see Dr P as he would be the only one willing to listen in the absence of abnormal blood tests?
I live in Manchester but would be willing to travel to London or Birmingham as I have to sometimes go to those places for work anyway.
Sorry for this being a bit rambling and for all the questions. I just need to know where to go from here. And everyone on here is always so helpful - I am relying on your common sense because mine seems to have vanished into thin air and I am all over the place.
Previous results are below. Oh and I have nearly every symptom on the Thyroid Uk checklist! Too many to list again.
Serum Free T4 level was 13.3pmol/l (7.0-17.0)
Serum TSH 1.53 mu/L (0.40-4.50)
Total thyroxine(T4) 118 nmol/L 59-154
April (private test) 2013
TSH 2.50 mIU/l 2.50 mIU/L 0.27-4.2
Free Thyroxine 15.5 pmol/L 12.0 - 22.0
Free T3 4.8 pmol/L 3.1 - 6.8
Total thyroxine(T4) 118 nmol/L 59-154
Thyroglobulin Antibody 16.9 IU/mL 0-115(negative)
Thyroid Peroxidase Antibodies 9.1 IU/mL <34 (negative)
serum T4 11 (7-17)
serum TSH 1.7 (0.4-4.50)