As advised here I got private bloods done with blue horizon.
I am now more sure than ever that my Mum's symptoms over the past months are due to low t3..My Mum had RAI in 2010 and has suffered on and off ever since.. she has muscle weakness, more recently cognition issues, constipation, anxiety with what seems to be almost post traumatic stress disorder as she goes over and over when she lost her ability to live a normal life, blames herself for making wrong decisions. Her hands are shaky and usually cold, she has no energy , stiff joints, sometimes sees shapes of things in front of her and is not half the woman she once was! Not to mention a constant nerve type pain despite having MRI and CT SPECT scans which showed degenerative changes and osteoporatic type fractures we have no firm diagnosis. The issue I have is the endocrinologist has been downright unhelpful - despite a fluctuating serum TSH (a snapshot taken from last year as it been going on for a long while)
Serum TSH readings
The majority of the time she has been on 5 days 100 alternating 2 days 125 but is at present on 150.
The endo actually said she has very strange readings and a hard to control thyroid status. At our first mtg this year 2/6/14 (TSH 8.07 (0.35-4.94) T4 21.8) he said to take her stomach protector at a different time and he would monitor it and if no change would do further tests (using a different lab). At the next visit I was amazed he didn't do anything despite an even higher TSH and High T4. 15/7/14 TSH 14.73 (0.35-4.94) T4 19.0 - he just put her up to 150! And this is where we are at now....the latest results are below.
I just feel despair. The GP is coming out today to do a memory test as she thinks my Mum has dementia! I have tried to explain the lack of T3 but of course they don't want to know and just refer back to endos! They just think I am a neurotic daughter who wont face up to the fact her Mum has a mental illness! I want to make an informed choice of drs to see next, we have wasted far too much time and money on Drs who won't help. What are your thoughts about all this? Do you think these results and symptoms are connected and I have a valid point that I want further tests done. Any advice would be very much appreciated.
Blue Horizon (test date 24/9/14)
THYROID PROFILE 2
TOTAL THYROXINE(T4) *174 nmol/L 59 - 154
THYROID STIMULATING HORMONE 1.54 mIU/L 0.27 - 4.2
FREE THYROXINE *28.3 pmol/l 12.0 - 22.0
FREE T3 *2.9 pmol/L 3.1 - 6.8
Thyroglobulin Antibody 25.6 IU/mL 0-115(Negative)
Method used for Anti-Tg: Roche Modular
Thyroid Peroxidase Antibodies 9.5 IU/mL 0 - 34
Method used for Anti-TPO: Roche Modular