So tomorrow I have my 6th Consultant appointment in 2 yrs, and this time I am concerned as I really do not know what to say. I have picked up a copy of my latest blood test's as follows;
TSH 0.05 (0.35-4.7) below range
FT4 15 (7.8-21)
My last appointment 6 mtgs ago TSH was 0.001 and FT4 21 - I felt quite good on this, but recently I have not felt quite so good. Breathlessness, occasional pains in my chest, leg pains are crippling and also have a dodgy hip! Not to mention, blodd pressure dropping, dizziness, headaches, extreme tiredness, hair, eyebrow and eyelashes falling out. Now I seem to have developed what feels like a dry throat around the back of my thyroid region (if that makes sense).
I persuaded my consultant to let me continue with 150mcg that I was on and have now been on this for about a year and a half.
They won't test T3 at all, my adrenals are fine, but I now appear to have a low white and red blood count. I was severely deficient in Vit D last year and after a 3 nth course then replaced with Calcichew forever. My Ferritin is 22 (15-300), VitB12 189 (180 - 1130), Folate is 5.2ng/ml and sates deficient, glucose is 6mmol/L (3.6-6).
From what I can piece together is I appear to be showing signs of anaemia and borderline for future Type 2 Diabetes. I am dangerously overweight, at least 2x what I should be and I am 5ft 2. I did initially lose some weight when I started Levo, but now I just pile it on even though my appetite is suppressed.
I am considering seeing if reducing to 125mcg would make a difference and increasing with B12 & Folic Acid to see if that will make a difference.
I know there is no magic wand but I just need help. My Mum had the same condition and was diagnosed in her early thirties like I was. She sadly died 9 years ago of a heart attack at the age of 47. She wasn't overweight at all, but she was Type 1 diabetic since age 11, developed Hypothyroidism, hypertension and ended up with high chloestral. Because of this I have a major fear, and I feel like I am being let down by my consultant(s),
Apologies for going on but I could really do with some help in advance for my appointment on the 25th Feb.
I thank anyone in advance who can offer me some advice!