Well, that went well! NOT! What happened next. - Thyroid UK

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Well, that went well! NOT! What happened next.

marram profile image
15 Replies

After the telephone call from my GP about my blood test, I went for my appointment with him yesterday afternoon, just to tell him what I am taking and to inform him that as instructed by him, I HAVE made up my mind. ("You've got to make up your mind - me or him. You can't be treated by two different people. And if you carry on like this you will drop down dead.") And the decision has not gone in his favour. I told him I prefer to saty with the one who made me better, not the one who ignored my symptoms.

He had actually worked out who I am seeing, he said 'What's his name, P***ford or something?" (not quite but nearly).

I will not bore you with all the details - though it would make entertaining reading - but the gist of it is, When I had my TT for Graves' Disease, I was completely cured of the Graves' - which is just an old-fashioned name for an overactive thyroid. He has never heard of Graves' antibodies, I am talking rubbish. All I need is Levothyroxine and so long as the numbers are right, It does not matter how I feel. If I'm ill it is something else, not my non-existent thyroid. I said to him, "If a person with NO thyroid still has hypothyroid symptoms, the obvious cause is the lack of thyroid. Look at the elephant sitting in the middle of the table and stop searching for a mouse under the fridge".

T3? "Of course T3 is legal. If someone needed T3 I would prescribe it for them". So does he actually give anyone T3? No. None of my patients need it. Oh, yes, of course! If someone has had a TT and cannot convert the T4 to T3, like me, yet still doesn't need T3, it would be difficult to see who might qualify! Especially since their symptoms do not matter, so long as the numbers are right. The TSH numbers, that is.

I also asked if he had received a letter from the eye specialist to whom I was referred by the optician, because my right eye has deteriorated at about 5 times the rate of the left, and she thinks it could be my Graves' antibodies flaring up. (The specialist did confirm I seem to have had a flare-up but it may be settling. He tested me for Graves' antibodies to see if it is still active)

"Oh, yes, I did get something but I didn't look at it." And that was BEFORE I upset him.

I asked him why did he think the specialist had tested for antibodies if they didn't exist? His reply? "I don't know. Does he know you are taking T3? What did he say about that?"

I said, "Yes, he knows I am taking T3. And when I explained to him why, he asked me if I have had some medical training, because I understood the condition so well" (That didn't go down very well - but it's the truth.)

At one point I said "So, in the 21st Century, medicine no longer consists of making patients well, but keeping Lab Technicians happy. Life was better for thyroid patients in the early 20th Century. But at least I know where I stand. I used to be lying in bed in pain 20 out of 24 hours, barely functioning, bloated, overweight, depressed, asthmatic, cholesterol through the roof, alternating constipation and diarrhoea, taking half a dozen different medications, and two different inhalers, an invalid. Now I am an active person who functions reasonably normally and takes none of them. I know which I prefer. "

I actually feel very relived that I have got it all off my chest. I feel so much better. I had not realised how much the prospect of telling him was weighing on my mind. I can now get on with the healing process and forget that ignorant bigoted individual.

Have a great holiday, everybody. I don't do Christmas but I don't begrudge others!

Marie XXXX

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marram
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15 Replies
Clutter profile image
Clutter

Well said, that woman! I dont know why you dont think it went well. You got him to listen and werent shouted down or dismissed. I think you acquitted yourself well and should give yourself due credit.

I prefer a GP less trenchantly fixed in his views and more open to new ideas, but it aint gonna get me NHS T3 and im convinced its price not lack of evidence/RCT determining it.

Moggie profile image
Moggie

I bet you do feel better after telling him exactly what is what - well done you. Now you can enjoy Christmas and get on with you life - not the life he would have you lead but the life your knowledge and courage (as it does take courage to go against the system and self medicate) has brought you.

Well done for telling him exactly how you feel and what a rotten job he did of "looking after you" NOT.

Merry Christmas and a very happy and healthy new year to you to.

Moggie x

PinkNinja profile image
PinkNinja

Well done Marie!

Wishing you a speedy recovery now you have the right tools :) Enjoy the holiday season and don't let the crazy loons on the roads get to you.

Hugs and such

Carolyn x

alangardner profile image
alangardner

hiya marram , just goes to prove to me what an absolutely brilliant gp I have----- he actually checks this site on a regular basis , and on speaking to him 3 hrs ago admitted that he has personally learnt more about thyroid problems/conditions and how to effectively treat HIS patients over the past year HE PERSONALLY THANKED ME FOR MY INPUT AND DIRECTION [ that I gained from this site ] .....not all of them out there are as useful as a chocolate teapot in a forrest fire ......alan xx

marram profile image
marram in reply toalangardner

Wow. That takes a degree of humility, which mine does not have. How can anyone who already knows it all possibly have anything to learn?

Thanks Alan, and in fact everyone on this lovely site, I am a different person from the one who found this support forum in October 2012. I'm almost two stones lighter, for a start. Have a great holiday.

alangardner profile image
alangardner in reply tomarram

not humility ,but someone who recognises that --- as I said to him ' THE ONLY ONE WHO DOESN'T HAVE TO LEARN HAD A SON BORN 2 MILLENIUMS AGO ' ----and my doctor is a sihk[ appologies for the spelling ] ... when I left he was still giggling ....... and HE is still teaching all of us !!!!!!!! alan xxxxx

NaamiSue profile image
NaamiSue in reply toalangardner

WOW this is brilliant! Sikh actually means 'seeker' and anyone who follows the Sikh faith will generally have a very open mind and a deep desire to learn....most Sikhs I have met also are very humble.

What a GREAT scenario you have created. I love your statement in Capitals SO TRUE! Hope you are moving to better and better health and wellbeing :)

alangardner profile image
alangardner in reply toNaamiSue

and he has one of the best attitudes of any doctor that I have known/seen for a few decades ....as well as having sufficient time for ALL of his patients .....together with a real sense of humour .....

Lizzy1606 profile image
Lizzy1606

Well done ,i wish i could of seen is face ,Im gonna make a stand with my GP in the new year ,and you have just given me that extra nudge.lizzy xx

alangardner profile image
alangardner in reply toLizzy1606

I usually leave him with a smile on his face .......glad that this may help you in making that stand with your gp ...... hope you have a super festive break and enter the new year refreshed and ready for the challenges ahead ......alan xx

silverfox7 profile image
silverfox7

Well done Marie. I am sure that will inspire many to speak out. I wish more GP's would read as well. Even if they don't at first agree they must pick up on how debilitating this thyroid problem can be, how it ruins lives and relationships and how much in needless tests it wastes whilst a trying to prove its something else. Papering over the cracks doesn't help anyone and we are the ones that suffer through it. We are on the brink of a New Year so let's hope we get better recognition for all sufferers in 2014.

You go, girl! Why not (maybe edit a bit) repost this on the Patient Opinion site? Link here: patientopinion.org.uk/

People need to know this stuff. And not just your brothers and sisters in the choir here.

JeanneBCat profile image
JeanneBCat

good for you. never doubt what you know, feel and have learned. there are some major morons out there operating under the guise of endocrinologists. it is actually terrifying.

Good work! Sounds as though you put up a terrific performance and I bet the so-called doctor hasn't recovered yet!!

Will you make a formal complaint against him? These doctors don't like us patients being assertive and informed, sensitive little things that they are.

ellarose1234 profile image
ellarose1234

I agree with Humphry. Send your letter to:patientopinion.org.uk/ in fact all people who have been treated badly should send their experiences to this site...perhaps someone might just pick up on what is going on with some of these moron doctors. You should also tell him what you've done...that might bring him down a peg or two.

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