There have been lots of posts and questions on here lately from people wondering what to do next. Is there anything left that you can try to make you feel better? Maybe your blood tests don’t accurately reflect how you feel.
You may think you’ve tried everything – you’ve tried all the thyroid replacement options, you’ve tried adrenal support, you’ve tried vitamins/minerals, you’ve tried various diets (gluten free, dairy free, low carb., etc. etc), avoidance of all foods and substances to which you are supposedly “allergic”, but you’re reading this now because none of this has worked, or has been minimally successful. We spent over 20 years seeking out treatments and trying all of the above in attempts to make my daughter better, yet slowly she was becoming more and more ill. A particularly bad year for her was when on the recommendation of one doctor she followed a rigid non-dairy, gluten free diet and had to avoid countless other foods which meant she spent 18 months eating practically nothing and feeling constantly hungry, and STILL putting on weight. Now, at last we know why that was all a complete waste of time and effort, we have discovered why her entire endocrine system was failing, and why her thyroid problem was a symptom of her illness, not the main illness.
We had devoured as many thyroid books as we could lay our hands on – I have a shelf full of them. All of them described my daughter’s symptoms and signs, and we set about following the guidance in them to make her better. We studied countless research papers, we went to seven different thyroid specialists, but all with little success.
Then we had a book recommended to us called “On Hope and Healing” by Dr. Neil Nathan. This book described exactly what had been going on in my daughter’s life and that of my late husband. It set us on a new road of discovery, outside the confines of what we had learnt about healing thyroid problems. That book is now out of print, but Dr. Nathan has a similar updated book called “Healing Is Possible: New Hope for Chronic Fatigue, Fibromyalgia, Persistent Pain, and Other Chronic Illnesses”. The foreword for both books is written by one of Thyroid UK’s advisors, Jacob Teitelbaum.
As a result of this book and further research we learned that my daughter was very, very seriously ill and we can thank Dr. John Lowe and T3 for keeping her compromised metabolism running for the last 11 eleven years. After countless tests this year we learned that she has a chronic stealth virus (HHV6) which she has had since she was a baby 33 years ago, Lyme disease and its accompanying co-infections, but most seriously genetic and life threatening Toxic Mould Disease. These are the culprits that have attacked her immune system and endocrine system over her entire life.
So I am here to tell you that you must NEVER give up looking. There ARE reasons why you are ill and you CAN find them. Sometimes you have to think outside the box. Your story may be similar to my daughter’s or there may be other reasons for your illness. She is now undergoing long term and sometimes very unpleasant treatment as years of toxins are gradually removed from her body, but we already see glimpses of the person she used to be. She is continuing with T3 but we are hopeful that maybe in the future that can be reduced or stopped. There are further tests and treatments ahead of her as her doctor refines her medication to suit her individual needs. We are also in touch with others undergoing similar treatment which you will know from this site provides great help and support. We know there is still a long way to go – she has after all been ill for many, many years. So don’t assume the answer for you is going to be easy and straightforward, don’t think it will be the same as anyone else’s, but DO keep looking.
I’m happy to share what information I have if you PM me for more details.