There is a common thread running through many of the posts in this group. Where, how, when will I or my loved one get better? When will I stop hearing from my doctor that it’s all in my imagination or that he’s done all he can for me? When will I stop hearing that this or that thyroid or supplement test will give me answers, or that all I need is to add various supplements to my regime or change my thyroid medication? What can I do when none of the above has helped me and I feel cast adrift and alone?
The first step towards finding the answers if you are in this position is to think outside the box. There must be reasons why you are not getting better, and you may need to look for them yourself since you are the only person who will.
When, after over 20 years of looking, we finally found the help my daughter needed it wasn’t through wasting our money on more and more expensive thyroid tests and doctors, but from a doctor in the USA who knew which tests were necessary to diagnose her illness. He asked her why she was continuing to have so many thyroid tests when they didn’t come up with answers and she was continuing to become more and more ill. Why indeed? Many of you will know the answer to that. We were desperate. The truth was that her thyroid problems were merely a side issue, a symptom of much greater issues which were deeply seated and of long standing.
What we discovered was that her body had been ravaged by Mycotoxin Illness (not recognised in the UK), Lyme Disease (badly tested, diagnosed and treated in the UK), MCAS (rarely considered and tested for in the UK), chronic HHV6 (never tested for in the UK), pyroluria (never considered by her private thyroid doctors), and a number of other issues.
We had made the mistake of latching onto thyroid illness and made the wrong assumption that once that was resolved all would be well. How wrong we were. Her thyroid function along with every cell and system in her body had been attacked over the years by inflammation caused by the above conditions and their accompanying infections. Her thyroid symptoms along with a myriad of other symptoms so often associated with thyroid disease had been caused by that inflammation and we were confused and desperate, so grasped (incorrectly we now know) on to the thyroid banner. As well as legitimate (but sadly ignorant) private doctors there are also plenty of charlatans out there in the UK who are well aware of the shortcomings of the NHS, but happy to promote themselves as thyroid “experts”, and who are delighted to take your money. It makes it all the more difficult to find someone who can help.
Lucky are those whose thyroid function is restored by the correct thyroid replacements and supplements, and I'm delighted for them, but there are many, many people for whom this is not the case and they are not being offered the tests they need to find the cause of their continued distress.
However, help is at hand and I cannot begin to express how much I recommend a brand new book called “TOXIC – HEAL YOUR BODY” by Dr. Neil Nathan. amazon.co.uk/Toxic-Toxicity...
Written by a brilliant man with 47 years of medical experience it sets out in some detail what happens when the body is assailed by invasive microbes, and how every body tissue is at risk. His compassion and humanity shine through every page. His writing is very readable and easy to understand and I urge anyone who is still searching for answers to buy this book – in it you may well find what you are looking for. I was brought to tears whilst reading it as Dr. Nathan could have been a fly on the wall of our home for the last 26 years. His insight into the life of someone who is chronically ill is extraordinary. Before you are persuaded to spend more money on expensive thyroid tests and doctors please read this book and enjoy (and maybe weep a few tears too)!