Latest blood results and still feeling exhausted - Thyroid UK

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Latest blood results and still feeling exhausted

Wired profile image
13 Replies

Hi. I have Hashi and have been diagnosed for 4 years. Most of that time I have felt pretty rubbish, tired, brain fog, hair loss, weight gain. However, over the summer I wasn't feeling too bad - I had a little more energy than normal and life wasn't quite so difficult! I started a part time job, which I was delighted about and was going well. Anyway a few weeks ago, bam - I feel like I've been hit by a train. I had to go home from work as I couldn't function. Just had my bloods done and these are the results;

Sereum bilirubin level - 4 (5-17)

Vitamin D - 45

TSH - 0.9 (0.2-4.2)

Free T4 15.3 (12-22)

Free Triiodothyronine - 4.2 (3.95 - 6.8) I am assuming this is free T3??

Haemoglobin - 262 (150 - 400)

I am taking 100 mcg Levothyroxine and 75mcg alternate days.

I can see that my Vitamin D is not sufficient and I am researching some supplements to take. Anything else stick out to anyone? Thank you so much in advance - I desperately want that "normal" back again, even if it isn't fantastic - normal is great :)

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Wired profile image
Wired
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13 Replies
shaws profile image
shawsAdministrator

I am sorry you have had a 'blip' and hope it doesn't last long and you feel 'normal' once more.

Someone will comment on your blood tests but if you supplement with Vitamin D it has to be D3 and not D2.

Wired profile image
Wired in reply to shaws

Thank you for the pointer. I will ensure to get Vitamin D3 :)

Hennerton profile image
Hennerton

What sticks out to me is that both your T 4 and T3 are quite low. Your T3 is only just in range and I wonder if your doctor would consider your taking the 100 mcg dose every day, instead of alternate. You probably felt better in the summer because people often need to reduce medication when it is warm. For you it helped and now that the weather is changing, you need more. That is my take on it. What do others think?

Wired profile image
Wired in reply to Hennerton

If I were to take 100mcg every day, would that reduce my TSH slightly? If so, would that cause any problems? Also I was thinking, how do you know if your T4 isn't converting correctly into T3?

Hennerton profile image
Hennerton in reply to Wired

Yes, probably would reduce it but as you perhaps know from reading other posts, thyroid health should be judged on how we feel, not on a TSH figure. Of course you may have a battle with your GP next time you have a blood test but if you feel better on the higher dose, it is worth a fight. I thought about whether you are converting properly and my guess is you are. I think your T4 would be higher if not. Mine was high, just over the reference range and my T3 was under the ref range.

Do hope you are allowed to increase and start to feel better. x

Wired profile image
Wired in reply to Hennerton

Thank you Hennerton for your input. Much appreciated and I hope you continue to stay well too :) x

suki65 profile image
suki65

Hi Wired have you had your b12 ,ferritin,folate and iron checked

youtube.com/watch?v=BvEizyp... please watch this

Diagnosing and Treating Vitamin B12 Deficiency

b12deficiency.info/asse...

amazon.co.uk/Could-be-B12-E... these are all worth checking

my b12 was 276 told normal but i took b12 with folate and my level is now 648 and feeling so much better

Wired profile image
Wired in reply to suki65

Hi Suki, No they didn't test for the other things unfortunately. I am glad you are feeling alot better :)

Heloise profile image
Heloise

I've been posting a series of five-minute videos pertaining to Hidden Causes of Low Thyroid.

It is difficult to become optimum on T4 treatment. There are 24 of them but I'll choose one about high cortisol and the other on progesterone deficiency and perhaps you can glean some useful information.youtube.com/watch?v=U15Pcov...

youtube.com/watch?v=73d9KGY... list=PLF02D307781C315FB youtube.com/watch?v=nZ_CP7l...

Wired profile image
Wired in reply to Heloise

Thank you :)

Wired profile image
Wired

Hi. Actually my brand did change a month or so ago - something to definitely note. I need to make an appointment to see the Dr and discuss other options I guess. Sometimes it's like banging your head against a brick wall :(

Natalie_Edinburgh profile image
Natalie_Edinburgh

Your T3 is pretty low and if you are on just thyroxine then I would expect your T4 to be higher too. You would probably benefit from an increase in T4 and if your T3 remains low then it might be worth trying a T3 supplement too.

Wired profile image
Wired in reply to Natalie_Edinburgh

Thank you Natalie. I think to start with I will go on the Vit D3 and increase the T4 slightly and see what happens. I often think about T3 but I am scared about taking new medication (as I had a bad reaction to something a few years ago). Hopefully those small changes will show some improvement and then I can take it from there.

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