Hi there, newly signed up and would like any advice or clarification as to what's going on with me.
Ok, well, I'm a 28 year old female with no family history of thyroid illness but a family history of autoimmune disease. I was first told by my GP in January 2012 that I had a high TSH of 5.2 (normal 0.2 - 4.2). My FT4 was 16.48 (10 - 23) but FT3 was not tested. At the time I wasn't told what a high TSH meant but instead told not to worry about it. I went away knowing less about what I had yet still in shock.
Within this time the front of my neck had swelled yet went down within a space of 4-5 weeks. It was very hard to swallow without pain/discomfort.
I had an ultrasound which showed the thyroid as "bulky" but still put down in the report as "normal" and had my thyroid levels retested soon after with the TSH within range at 2.2 and the GP said that a thyroid condition was then ruled out.
I still felt quite bad, muscles were aching and I wanted to sleep all the time. I changed doctors as I got so fed up with my previous one refusing to tell me what was going on. Whenever I asked them about the high TSH that caused me so much concern they skirted around the issue and kept referring to the one after! I said to them again, "that wasn't what I asked you. I asked you why I had a high TSH the first time," only to be answered with, "the one you had after was fine."
I went to a new practice at the start of this year and I wanted to wipe the slate clean by asking to be tested for anti-thyroid autoantibodies. The new GP agreed as I hadn't been tested for antibodies before and it would put my mind at rest. They came back elevated at 84,000 with normal range below 34,000. TSH was tested also and came back at 0.69 with the normal range 0.2-4.2 (same as previous lab I presume).
The GP explained to me what I have is an autoimmune process going on in my body and it's attacking my thyroid.
My periods began to get really heavy and the tiredness would just not go away so three months later I had my blood retested for TSH and it came back with the following:
TSH - 22
FT4 - 10.9 (10-23)
The GP said it appeared to be the case that I have an underactive thyroid gland and he suggested I start treatment on thyroxine. He also warned me it would be a pretty long wait for anything to happen. My medication course was:
31 May - 14 June - 25mcg
15 June - 29 June - 50mcg
30 June onwards - 75mcg
I had my blood tested for TSH 2 weeks ago to see if the thyroxine had any effect and it came back at 4. The GP looked at my result and said it was normal but at the high end of normal. He said my iron was low and he wanted to put me on iron tablets.
I then asked if it was ok to take iron tablets on top of the thyroxine and he looked at me funny and said, "you're on thyroxine?" And I said "...yes." He then looked back at the results and realised that the blood test didn't take into account the fact that I was on thyroxine. He looked back to me and asked me, "silly question, but you ARE taking the thyroxine every day, aren't you?" I said, "every day without fail."
To me he was giving the impression that the TSH should be down much, much lower than it is. He then said, "I'm very confused as to why your TSH has risen and fallen so much when it's been tested." He then added that with the TSH, it was one of those things that's hard to measure when I'm experiencing symptoms. He asked me how I felt before taking the thyroxine and I said that to be fair I can't remember that far back but I still feel as tired and achy now as I did when I wasn't on the tablets. He's since increased my meds from 75mcg to 125mcg.
I don't have any friends/family to support me as none of them have thyroid disease or knowledge of what it is and I'm worried about saying anything about how I feel to my boyfriend as he gets very short with me when I talk about it. Can anyone help?