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balla profile image
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24/6/2013 serum TSH level hi 75.74 mu/l [0.40-5.00 u] NKST1.

serum free T4 level Lo 5.1 pmol/L [ 9.0-19.0 u] NKST3

blood glucose -plasma glucose level 4.4. mmol/l.

2/7/2013 serum TSH level Hi 63.22 mu/l [0.40-5.00 u] NKST1

serum free T4 level Lo 6.7.

13/8/2013 serum TSH level 3.64 mu/l [0.40-5.00 u]

serum vitamin B12 237 ng/l [ 150-620 u]

serum folate 6.3 ug/l [3.1-19.9 u]

gp said to stay on 75 lev a day. and last results are normal ., x

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balla
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Fruitandnutcase profile image
Fruitandnutcase

I just can't believe how high your TSH was - I didn't even know it could go that high. You must have felt absolutely dreadful.

Did 75 mcg levo a day bring it down or were you on something else too?

Liz

balla profile image
balla

yer i was bloody poorly . still going in work , then end of june want in work and had to get work mate [who a friend take me to doctor

balla profile image
balla

he put me on 50 lev but few days later i wasn't any better so he up it to 75, i can't remember must of benign of july , but feel alot better these days, been to frightened of taking anything else. all swelling has all gone down lol very round face, and i looked very very big on the belly, x just waiting for fingers and pain in my back to pass over x

balla profile image
balla

can i ask how high TSH can go ? x

tegz profile image
tegz in reply toballa

I've seen TSH reported as high as 200-300 but I think that must be rare -as well as serious. I can't remember if the reason was given, off hand.

You were quite ill, at 75.

NB: Your B12 seems low, too !

Your Dr may be taking things carefully- but you don't seem to be optimal yet.

balla profile image
balla

thanks for that tegz, X

Re low B12 and folate, you might want to get advice from the following 2 websites:

b12d.org/

pernicious-anaemia-society....

You could ask your doctor to refer you to St Thomas' for the Active B12 / MMA / Homocysteine tests:

thyroiduk.org.uk/tuk/testin...

Some info on the tests, to discuss with your doctor:

active-b12.com/What-Is-Acti...

biolab.co.uk/docs/vitaminB1...

He may not have heard of the test, but studies show only a small percentage of the B12 in our blood is in an active usable form (something like 10%-30%, maybe lower in thyroid sufferers).

The serum B12 test (which you have had) can give rise to false positives and false negatives. There is also a warning issued about this test, stating that treatment should be instigated if symptoms point to deficiency, and other tests should be carried out:

ukneqas-haematinics.org.uk/...

The problem is you are hypothyroid, and your doctor will gladly put all your symptoms down to that. These things are never that simple however, we usually have multiple things going on that need to be treated correctly in order to make a full recovery. So if your doctor is resistant, please refer to the 2 support websites I have linked at the beginning of this answer for further advice.

Hampster

balla profile image
balla

thank you so much, doctor has said everything ok with results so i will talk with him , going to have a look at the websites .

Natalie_Edinburgh profile image
Natalie_Edinburgh

your TSH is still too high. Ideally you want it to be below 2. Many doctors make the mistake of thinking that getting the TSH into the 'normal' range is enough. In my experience it is not, it also needs to be optimised within the normal range. I find 0.5 is good for me.

balla profile image
balla

thanks for that natalie x

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