What do I do next? I have received results from Blue Horizon and am being told that everything is within normal range.

[JennyC2]

Was on 150 m Levo for several years and it was reduced because my results showed potentially overactive. Wasn't feeling too good before the dosage was reduced and am now feeling pretty grim. I posted the results here and got some really good advice and have now had the various vitamins and iron tested (all within range). Now I have had the full thyroid screen and got the results below. I think I was hoping something would show up and am now at a complete loss about what to do next. Can anyone help please???

Total Thyroxine(T4) 153 (59 -154)

TSH 0.07

Free Thyroxine 23.6

Free T3 5.0

Thyroglobulin Antibody 22.5 (0-115 (Negative))

Thyroid Peroxidase Antibodies 13.5 (o-34)

PS Not everything has a range so I have asked if they can supply them

[Jackie]

Hi some one new keeps making a mistake, normally ll ranges always given. I have used these for years. Contact Paul Harris at Blue Horizon, MD. very good.If diagnosed and on treatment , then the ranges are not good enough.TSH OK ( 0.27_4.2) although a bit low. T4 ( 12 to 22) too high, FT3 3.3 -6.8 at 5.0 may be a bit loew for you. You would probably do better with a little T3 and less T4 ( levo), however, on low TSH GP would not give it. Find a good Endo and ask for a referral. Also you need the other tests, autoimmune and hormonal as they could be the problem. An Endo will test them and possibly the Pituitary gland too ( low TSH). Tests also as above needed, Diabetes, B12 and Foliates, iron/ferritin and vit D ( if low corrected calcium before treatment, must never go over range)/ best wishes,

Jackie

if you wish to reply to a specific post, click on "Reply to this" under that post.

[JennyC2 in reply to Jackie]

Great, Jackie thanks. I am going to try for a referral. Have also been taking my temperature first thing and it is averaging around 34.5- 35.5 so if I have understood correctly this is a littele low.

[Jackie in reply to JennyC2]

Hi Well it is, however my temp never went up on treatment, still 35.4 , I do not think it is a convential guide, so personally I would not use it if seeing an Endo, but stick to recognised symptoms. Make sure you choose the Endo your self, not the Gp, research carefully! Louise has a list but there are other ways too. [e-mail]

Best wishes,

Jackie

[JennyC2 in reply to Jackie]

Many thanks, I will look at the list. Jenny

[marmaris]

Hello Jackie just had my tests done and wondered if you look at them.

TSH 0.07 mu/L (0.50 -4.70)

Serum free T4 17 pmol?L 0.50 - 4.70 ny/L

Thyroid peroxidase antibodies 4 u/mL (0.00 - 75.00u/mL

Serum free T3 5.2 pmol/L 2.50 - 5.30 pmol/L

All other bloods iron, ferritin, normal

dont think vit D done

Serum calcium 2.28 mmol/L (2.20 -2.60mmol?l

Corrected serum calcium level 2.38 mmol/L 2.20 - 2.60mmol/L

[Moggie in reply to marmaris]

You might want to ask a question of your own regarding these results as they will moat probably get lost tagged on to someone else's question.

Moggie x

[marmaris in reply to Moggie]

Thanks Moggiex

[marmaris in reply to marmaris]

Could anyone give me some insight to my test results? Much appreciated.

[marmaris in reply to marmaris]

They are posted above under Marmaris

[Moggie in reply to marmaris]

I think you have misunderstood me - you need to ask a question of your own. Go to almost the top of this page and a yellow box will say "ask a question", you need to press this button and two box's will appear. You need to give it a heading like "help with results" and then in the bigger box you can then ask you question giving as much detail as you can, like you have done above.

If you have any problems just shout by using the reply to this button under my name as I will get an email to say you have made further contact.

Hope that all makes sense.

Moggie x

[marmaris in reply to Moggie]

Thanks have done that just dont want to retype all the results out again so I just put that they are under Marmarisx

[Jackie in reply to marmaris]

Hi Just found your request, you need to either send a question on "Reply to this" or a PM, click on name to be sure received. What thyroid treatment are you on?Anti bodies are low. FT3 good, not familiar with the T4 test you had, not the normal one or normal range If 17 is the result and you have got the wrong range, it sounds ideal. ( I hope that makes sense).You need to know the ferritin/iron result as if low in range ,you would benefit from some, Spatone, Amazon sachets best. Calcium fine, I would get your vit D checked as with that calcium result safe and often beneficial to take vit D ( a hormone)A lot depends on what treatment you are on. Also the other autoimmune and hormonal tests can be causing thyroid symptoms, even when thyroid bloods are OK.

I hope this helps.

Jackie

[marmaris in reply to Jackie]

Hi Jackie I am on Levothyroxine 100mcg at the moment lowered from 125mcgs. Don't know what you mean by other autoimmune and hormonal tests can be causing thyroid symptoms. I am taking vitamin D and other supplements. Ferritin 99ug/L (15.00 - 300.00ug/L) Did you mean that my calcium level is safe? I am also taking B12 , Selenium etc. I am leaning towards Adrenals now. Having an MRI scan done tomorrow due to pains in arm muscles and neck and foot. Wish me look. Just want to feel well and trial T3 doctor said she wont due to good result (heard that before), but sending me to an Endo as I requested it.

[Jackie in reply to marmaris]

Hi I a do not understand the T4 test as those are not normal ranges, FT3 good level, so do not need T3 or amour etc ( contain T3) it is dangerous to heart to have FT3 over range. T 4 not so important. Usually needs to be in top third of range. My TSH is immeasurable, GP`s as opposed tog good Endo`s do often panic at low tSH. However, it should also go by T4 and Free T3 and how you feel. The other tests, you can safely take vit D ( hormonal) calcium is a good result, well in range.However you do need a test for it first and on treatment after 3 months, calcium re tested then too. It takes 3 months to work.

You also need the other autoimmune hormonal tests, B12 + Foliates ( needs to be high in range), and Diabetes, both have similar symptoms to start with as thyroid and are common with thyroid disease.I hope that helps. GP should do those and Ferritin annually. The symptoms of Hypo and Hyper can some times be identical, but it is unusual. This is why the blood tests are so important.

I hope this helps.

Best wishes,

jackie

[marmaris in reply to Jackie]

Hi Jackie I am left confused about the free T4 level you tell me a bout as others say its a funny range? My Serum folate was 8.3 ug/L (3.00 -20.00ug/L

and Serum vitamin B12 667ng/L (180.00 - 1130.00ng/L) I had requested all the necessary tests done think Vit D done though. I am reading up a lot about things, and I am currently reading the Dr B Durant Peatfield's book which is amazing. I recently reduced my Levo from 150 mcgs to 100 mcgs and feeling better for that (always go this way has before), with heart pounding and all the other symptoms of Hyper. Will request Diabetes next time. I have also been taking Nurtrithyroid for the last month, at first felt better, now confused with it all. I have noticed however since the last 6 months that I find it hard to get my breath sometimes, almost like not a full lung capacity if you know what I mean? I had read that that can be a Hashi symptom? Just fed up with it all. I am also going down the Adrenal path and hope to see Endo soon. Also MRI scan today about my aches and pains. Sorry for the rant, just fed up of not feeling Well. Thanks for your help.

[Jackie in reply to marmaris]

Hi I think the result for T4 is right and OK but that somehow you have been given the wrong range.Blue Horizon normal range is 12.0_ 22.0 I would e mail Paul Harris at BH, there is a new secretary who keeps making mistakes.Do you mean you requested vit D from blue Horizon or GP.? If Blue Horizon the result shoild have come back with the others. If GP can take up to 3 weeks. Your B12 is good. hypo has similar symptoms to Hyper some times so easy to overdose without TSH, T4 and Free T3 results. I hope that helps or get back to me.

Jackie

[marmaris in reply to Jackie]

Hi Jackie all these tests were done by my GP on the NHS? Always feel better when I lower my Levo to 100mcg-125mcg as 150mcg always start to get hyper feelings.

[marmaris in reply to marmaris]

Sorry forgot to add Jackie, is that the reason why my doctor won't prescribe T3 because my level is good? Just never felt good on Levo.

[Jackie in reply to marmaris]

I guess the GP was not looking at the full picture ie tSH, T4 and Free T3, you always need those tested and to ask the receptionist for the results + ranges ( different Labs differ). Your tSH must have been high or as a GP unless wonderful he would not have given you T3. ideally you should be on T4 and T3 ,unless an allergic reaction to T4. T3 tends to reduce the tSH more If cannot take T4 then armour or Erfa replaces T4 and T3.. if lucky and can get a NHS script or pay for a private one..

I really think your levels or the other connected autoimmune, hormonal diseases are not treated sufficiently if you still feel ill. New meds in general take a month or so to be at optimum, some longer, some less.

Jackie

[Jackie in reply to marmaris]

It is common to have too much T4 and not enough T3, all hangs on the 3 tests, only way of being sure.

Jackie

[marmaris in reply to Jackie]

Hi Jackie did have T4 and TSH done. You can see them at the top of this page. Did you say that you can pay for a prescription to get Armour. If so how much? Does it have to be your doctor who gives you it?

[Jackie in reply to marmaris]

Yes I did see but the range is odd and I think wrong, you need to check on the real range, the results sounds right.First best and safer to control with T4 and Free T3, best to only use armour or erfa if allergic to T4. A very few GP`s will prescribe it on a "named basis" but not usually. Otherwise a private script, I buy it from Springfield by post as find it is the cheapest. dedicated line, Mon, Tues, Thur and Fri,10am to noon,0208 255 8096 It is cheaper than buying T3 privately .. Some people buy it much cheaper on the WEB, personally i think it is risky. Better to start down the normal route fist and see.On Armour etc or T4 and T3 you need regular blood tests for safety, TSH, T4 and free T3. So if buying it without a prescription you need to pay for regular tests on line, T3 either on its own or in Armour etc should not go over range, potent drug which can be dangerous incorrectly used.

Jackie

[Heloise]

jenny, since your FT3 is the only low result, you should ask if you can either switch to Armour or Erfa since they both have SOME T3 or addition of T3.

[JennyC2 in reply to Heloise]

Thanks. I am due to see Dr next week and will ask for that and/or a referral. Jenny