I posted a few days ago on visiting my psychiatrist armed with documents advised and taken with me to my appointment yesterday with thanks.
A brief outline is my brain fog and anxiety, depression had reached an all time low which disabled me to dissociation/ severe brain fog type disability, inability to function mentally. I had been on a drug trial for cortisol levels and drug resistant depression. I have had a horrific year with being simultaneously given varying doses of Sertraline, Duloxetine, Fluoxetine, before they were stopped after presenting with horrific dissociation at the final drug trial appointment. the extent was that I was a zombie after being unable to sleep for days, emotionally fragile,racing thoughts and major stomach problems etc I also had strong suicidal thoughts and sent to A& E to be seen by the mental health crisis team.I was discharged and medication removed. I want to add also that I was being seen by my psychiatrist deputy and GP who downplayed the horrific side effects and my GP on one occasion said to me "Oh I see you didn't like the "Duloxetine" and then changed it when she saw my jaw drop to " beg your pardon it didn't like you"
My relationship with my GP practice is horrific for many reasons.
I had increased myself thyroxine from 150-200mg,in a desperate last attempt to get any relief from my physical and mental state. After my Psychiatrist's response and initial evident shock I reduced it back a little to 175mg. The result of this appointment was after his initial shock he obviously saw an improvement in my brain fog and sort of agreed. he said i needed blood tests and an ECG to check my heart was OK with the increased dose.
Yesterday my tests were back and when he said they were ok i asked for copies to post here. He got uncomfortable and said he can't and that he'd gone over his remit to test for some things. I don't understand this reaction and although I know I should have challenged it I was emotionally unable to. Probably his saying "Iv'e gone over my remit"
I know the blood tests reflect none of what is required to help me and my many symptoms but the few he gave me verbally may identify something.
I stated my appointment by asking for the results which he said "were all within range" except Vit D which if i am not taking any supplements he advises I may benefit. I then asked if he would consider trialling me on T3. He answered a simple absolute NO he can't I would have to see my GP. I mentioned that he must know GP's are not allowed/refuse to prescribe T3 and again reminded him of my horrific relationship with my GP and again my inability to move GP's because of the necessity to challenge and attempt to remove or add my story to my my medical records. I also said I have some documents here please can you read them as I know for drug resistant depression psychiatrists have the power to prescribe He said he doesn't have the time for that.He also replied YES but that is not applicable to Hypothyroid patients only for patients who are standard anti depressant drug resistant.!!!!!!! he then again said because of my worsening stomach issues/ physical muscle pain on the increased dose I must see my GP who can refer me to an endocrinologist. I again expressed my despair that it is a well know fact that they refuse to acknowledge anything other than TSH and how I can't face going to be told that .
He said my TSH was within range and with heartfelt thanks to this forum and members en abled me to in a very limited way express my concern and little knowledge of reverse T3/T4 and non conversion problems may be the cause of worsening physical symptoms. ( stomach pain, stomach swelling, chronic burping, mid back pain , muscle pains and inflexibility) to name a few.
The results he gave me was
TSH 0.76 (0.35-3.5)
Vit D 46 (>50)
Vit B 12 202 (150-1000)
Red cell folate 193 (140-820)
My concern is his reaction to my request for copies of the blood tests and the fact he only wrote down 4. I recall the form said Thyroid, full blood count and vit D levels
I am so so down and so disillusioned about this whole situation.so any help will be greatly appreciated