This is my first post but I've been on the site since February this year (didn't have the courage to participate in anything) :-). Please bear with me if my post is a little long :-(.
Twelve years ago I had severe head injury where I was unconscious for almost two weeks & woke up with complete amnesia for about three months. Anyway, I slowly got my life back but towards the end of last year started having hypo symptoms. My first GP concluded I was imagining things and my second GP (in March) said it was fibro. I had stumbled unto thyroid UK by this point so I insisted it was thyroid related. He wasn't happy and dismissed me saying he knew what he was talking about. I'd done loads of tests privately but the always seemed to be with range even though I felt awful.
I went to see Dr P in April. He said I had adrenal insufficiency and hypothyroidism as a result of poor pituitary performance due to the head injury. I was advised by someone else that I needed a synacthen test just to check my pituitary function as well and that can only be done at hospital.
I registered with a new GP (the third in 6 months) and I was hopeful he would help. I saw him on Tuesday 11th June and he was no help. He dismissed any link with my brain injury and the pituitary. Said nothing like that exists. He said my thyroid results were normal (TSH 2.21, range 0.5-4.0, FT4 15, range 10-22) and there was absolutely nothing wrong with my pituitary. He said he is a senior registrar in internal medicine and knows that there's no link between brain injury and pituitary disease and he is far too experienced to give me a diagnosis just because I said so. In fact he said, most of the symptoms I said I had were probably not really there because my heart was fine...etc etc. He said I had fibromyalgia and he would refer me to a psychologist if I wished and I declined.
Anyway, prior to seeing him I had started on the nutri adrenal extra tablets and all the supplements (Vit C, floradix, Co Q10) Dr P asked me to take. I hadn't yet started on the nutri thyroid as I had to take the nutri adrenals for 10 days. I started nutri thyroid tabs on Tuesday & I feel a slight difference already. The brain fog seems to have cleared. My mood seems better. The constipation stopped and my movement is still slow but not as slow. I still have aches and pains in my muscle and joints and tire really easily. But to me this confirms that I definitely had a thyroid issue. I know nutri thyroid doesn't have a high dose of thyroid hormones and I believe if I started on armour or something similar I'd feel even better.
My worry is self medicating on thyroid hormones won't fix my pituitary (or will it?). I can't do the synacthen test due to my GP's "arrogance" in believing he knows it all. Should I even be worrying about my pituitary? Also, I believe being hypothyroid is something I have to live with for life. Not having this diagnosis on my NHS notes worries me as well. I'm 34 and I plan on having children someday. The doctors will have to be aware of this to manage the pregnancy won't they? I'm quite happy to self medicate as my GPs have been unhelpful so far. I'm just worried about the practicalities I suppose. Please can anyone advice me where to go fro here or am I worrying over nothing? I've changed GPs three times already and seem to be going from bad to worse. I'd appreciate any advice...