I had the right lobe of my Thyroid removed on the 28th February for suspected papillary cancer. The pathology findings established that I had follicular variant papillary cancer of the Thyroid. My endo surgeon thought that the left side of my Thyroid would take up the slack and produce enough Thyroid hormones but it isn't. My results are:
TSH 6.0 (Range 0.27 - 4.2 mIU/L)
FT4 11.8 (Range 12.0 - 22.0 pmol/L)
FT3 3.8 (Range 3.1 - 6.8 pmol/L)
I was displaying all the symptoms of Hypothyroidism when I saw him 5 weeks ago and he actually said that I was hypothyroid. He started me on 75mcg of Levothyroxine but it has not made a difference to my hypo symptoms. I emailed the endo nurses Monday just gone explaining that I didn't have another appointment until 18.6.13 and I was concerned because I wasn't getting better and that I thought my TSH needs to be suppressed to stop the cancer returning. The nurse organised an appointment for the next day, yesterday, and basically my endo surgeon said the cancer was benign, I should not be hypo and that I shouldn't even need the Levothyroxine. I had further bloods taken and he is going to get the nurse to phone the results to me in a couple of days time.
However, he pood pood the fact that I'm hypothyroid and that he cannot treat the symptoms but has to go by blood tests and that I have to wait and see. The left lobe might start working and I have to give it time.
As you can image I broke down and cried saying I couldn't cope and that I wasn't ill when the cancer was inside me and that I wished I'd never had it taken out. Fortunately, he started to listen and asked me various other questions and took my pulse. My husband spoke for me too. My endo surgeon then decided that it was best for me to be referred to an endocrinologist because he can only give me T4.
Can anyone give me advise for my appointment with the endocrinologist? I went to my GP with my symptoms but he wasn't too concerned. I had blood tests for Vit B12 deficiency and it came back 398ng-L (range 187-883). My GP won't treat this, it's not low enough and he won't treat until it is below the minimum level on the range even though I am at risk due to having only half a Thyroid and I take Metformin, for diabetes, that causes Vit B12 deficiency.
Any advise would very much appreciated.