Always reading everyone's posts although haven't responded or posted for a while. I know I don't need to go into great explanation for this as you all know what happens to us preventing us being able to do the easiest of tasks. I wonder if anyone, is in the know of a private consultant that I can go to somewhere in the UK to check my symptoms. I have had enough NHS tests (repeated again and again for what purpose I don't know, all negative) and an attitude which seems always reverting to you are 'swinging the lead'. 3 years of this and unable to work I am really at my wits end. Tried it all, diets, exercise, taking up voluntary work (which I often am unable to attend), medication etc. all to no avail. I just don't believe the NHS reasons anymore and need to find someone who will listen to me properly and do other tests. Is there anyone who knows of another professional I can contact, in the private sector?
I have had a long history of abdominal problems from birth and was in and out of Great Ormond Street for 7 years. I have never been right but just coped with it. NHS say its not relevant, but then I would quiz them about other reasons it could be - again to do with my history........ but its always "no it won't be that, it's IBS" yet they don't test me to dismiss these theories..... and of course it's always to do with Mental problems. Folks I am sinking, I am getting worse, despite what I try, not better and I really feel unless I can get someone to listen to me properly I might not be around for too much longer. Sorry for the dramatic!!
I will be so grateful for any help.