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I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
1 year ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
1 year ago
Is this a "normal" reaction to NDT?
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Juliet_22
in
Thyroid UK
1 year ago
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Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
1 year ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
1 year ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
1 year ago
Zannado
I was told by endo I could get t3 if I did 6 weeks on levo to show I don't convert properly. I did this on 175 levo but my t4 was rising out of range and t3 not in the highest range. I've been on ndt and t3 but always self sorced. But I was hoping to get t3 on percripton. The gp has said I now have to
I was told by endo I could get t3 if I did 6 weeks on levo to show I don't convert properly. I did this on 175 levo but my t4 was rising out of range and t3 not in the highest range. I've been on ndt and t3 but always self sorced. But I was hoping to get t3 on percripton. The gp has said I now have to
Zannadoo
in
Thyroid UK
1 year ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
1 year ago
eGFR down 14% since starting ADT
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
SierraSix
in
Advanced Prostate Cancer
1 year ago
Sweet!
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
runtrails
in
Prostate Cancer Network
1 year ago
Latest Treatments for Advanced Prostate Cancer
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
NecessarilySo
in
Advanced Prostate Cancer
1 year ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
1 year ago
New member, looking for alternatives to Thyroid-S
Dear all, I am new to this forum but not to thyroid disease. I was diagnosed with autoimmune hypothyroidism in 1999, at age 29, and put on levothyroxine. I struggled on it for years, tried different brands, but never felt optimal. I needed 200 micrograms a day just to feel human, while doctors kept
Dear all, I am new to this forum but not to thyroid disease. I was diagnosed with autoimmune hypothyroidism in 1999, at age 29, and put on levothyroxine. I struggled on it for years, tried different brands, but never felt optimal. I needed 200 micrograms a day just to feel human, while doctors kept
Hidden
in
Thyroid UK
1 year ago
Update after RALP ---- Need advice
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
FMOH_N
in
Prostate Cancer Network
1 year ago
Need to source some thyroid S or ndt please.
Please could anyone pm me re thyroid s equivelant. Many thanks.
Please could anyone pm me re thyroid s equivelant. Many thanks.
bobbyb
in
Thyroid UK
1 year ago
Any informed opinions on NMN or NAMPT for advanced Pca - on ADT, no mets yet? Thanks! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4537380/
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
longrungo2
in
Advanced Prostate Cancer
1 year ago
Glandulars and NDT, whatty what now?? Confused.
Hi everyone, I think I'm being a bit dim here but I have to ask ...what is difference between Glandulars and NDT? I know M is a glandular.... But then what? What does that actually mean re. treating hypothyroidism, I still don't understand the difference despite my Googling. 😐 Also, why all the
Hi everyone, I think I'm being a bit dim here but I have to ask ...what is difference between Glandulars and NDT? I know M is a glandular.... But then what? What does that actually mean re. treating hypothyroidism, I still don't understand the difference despite my Googling. 😐 Also, why all the
Ebx_design
in
Thyroid UK
1 year ago
GUIDANCE trial
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
LiveLongAndPropser
in
Prostate Cancer Under 60
1 year ago
Would you have NODAL RT in 5 fractions?
Prostate SBRT in 5 fractions has now been adopted as standard of care for all risk levels of PCa. But doctors are now turning their eyes to nodal radiation (Whole Pelvis RT - WPRT) in 5 fractions as well. I am having HDR Brachy boost therapy with follow up node radiation starting next week at
Prostate SBRT in 5 fractions has now been adopted as standard of care for all risk levels of PCa. But doctors are now turning their eyes to nodal radiation (Whole Pelvis RT - WPRT) in 5 fractions as well. I am having HDR Brachy boost therapy with follow up node radiation starting next week at
SongofFred
in
Advanced Prostate Cancer
1 year ago
PSA rise but scans are clear. Appetite and activity level are 0
I have spoken on here a few times about my dad who is on Erleada + ADT but it has failed. They have done quite a few scans recently because he is in significant pain. But all scans have come back “clear” in that there is no significant change in metastasis etc. we are at a point now where he barely
I have spoken on here a few times about my dad who is on Erleada + ADT but it has failed. They have done quite a few scans recently because he is in significant pain. But all scans have come back “clear” in that there is no significant change in metastasis etc. we are at a point now where he barely
StayingSTRNG
in
Advanced Prostate Cancer
1 year ago
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