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Getting there slowly ....
I've been under the weather for a while - firstly intolerant to Teva T4, changed brand to one that suited me, then moved to NDT (probably too soon before giving T4 mono-therapy longer to work), found NDT was triggering chronic back spasms (boy was that not fun!), only getting 5 hrs sleep a night, so
I've been under the weather for a while - firstly intolerant to Teva T4, changed brand to one that suited me, then moved to NDT (probably too soon before giving T4 mono-therapy longer to work), found NDT was triggering chronic back spasms (boy was that not fun!), only getting 5 hrs sleep a night, so
Kit_Monster
in
Thyroid UK
2 years ago
Inflatable Penile Implants
I think this topic is appropriate for this group so I will introduce it today since I can't find a prior discussion on the site. Sexuality is very important to me, an 18 year prostate cancer survivor at age 68. It is also important to my partner. My research indicates high satisfaction for each partner
I think this topic is appropriate for this group so I will introduce it today since I can't find a prior discussion on the site. Sexuality is very important to me, an 18 year prostate cancer survivor at age 68. It is also important to my partner. My research indicates high satisfaction for each partner
awb1
in
Advanced Prostate Cancer
2 years ago
Get a bone density test if you have PC and are taking Abiraterone etc
ADT leads to accelerated bone loss. So does being 70 years plus of age. A bone density test is painless and quick and can see signs well before osterporesis fractures etc. I'm on 5 months of ADT (Firmagon first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
ADT leads to accelerated bone loss. So does being 70 years plus of age. A bone density test is painless and quick and can see signs well before osterporesis fractures etc. I'm on 5 months of ADT (Firmagon first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
Derf4223
in
Advanced Prostate Cancer
2 years ago
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UPDATE AFTER IMRT
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
GMan-62
in
Advanced Prostate Cancer
2 years ago
A journey of low free t3 to high free t3
Free T3 Free T4 TSH Hello everyone, To God belongs all Glory and Praise for improving my health. This forum has been a God send and so instrumental in helping me. I want to thank the admins and members that have taken the time to answer me on posts and in pm. My gratitude is especially to
Free T3 Free T4 TSH Hello everyone, To God belongs all Glory and Praise for improving my health. This forum has been a God send and so instrumental in helping me. I want to thank the admins and members that have taken the time to answer me on posts and in pm. My gratitude is especially to
Imaaan
in
Thyroid UK
2 years ago
Lookin for next phase of my PC fight
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
old64horn
in
Advanced Prostate Cancer
2 years ago
Private doctor prescribing T3: south Wales, SW?
I've been privately prescribed T3 and NDT for some years. The prescribing doctor is packing up, so no more scripts from them after early 2023. I will ask NHS Wales to take over prescribing. I want to be on the front foot – have some names of NHS endocrinologists who'll prescribe T3 as well as T4
I've been privately prescribed T3 and NDT for some years. The prescribing doctor is packing up, so no more scripts from them after early 2023. I will ask NHS Wales to take over prescribing. I want to be on the front foot – have some names of NHS endocrinologists who'll prescribe T3 as well as T4
megarub
in
Thyroid UK
2 years ago
Back to ADT
My PSA continues to climb - after radiation and two years of lupron/zytiga ending in Jan 21- my PSA is going back up - it was 0.1 in Sept 21 then to 0.2 in March 22, to 0.4 in Sept 22 and now 0.6 in October. Once i hit 0.4 - went to Mayo to get established with them - because it became evident that
My PSA continues to climb - after radiation and two years of lupron/zytiga ending in Jan 21- my PSA is going back up - it was 0.1 in Sept 21 then to 0.2 in March 22, to 0.4 in Sept 22 and now 0.6 in October. Once i hit 0.4 - went to Mayo to get established with them - because it became evident that
PabloK
in
Advanced Prostate Cancer
2 years ago
What now?
T-11 vertebral compression fracture ( osteoporotic/insufficiency fracture ) should I be concerned? Is this the result of 3-1/2 years of ADT + Zytiga??
T-11 vertebral compression fracture ( osteoporotic/insufficiency fracture ) should I be concerned? Is this the result of 3-1/2 years of ADT + Zytiga??
Hidden
in
Advanced Prostate Cancer
2 years ago
On long NDT (ERFA) trial, latest test results, any thoughts on these would be helpful.
TSH 0.01 mU/L (0.27-4.2) FT3 6.39 pmol/L (3.1-6.8) FT4 15.2 pmol/L (12-22) Tga 28 IU/ml (< 115) Tpo 43 IU/ml (< 34) Ferritin 117.0 ug/L (13-150) Folate 7.70 ug/L (> 3.89) B12 Active 76.2 pmol/L (37.5-150) Vit D 111 nmol/L (50-200) CRP 0.71mg/L (0 - 5) Mid July Private Endo said there
TSH 0.01 mU/L (0.27-4.2) FT3 6.39 pmol/L (3.1-6.8) FT4 15.2 pmol/L (12-22) Tga 28 IU/ml (< 115) Tpo 43 IU/ml (< 34) Ferritin 117.0 ug/L (13-150) Folate 7.70 ug/L (> 3.89) B12 Active 76.2 pmol/L (37.5-150) Vit D 111 nmol/L (50-200) CRP 0.71mg/L (0 - 5) Mid July Private Endo said there
SmPea
in
Thyroid UK
2 years ago
Where to buy Erfa AND t3 without a prescription
Hi all, Please could anyone PM me a source of either erfa NDT or T3 without prescription? I do currently receive a prescription but it's so expensive and I don't like being so restricted by the consultant; I'd like to be able to make small changes without permission! Thanks all. 🙏
Hi all, Please could anyone PM me a source of either erfa NDT or T3 without prescription? I do currently receive a prescription but it's so expensive and I don't like being so restricted by the consultant; I'd like to be able to make small changes without permission! Thanks all. 🙏
Hidden
in
Thyroid UK
2 years ago
Sildenafil for ADT side effect?
I have had total ED since my first 3 month Eligard injection on August 11. I had my second injection today, Nov. 3. My Medical Oncologist is a DO and thinks I may be on ADT for a total of 18 months. I may start 28 sessions of EBRT soon. I'm worried about penile atrophy. Would it be a good idea to ask
I have had total ED since my first 3 month Eligard injection on August 11. I had my second injection today, Nov. 3. My Medical Oncologist is a DO and thinks I may be on ADT for a total of 18 months. I may start 28 sessions of EBRT soon. I'm worried about penile atrophy. Would it be a good idea to ask
Danskor
in
Advanced Prostate Cancer
2 years ago
New PSA reading update
Got the results of the latest bloodwork today - my prognosis 0.1 measured 0.1 - put a smile on my face!!! So things are proceeding in a steady enough decline that I can accurately predict the value 3 months ahead. (see the curve on my profile) Take aways are: no noticable different on the decline
Got the results of the latest bloodwork today - my prognosis 0.1 measured 0.1 - put a smile on my face!!! So things are proceeding in a steady enough decline that I can accurately predict the value 3 months ahead. (see the curve on my profile) Take aways are: no noticable different on the decline
Stoneartist
in
Advanced Prostate Cancer
2 years ago
Help with interpreting test results
Hello! I'm new here and have already learned so much - I was wondering if anyone could help with fathoming what is going on? I'm a 34 year old woman. I initially went to the GP in August with an irregular heartbeat and a very sudden onset of general anxiety/physical feelings of doom, as well as trouble
Hello! I'm new here and have already learned so much - I was wondering if anyone could help with fathoming what is going on? I'm a 34 year old woman. I initially went to the GP in August with an irregular heartbeat and a very sudden onset of general anxiety/physical feelings of doom, as well as trouble
sa67
in
Thyroid UK
2 years ago
Low PSA, high metastasis, ready for chemo+
I was first diagnosed in 2019 with Stage 3 PCa — although I had regular DREs and my PSA always hovered between 2.5 and 3.4. Now, after treatment, and PSA rising from undetectable to .4 and .5, my PSMA Pet scan shows that the cancer has metastasized pretty extensively. I’m under the care of Dr. Eugene
I was first diagnosed in 2019 with Stage 3 PCa — although I had regular DREs and my PSA always hovered between 2.5 and 3.4. Now, after treatment, and PSA rising from undetectable to .4 and .5, my PSMA Pet scan shows that the cancer has metastasized pretty extensively. I’m under the care of Dr. Eugene
Skifanatic
in
Advanced Prostate Cancer
2 years ago
Do lower glucose levels slow the prostate cancer growth? 70-85 level better than 90-100 level? Continuous Glucose Monitor usage?
Anyone w/ avg fasting blood glucose in the 85-100 range, use a continuous glucose monitor to learn how to lower their levels to 70-85? Do men with average fasting blood glucose levels below 80 live longer than guys above 90? These are not diabetes or pre-diabetic figures but is it possible or likely
Anyone w/ avg fasting blood glucose in the 85-100 range, use a continuous glucose monitor to learn how to lower their levels to 70-85? Do men with average fasting blood glucose levels below 80 live longer than guys above 90? These are not diabetes or pre-diabetic figures but is it possible or likely
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
blood test results
hi everyone. I haven’t been on here for a while, but I got some results back today - sadly with no t3. I’ve been on 2 ndt for the last four weeks after a few years of 125 levo - I had to stop the ndt because I was unable to source it. Does this mean anything to anyone? Tsh 0.17 mlU/L - range 0.27-
hi everyone. I haven’t been on here for a while, but I got some results back today - sadly with no t3. I’ve been on 2 ndt for the last four weeks after a few years of 125 levo - I had to stop the ndt because I was unable to source it. Does this mean anything to anyone? Tsh 0.17 mlU/L - range 0.27-
looselywoven
in
Thyroid UK
2 years ago
Salvage radiation is in my future. What kind / technique is available for Salvage radiation?
hi, I have a RO who says I am being observed for possible salvage radiation. I had a RP about two years ago with a Gleason 9 and stage T3a. My post RARP PSA was not detectable. However, Recently my PSA is creeping up. I think at PSA of 0.1, the Salvage RT process will begin. Are there several
hi, I have a RO who says I am being observed for possible salvage radiation. I had a RP about two years ago with a Gleason 9 and stage T3a. My post RARP PSA was not detectable. However, Recently my PSA is creeping up. I think at PSA of 0.1, the Salvage RT process will begin. Are there several
Keniszen
in
Advanced Prostate Cancer
2 years ago
If I Could Turn Back Time (Think Cher's dynamic voice...)
I found this post by RMontana on the Active Surveillance forum and think it deserves more attention and discussion. Wish that every new member here would read it. It is never too late to think and operate in this mode. A lot of this is applicable to Those of us with Advanced PCa. Scout Do-Over
I found this post by RMontana on the Active Surveillance forum and think it deserves more attention and discussion. Wish that every new member here would read it. It is never too late to think and operate in this mode. A lot of this is applicable to Those of us with Advanced PCa. Scout Do-Over
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Which should I increase Levo or NDT.
Hello I have been on NDT and levo for many years now. I self medicate on NDT. Originally was on levo only, and it never worked well for me. I found that a mix of levo and NDT worked, this was after months and months of slow adjustments, and help from this forum. When I used NDT alone it sent my
Hello I have been on NDT and levo for many years now. I self medicate on NDT. Originally was on levo only, and it never worked well for me. I found that a mix of levo and NDT worked, this was after months and months of slow adjustments, and help from this forum. When I used NDT alone it sent my
Peanut31
in
Thyroid UK
2 years ago
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