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Need some advice on what tools are still in the toolbox
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Hi everybody, it’s been a while since I posted but I’m looking for some advice. I was diagnosed in the fall of 2019 with metastatic prostate cancer with 6 bone lesions (a few have shrunk and a few new one have appeared). FYI, I had my prostate removed in July 2019 Gleason 9, PSA 12. I’ve run the gambit
Rondief
in
Advanced Prostate Cancer
1 year ago
Zometa Tips???
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
Pwjpp55
in
Advanced Prostate Cancer
1 year ago
beta sitosterol
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Just ordered some beta sitosterol and fenbendazole. Coupling these with Ivermectin, melatonin , Lupron and abiraterone. Anyone with any success with these?
Nowhereman9
in
Advanced Prostate Cancer
8 months ago
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Zometa
I am scheduled for my first injection in the morning . I read somewhere on here my calcium should be 10 or higher. Mine has been running the past 9 months between 9.8 and 9.2. Not sure what to do? Hugs to all of you, keep your fight going! Sharon
I am scheduled for my first injection in the morning . I read somewhere on here my calcium should be 10 or higher. Mine has been running the past 9 months between 9.8 and 9.2. Not sure what to do? Hugs to all of you, keep your fight going! Sharon
Sharon0122
in
SHARE Metastatic Breast Cancer
1 year ago
Driving myself Crazy,,, Genetic results
So I did the BlueHorizon genetic results posted for some reason on PA page 🤯, https://healthunlocked.com/pasoc/posts/149956199/genetic-test-results maybe not a good day for revisiting this having serious head wobble. I am confused, DIO1 rs 2235544 AA, normal not increased activity ,
So I did the BlueHorizon genetic results posted for some reason on PA page 🤯, https://healthunlocked.com/pasoc/posts/149956199/genetic-test-results maybe not a good day for revisiting this having serious head wobble. I am confused, DIO1 rs 2235544 AA, normal not increased activity ,
Polo22
in
Thyroid UK
8 months ago
Supplements - Dangerous, Essential or Useless?
Wizard recently made an interesting post on the "drive to minimize supplementation" that I wanted to respond to in-depth. The post: https://healthunlocked.com/pasoc/posts/150006558/the-drive-to-reduce-minimize-supplementation I decided a long form response would be better, thus my separate post here.
Wizard recently made an interesting post on the "drive to minimize supplementation" that I wanted to respond to in-depth. The post: https://healthunlocked.com/pasoc/posts/150006558/the-drive-to-reduce-minimize-supplementation I decided a long form response would be better, thus my separate post here.
Technoid
in
Pernicious Anaemia Society
8 months ago
Radium 223 and (AdcalD3) calcium supplements
Hi I was hoping for some clarity here as I've been getting different advice in the UK. I think the advice is to keep off the calcium supplements 7 days before a Ra 223 injection and then return to the tablets a few days after. Similarly my Zometa (Zoledronic Acid )injection should be timed so it
Hi I was hoping for some clarity here as I've been getting different advice in the UK. I think the advice is to keep off the calcium supplements 7 days before a Ra 223 injection and then return to the tablets a few days after. Similarly my Zometa (Zoledronic Acid )injection should be timed so it
Finlay66
in
Advanced Prostate Cancer
1 year ago
Zometa
Has anyone it had side effects on zometa
Has anyone it had side effects on zometa
Shafight
in
SHARE Metastatic Breast Cancer
1 year ago
zometa
I’ve been on xgeva for 2 years with no side effects. In a month I change to zometa. What can I expect. Has anyone else changed to zometa?
I’ve been on xgeva for 2 years with no side effects. In a month I change to zometa. What can I expect. Has anyone else changed to zometa?
Shafight
in
SHARE Metastatic Breast Cancer
1 year ago
An Important thing to know if considering Estrogen Therapy.
My experience using estrogen as my only form of ADT has been positive. However, when my psa started rising and I began to feel pain in my spine and pelvis my MO put me on Zometa (bone drug IV every 3 mo). Was it necessary? I have no idea. I now get mildly sick for about 36 hours after the infusion
My experience using estrogen as my only form of ADT has been positive. However, when my psa started rising and I began to feel pain in my spine and pelvis my MO put me on Zometa (bone drug IV every 3 mo). Was it necessary? I have no idea. I now get mildly sick for about 36 hours after the infusion
No_stone_unturned
in
Advanced Prostate Cancer
1 year ago
3 Oct 2023 Sleep issue solved so far I think
G'day ms friends and family. Everybody great so far today? I am, I slept all night, did not wake to urinate, slept alll night and woke up at the usual time. I had a win, the medicine is called zolpidem .5mg. I am sure there are side effects but I just want to sleep so Iwill find out about it
G'day ms friends and family. Everybody great so far today? I am, I slept all night, did not wake to urinate, slept alll night and woke up at the usual time. I had a win, the medicine is called zolpidem .5mg. I am sure there are side effects but I just want to sleep so Iwill find out about it
RoyceNewton
in
My MSAA Community
8 months ago
Astaxanthin
Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene
Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene
Technoid
in
Pernicious Anaemia Society
11 months ago
maybe decision time???
I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavicle, sternum, entire spine, sacrum pelvis and hips. Spots in lungs, liver, spleen and many large lymph areas upper and lower body. Inital PSA 1065, Lupron, Zytiga, Pred, Zometa. PMSA January 2023 10 avid sights in ribs and
I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavicle, sternum, entire spine, sacrum pelvis and hips. Spots in lungs, liver, spleen and many large lymph areas upper and lower body. Inital PSA 1065, Lupron, Zytiga, Pred, Zometa. PMSA January 2023 10 avid sights in ribs and
katartizo61
in
Prostate Cancer Network
1 year ago
Is Radium223 treatment suitable option for me now
DX in 2020 with Stage 4 PCa and have done full course of Chemo treatment. Have been on Abiraterone for over 18 month but now it seems to be failing as PSA is continually rising; now 18 (was 2.39 back in April 2022) . I'm now mCRPC and still taking Abiraterone, ADT and Zometa. Signed up for new trial
DX in 2020 with Stage 4 PCa and have done full course of Chemo treatment. Have been on Abiraterone for over 18 month but now it seems to be failing as PSA is continually rising; now 18 (was 2.39 back in April 2022) . I'm now mCRPC and still taking Abiraterone, ADT and Zometa. Signed up for new trial
Ronnie7C
in
Advanced Prostate Cancer
1 year ago
question about hypothermia?
a couple weeks back, I visited my Kaiser infusion lab …. Lupron implant and Zometa pain train infusion. While there the intake nurse was alarmed with my 95.2 body temp. It’s been running between 95.2 and 95.7 lately. She told me to go to the E.R. , immediately, if it dropped to 95 or less. They were
a couple weeks back, I visited my Kaiser infusion lab …. Lupron implant and Zometa pain train infusion. While there the intake nurse was alarmed with my 95.2 body temp. It’s been running between 95.2 and 95.7 lately. She told me to go to the E.R. , immediately, if it dropped to 95 or less. They were
Kaliber
in
Advanced Prostate Cancer
1 year ago
Benefits of Zometa?
My oncologist wants me to start this. I’m already in so much pain in my hips I don’t want any more pain. I can hardly walk five minutes and I’m out of breath and the pain then is so excruciating I have to sit. He lowered my Ibrance medication to 100 mg now he wants to do this? I have blood clots in
My oncologist wants me to start this. I’m already in so much pain in my hips I don’t want any more pain. I can hardly walk five minutes and I’m out of breath and the pain then is so excruciating I have to sit. He lowered my Ibrance medication to 100 mg now he wants to do this? I have blood clots in
Sharon0122
in
SHARE Metastatic Breast Cancer
1 year ago
Chemotherapy again?
I completed 6 cycles of Docetaxel in March 22, I had a CT scan on 1-15-23 and on the 16th my MO requested pre-approval for docetaxel and was approved. I am currently on Lupron and Zometa and wondering if I am jumping to conclusions that there must have been something on my CT scan that prompted the request
I completed 6 cycles of Docetaxel in March 22, I had a CT scan on 1-15-23 and on the 16th my MO requested pre-approval for docetaxel and was approved. I am currently on Lupron and Zometa and wondering if I am jumping to conclusions that there must have been something on my CT scan that prompted the request
Letsfish
in
Advanced Prostate Cancer
1 year ago
Strengthening bones
HI All! Researching what I can do for my bones to help. I have had my fill of zoledronic acid and zometa. Currently on a break from them. My Onco. went 2 years on, then 3 years off, then 2 years on…to preserve my jaw. I am current of for another year and a half before she will consider another round
HI All! Researching what I can do for my bones to help. I have had my fill of zoledronic acid and zometa. Currently on a break from them. My Onco. went 2 years on, then 3 years off, then 2 years on…to preserve my jaw. I am current of for another year and a half before she will consider another round
SoulJourney
in
SHARE Metastatic Breast Cancer
1 year ago
Anyone have mBAT experience?
I'm mCRPC with node involvement, extensive bone mets, and recent liver mets. I was diagnosed with mHSPC (bone and node) in June 2021, I progressed on Lupron/Zytiga with 6 cycles of docetaxel (PEACE1 triple therapy protocol) in October 2022. I dId Provenge at time of progression and am currently on
I'm mCRPC with node involvement, extensive bone mets, and recent liver mets. I was diagnosed with mHSPC (bone and node) in June 2021, I progressed on Lupron/Zytiga with 6 cycles of docetaxel (PEACE1 triple therapy protocol) in October 2022. I dId Provenge at time of progression and am currently on
Djangler
in
Advanced Prostate Cancer
1 year ago
Zometa
Got my scan results today. CT was good with shrinkage but bone scan showing something happening with my spine. Doctor talking zometa every 3 myths. What should I expect. Is it only IV? My veins are shot. Side effects? Has it made a difference in your bones? Etc
Got my scan results today. CT was good with shrinkage but bone scan showing something happening with my spine. Doctor talking zometa every 3 myths. What should I expect. Is it only IV? My veins are shot. Side effects? Has it made a difference in your bones? Etc
mariootsi
in
SHARE Metastatic Breast Cancer
1 year ago
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