3 Oct 2023 Sleep issue solved so far I t... - My MSAA Community

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3 Oct 2023 Sleep issue solved so far I think

RoyceNewton profile image
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G'day ms friends and family. Everybody great so far today? I am, I slept all night, did not wake to urinate, slept alll night and woke up at the usual time. I had a win, the medicine is called zolpidem .5mg. I am sure there are side effects but I just want to sleep so Iwill find out about it later. remember I am telling YOU a story, if YOU have a problem talk to your doctor not ME. Another thing,story, TAKE A DISEASE-MODIFYING THERAPY {DMT). OCREVUS ic my preferred, less needles. I started long ago on Betaseron\betaferon. Interferon beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease. I HOPE YOU CAUGHT THAT.There is no cure for this, no matter what somenody says. Keep your money in your pocket, YOU will need it later. Having said that, it is NOT a life of doom and gloom that YOU are heading for. NO, not by a long shot. YOU can live a long fruitful and happy life with RRms. Do Not give up on yourself. Be scared, cry lots, even be divorced, it is okay it is normal. Some of our spouses are best left to the bad history story, Mine certainly was. The second one is 20+ years and counting. I intend on her burying me with my ms, even if sometimes we are hardly the p3erfect couple .

All being said, YOU my dear sweet ms sibling are on a long path. There are bumps along the way, but be observant, Avoid obstacles that get in your way. YOU are at the top of a hill. take a step. Slowly walk around the hill descending as YOU go. Slowly, slowly. Do not race straight downhill at a fast pace, slowly slowly is what YOU want. I like this, I will pretty it up over the years, I have time, lots of time ND SO DO YOU.

HAVE A GREAT DAY, AND A SLOW WALK,

,Royce

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RoyceNewton
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Szs3eb profile image
Szs3eb

Glad you got some sleep!!

Cwright170994 profile image
Cwright170994

Good morning Royce 😁 I've had a check on zolpidem, and it's saying only take for 4 weeks 🤔 bnf.nice.org.uk/drugs/zolpi...

I don't mind injecting DMTs myself; I've had to do copaxone for 6ish years before I got switched to ocrevus, and I'm now going on kesimpta soon! I remember where abouts to inject (thighs, stomach, under my upper arm) and I'm hoping with the delivery of kesimpta, I'll be getting an autoinjector 🤞 I gave the csync one back when I switched to ocrevus, thinking I wouldn't need it anymore, but a DMT that I can inject myself, once a month (apart from the first 3 starter doses, which are 2 weeks apart). My new MS nurse is fighting my GPs so I can get my vax's done soon, so at least I can start it before I hit the proper crap gap 😁 there's nothing like an Angry Nurse (TM) to get sh1t done for you, so 🤞 (the vax's are for covid, flu, and pneumonia)

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