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Spontaneous remission of some blood counts after Dx
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
This just is a question of curiosity I've discussed briefly before. If any members have seen something like this it would be interesting to know. I've asked two MPN Drs about it and all I hear is "it's complicated" and/or "things fluctuate". -- These plots show some counts and when I started aspirin
EPguy
in
MPN Voice
11 months ago
Oesophageal Diverticulum
Hi everyone, I have a small but quite symptomatic hiatus hernia and I'm feeling a lot of discomfort in the upper left side of my chest, much further to the left that one would expect the oesophagus to be. I've had an endoscopy and barium swallow and I've been told that I have a small mid-esophageal
Hi everyone, I have a small but quite symptomatic hiatus hernia and I'm feeling a lot of discomfort in the upper left side of my chest, much further to the left that one would expect the oesophagus to be. I've had an endoscopy and barium swallow and I've been told that I have a small mid-esophageal
romeo
in
Oesophageal & Gastric Cancer
11 months ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
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best tapering advice
I was diagnosed April 2023 PMR, after 2.5 months of severe pain in shoulders, back of neck and buttocks, then hands and wrists. I was started on 15mg which helped a lot, but never cleared up the inflammatory pain. After a month doctor advised 2 weeks at 12.5 followed by 2 weeks at 10. after the first
I was diagnosed April 2023 PMR, after 2.5 months of severe pain in shoulders, back of neck and buttocks, then hands and wrists. I was started on 15mg which helped a lot, but never cleared up the inflammatory pain. After a month doctor advised 2 weeks at 12.5 followed by 2 weeks at 10. after the first
Thiago1396
in
PMRGCAuk
1 year ago
Reactive Tinnitus - anyone else experience this
My T is very reactive and I have hyperacusis I have to wear ear plugs and ear defenders out n about I walked into a shop a few days ago ( for a few mins) without ear protection and the music has made my T go ballistic and changed tone to a higher pitch and more solid tone as well as being louder and
My T is very reactive and I have hyperacusis I have to wear ear plugs and ear defenders out n about I walked into a shop a few days ago ( for a few mins) without ear protection and the music has made my T go ballistic and changed tone to a higher pitch and more solid tone as well as being louder and
surviveT
in
Tinnitus UK
1 year ago
Tendon ruptures in hand due to long-term RA
I'm 67 and things have reached a chronic stage in my left, dominant hand due to several tendon ruptures affecting middle and ring fingers, which I can no longer extend. I'm now on the Orthopaedic surgeon's operating list, but I am very scared about how I will cope post-operatively, since I already have
I'm 67 and things have reached a chronic stage in my left, dominant hand due to several tendon ruptures affecting middle and ring fingers, which I can no longer extend. I'm now on the Orthopaedic surgeon's operating list, but I am very scared about how I will cope post-operatively, since I already have
dearpen1
in
NRAS
1 year ago
Concerned about ?asthma symptoms, what is significant and what is not
Hi hope everyone is ok. Just looking for some opinions and advice really as I am confused when it comes to my breathing. If you are in a bad mood or not feeling very patient the below might annoy you but I am just trying to be honest and describe my experience. Basically for the past 12 years since
Hi hope everyone is ok. Just looking for some opinions and advice really as I am confused when it comes to my breathing. If you are in a bad mood or not feeling very patient the below might annoy you but I am just trying to be honest and describe my experience. Basically for the past 12 years since
Blueforest23
in
Asthma Community Forum
1 year ago
Your bespoke prayer poem on faith and hope
Prayer poem for Elisabeth Linsdon on faith, hope and love It is in this, my hour of serious illness That of faith I have most need Then lord, be there to support me To Nourish my broken body And my hungry soul to feed Let my Faith and hopebe there to strengthen me when weak When with dark skies of illness
Prayer poem for Elisabeth Linsdon on faith, hope and love It is in this, my hour of serious illness That of faith I have most need Then lord, be there to support me To Nourish my broken body And my hungry soul to feed Let my Faith and hopebe there to strengthen me when weak When with dark skies of illness
JULIETstevens
in
Endometriosis UK
1 year ago
Paraneoplastic Syndromes and MPNs
This is a very interesting article on a topic I have not seen before. It caught my attention as I recall some on the forum reporting Myasthenia Gravis along with the MPN. I have experience intermittent hypercalcemia, but I do not believe this is due to a Paraneoplastic Syndrome. https://www.mympnteam.com
This is a very interesting article on a topic I have not seen before. It caught my attention as I recall some on the forum reporting Myasthenia Gravis along with the MPN. I have experience intermittent hypercalcemia, but I do not believe this is due to a Paraneoplastic Syndrome. https://www.mympnteam.com
hunter5582
in
MPN Voice
1 year ago
Upper airway obstruction on spirometry?
So I have had a history of rhinitis/polyps for the past 14 years, it is treated with daily nasal steroids/(drops if bad) and an antihistamine- though all allergy tests have been negative. About 2 months ago (after a period of anxiety it so happens) I had been using the steroid drops and started to
So I have had a history of rhinitis/polyps for the past 14 years, it is treated with daily nasal steroids/(drops if bad) and an antihistamine- though all allergy tests have been negative. About 2 months ago (after a period of anxiety it so happens) I had been using the steroid drops and started to
Blueforest23
in
Asthma Community Forum
1 year ago
Allodynia
many contributors say that because of the different symptoms it is difficult to diagnose the exact Problem.this is because medical science isn’t yet quite up with the many problems of the body. Our Doctor advises that my wife no longer has Fibromyalgia. I’m not sure about that.one of the associated
many contributors say that because of the different symptoms it is difficult to diagnose the exact Problem.this is because medical science isn’t yet quite up with the many problems of the body. Our Doctor advises that my wife no longer has Fibromyalgia. I’m not sure about that.one of the associated
Vivtom
in
Fibromyalgia Action UK
1 year ago
Exercise at the bottom of the scale.
I thought I’d write up my experiences for those of us who are not going to go far or fast, either ever or anytime soon e.g. like me with mobility problems separate from the PMR. Set baseline I’m 67. I walk at all times with a rollator and have spinal curvature. My left leg is slightly twisted and
I thought I’d write up my experiences for those of us who are not going to go far or fast, either ever or anytime soon e.g. like me with mobility problems separate from the PMR. Set baseline I’m 67. I walk at all times with a rollator and have spinal curvature. My left leg is slightly twisted and
Mayadill
in
PMRGCAuk
1 year ago
Guanfacine and N-acetylcysteine (NAC-600 mg)
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Diagnosis- ish
Hi everyone, Hope you are well. I have seen a gastroenterologist for issues with swallowing. He has diagnosed the following: intermittent dysphagia. Slight incordination of motility via barium swallow. I also had a high resolution manometry. They said reassuring noromotensive lower oesopageal sphincter
Hi everyone, Hope you are well. I have seen a gastroenterologist for issues with swallowing. He has diagnosed the following: intermittent dysphagia. Slight incordination of motility via barium swallow. I also had a high resolution manometry. They said reassuring noromotensive lower oesopageal sphincter
Awwy
in
Acid Reflux Support
1 year ago
I need some help
I was diagnosed with an underactive thyroid about 6 or 7 years ago (amongst other things) I have struggled with everything the last few years particularly with having vitamin D deficiency, thus year despite tsking 10,000 ius a day I have not increased the vitamin D - it has gone down from 33nmols Dec
I was diagnosed with an underactive thyroid about 6 or 7 years ago (amongst other things) I have struggled with everything the last few years particularly with having vitamin D deficiency, thus year despite tsking 10,000 ius a day I have not increased the vitamin D - it has gone down from 33nmols Dec
Goodytwoshoes
in
Thyroid UK
1 year ago
Cats r us
From Wednesday's art therapy session, as I tried to get in touch with my inner child. (Don't laugh, please. I am trying pretty much anything that will bring me joy.) I call this one "Looking back at you." How I managed to capture such an "Aww" factor in her eyes, I do not know. It was drawn in
From Wednesday's art therapy session, as I tried to get in touch with my inner child. (Don't laugh, please. I am trying pretty much anything that will bring me joy.) I call this one "Looking back at you." How I managed to capture such an "Aww" factor in her eyes, I do not know. It was drawn in
BrentW
in
Care Community
1 year ago
Is there a connection between PA and high serum osmolality?
I have diagnosed PA and also high serum osmolality. It was tested to check for diabetes insipidis. Anyone else have this high serum osmolality and PA? Thankyou
I have diagnosed PA and also high serum osmolality. It was tested to check for diabetes insipidis. Anyone else have this high serum osmolality and PA? Thankyou
Sea-blue
in
Pernicious Anaemia Society
1 year ago
What pain medication is a good replacement for Tramadol that can be taken with clonazapam? I take clonazapam for sleep behavior disorder.
this is my first time posting.
this is my first time posting.
Shadowperson
in
Pain Concern
1 year ago
spasms
I have been having very severe spasm and pain in both of my legs the past two nights, the worst I have experienced to date. I am on muscle relaxants and tramadol for pain and carbidopa/levodopa for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and
I have been having very severe spasm and pain in both of my legs the past two nights, the worst I have experienced to date. I am on muscle relaxants and tramadol for pain and carbidopa/levodopa for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and
horseandwolf
in
PSP Association
1 year ago
reactive thrombocytosis, headache, hip pain, platlets 580x Esr 22 and pcr 7.7 hellllpppppp!
I have been having headaches for 8 weeks along with front hip pain (not sure if they are related) I had bloods taken and was given all normal apart from high platlets 580, ESR 22 and PCR 7.7. I am seeing haematology in March but I am desperate to get an idea what is going. My headaches are more annoying
I have been having headaches for 8 weeks along with front hip pain (not sure if they are related) I had bloods taken and was given all normal apart from high platlets 580, ESR 22 and PCR 7.7. I am seeing haematology in March but I am desperate to get an idea what is going. My headaches are more annoying
Bowbow7
in
MPN Voice
1 year ago
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