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Nebuliser Newbie
I am about to start an indefinite course on a colomycin nebuliser. How do other users cope when on holiday, particularly cleaning , sterilising and potential voltage changes.
I am about to start an indefinite course on a colomycin nebuliser. How do other users cope when on holiday, particularly cleaning , sterilising and potential voltage changes.
Centaur
in
Lung Conditions Community Forum
6 years ago
Median arcuate ligament syndrome
Dr. Hsu (a vascular surgeon in CT) diagnosed me with MALS and examined me for SMA as well. I want to talk about the symptoms anyone else has had with MALS because some of them are off the wall... My symptoms are insteadiness and tremors, chest pain mid abdominal pain back pain (like my lower ribs are
Dr. Hsu (a vascular surgeon in CT) diagnosed me with MALS and examined me for SMA as well. I want to talk about the symptoms anyone else has had with MALS because some of them are off the wall... My symptoms are insteadiness and tremors, chest pain mid abdominal pain back pain (like my lower ribs are
Hidden
in
Anxiety Support
6 years ago
Trying to understand
hi I'm new to the group after recently being diagnosed with fibromyalgia. I'm awaiting hydrotherapy at the moment. Tbh I just feel like I'm a burden 😔
hi I'm new to the group after recently being diagnosed with fibromyalgia. I'm awaiting hydrotherapy at the moment. Tbh I just feel like I'm a burden 😔
jmr246
in
Fibromyalgia Action UK
6 years ago
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Hypogammaglobulinaemia?
Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Another name for old problem, but interesting to me, like putting pieces of a puzzle together since I was 11. A aha experience. Would love to know if anyone has had
Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Another name for old problem, but interesting to me, like putting pieces of a puzzle together since I was 11. A aha experience. Would love to know if anyone has had
nancarolyn
in
LUPUS UK
6 years ago
Interferon vs pegInterferon
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
PT99
in
MPN Voice
6 years ago
Acetyl-DL-leucine, Mannitol and Thiamine MIGHT help some ataxias?
I hasten to add that I am in no way qualified medically but have ataxia and am very aware I am getting worse so willing to try anything! Lol x It may easily be placebo effect. It is very early days but this may help others so posting x OK so I have been using Thiamine and Mannitol and I THINK
I hasten to add that I am in no way qualified medically but have ataxia and am very aware I am getting worse so willing to try anything! Lol x It may easily be placebo effect. It is very early days but this may help others so posting x OK so I have been using Thiamine and Mannitol and I THINK
Litty
in
Ataxia UK
6 years ago
Mindfulness
Hello BLF friends, Making a start https://youtu.be/BAbxgvPaeik 5mn anxiety reduction https://youtu.be/MR57rug8NsM Starting the day https://youtu.be/sWrgKDzM0LU Coping with pain https://youtu.be/uZEHwEtnaak Aria yoga stretching!! Have a good day xx Fran
Hello BLF friends, Making a start https://youtu.be/BAbxgvPaeik 5mn anxiety reduction https://youtu.be/MR57rug8NsM Starting the day https://youtu.be/sWrgKDzM0LU Coping with pain https://youtu.be/uZEHwEtnaak Aria yoga stretching!! Have a good day xx Fran
Hidden
in
Lung Conditions Community Forum
6 years ago
Pompeyboy
Hello Alan Opal You may not remember but back in September 2017 I posted that my wife had an endoscopy and diagnosed with hiatus hernia.She found that she could not swallow anything more than soup. Following meeting with consultant she waited for a barium swallow. From the start too the barium 3 months
Hello Alan Opal You may not remember but back in September 2017 I posted that my wife had an endoscopy and diagnosed with hiatus hernia.She found that she could not swallow anything more than soup. Following meeting with consultant she waited for a barium swallow. From the start too the barium 3 months
Hidden
in
Oesophageal & Gastric Cancer
6 years ago
Systemic (Intramuscular) Corticosteroid Injection (Betamethasone) for Inflammatory Pain
Hello Everyone, Greetings from Bolivia. About a week ago I had an Intramuscular Corticosteroid Injection in my butt for chronic pain in my spine, hips, pelvis. Unfortunately, it seems the pain is getting worse. I'm also concerned I may develop some of the horrible side effects associated with steroid
Hello Everyone, Greetings from Bolivia. About a week ago I had an Intramuscular Corticosteroid Injection in my butt for chronic pain in my spine, hips, pelvis. Unfortunately, it seems the pain is getting worse. I'm also concerned I may develop some of the horrible side effects associated with steroid
jadamrush
in
Pain Concern
6 years ago
Upper oesophagus cancer
Hello, my 77 yr old dad was diagnosed a few days ago. He has had difficulty swallowing for about 4mths and had Barium Swallow done which came back clear but biopsy during endoscopy found he has SCC cancer. Dr says Barium Swallow didn’t show as the cancer is up high (20cm from his jaw) & also very close
Hello, my 77 yr old dad was diagnosed a few days ago. He has had difficulty swallowing for about 4mths and had Barium Swallow done which came back clear but biopsy during endoscopy found he has SCC cancer. Dr says Barium Swallow didn’t show as the cancer is up high (20cm from his jaw) & also very close
Positivethoughts77
in
Oesophageal & Gastric Cancer
6 years ago
Occupational therapy ... Any experiences to share
I'm just wondering what to expect from an occupational therapy appointment, anyone got any experience or advise? ... I've had lupus almost 15 years and can't work as I had to be retire due to ill health. I think the occupational therapy may be to look at all aspects how lupus affects me. I'm pretty
I'm just wondering what to expect from an occupational therapy appointment, anyone got any experience or advise? ... I've had lupus almost 15 years and can't work as I had to be retire due to ill health. I think the occupational therapy may be to look at all aspects how lupus affects me. I'm pretty
fabwheelie
in
LUPUS UK
6 years ago
Arsenic in rice-is this a concern for those on Gluten-free diets
I saw a program on TV recently that talked about the danger people on GF diets might be exposed to because of arsenic in rice. I googled "rice and pregnancy" as well as "arsenic in rice" and found several articles on the subject. Boiled down (excuse the pun) eating too many rice products from the
I saw a program on TV recently that talked about the danger people on GF diets might be exposed to because of arsenic in rice. I googled "rice and pregnancy" as well as "arsenic in rice" and found several articles on the subject. Boiled down (excuse the pun) eating too many rice products from the
Rosemary76210
in
Hughes Syndrome APS Forum
6 years ago
Dermatology results
Hello I've received my biopsy results today about this rash I have had and dermatologists said it's drug related to Colomycin so I've to stop nebulising colomycin for 3 months. It is such a disappointment this drug has kept my lungs clear. 😢 😢 Majt
Hello I've received my biopsy results today about this rash I have had and dermatologists said it's drug related to Colomycin so I've to stop nebulising colomycin for 3 months. It is such a disappointment this drug has kept my lungs clear. 😢 😢 Majt
Hidden
in
Lung Conditions Community Forum
6 years ago
Second Reoccurrence
Hello fellow survivors. I am looking for some information/help. Diagnosed 9/12 stage 3c with debunking, colon resection. First round carbo/taxol abdominal and port. Recurrence 6/16 in spleen, pelvis and small bowel resection. Just had CT which shows new growth in mesentery near small bowel. Feeling worn
Hello fellow survivors. I am looking for some information/help. Diagnosed 9/12 stage 3c with debunking, colon resection. First round carbo/taxol abdominal and port. Recurrence 6/16 in spleen, pelvis and small bowel resection. Just had CT which shows new growth in mesentery near small bowel. Feeling worn
yo207
in
My Ovacome
6 years ago
ENT recommendations in London
Hi, I've had tinnitus for over 5 years caused by a perforated ear drum, however had learned to successfully live and cope with it to the point it no longer bothered me. However I have recently had an incident (about 1 week ago) where I was exposed to very loud music which has caused my condition to
Hi, I've had tinnitus for over 5 years caused by a perforated ear drum, however had learned to successfully live and cope with it to the point it no longer bothered me. However I have recently had an incident (about 1 week ago) where I was exposed to very loud music which has caused my condition to
David2000
in
British Tinnitus Association
6 years ago
does anyone know what Hereditary Hemochromatosis (HFE‑Related) Ive got two copies of genetic variant found so i have an increased risk
Hereditary Hemochromatosis (HFE‑Related) genetic test result two copies of genetic variant found, so i have an increased risk of getting it what ever it may be ! what is Hemochromatosis as know my dad had blood problems but not sure what they were , he's passed away so I cant ask him what it was ? So
Hereditary Hemochromatosis (HFE‑Related) genetic test result two copies of genetic variant found, so i have an increased risk of getting it what ever it may be ! what is Hemochromatosis as know my dad had blood problems but not sure what they were , he's passed away so I cant ask him what it was ? So
Pascha1
in
Thyroid UK
6 years ago
Flagyl for bronchiectasis
Just wondering if any of you fellow bronchiectasis friends have been prescribed flagyl for an exacerbation. If so, how was your experience? Mine has been a nightmare & now I am considering stopping after 4 days. Thanks!
Just wondering if any of you fellow bronchiectasis friends have been prescribed flagyl for an exacerbation. If so, how was your experience? Mine has been a nightmare & now I am considering stopping after 4 days. Thanks!
janetbogard
in
Lung Conditions Community Forum
6 years ago
Worried
Hi I have had limited systemic sclerosis and so overlaps for a few years. I’m under a local rheumatologist and the royal free. I’ve never had any difficulty with Gi issues and had an all clear barium swallow. About 3 days ago I started to get a pain between my shoulder blades It’s like I need to
Hi I have had limited systemic sclerosis and so overlaps for a few years. I’m under a local rheumatologist and the royal free. I’ve never had any difficulty with Gi issues and had an all clear barium swallow. About 3 days ago I started to get a pain between my shoulder blades It’s like I need to
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Seeking Advice and Guidance
Over the last 16 months I have had countless tests and investigations as well as numerous consultations with professionals about my situations but still feel non the wiser. Really hoping someone could guide me onto the right path as really not sure what to do next. In a nutshell, this is what i've had
Over the last 16 months I have had countless tests and investigations as well as numerous consultations with professionals about my situations but still feel non the wiser. Really hoping someone could guide me onto the right path as really not sure what to do next. In a nutshell, this is what i've had
Redpanda8
in
Oesophageal & Gastric Cancer
6 years ago
Hi I'm new.
I really need some advise and what peolle think i should do. This is a little bit of a story coming up. Back in late September/ early October I was watching TV in the living room. Without warning I felt a sharp crack occur in my right ear and a high pitch ringing start. Over the next 3 days the ringing
I really need some advise and what peolle think i should do. This is a little bit of a story coming up. Back in late September/ early October I was watching TV in the living room. Without warning I felt a sharp crack occur in my right ear and a high pitch ringing start. Over the next 3 days the ringing
Stephen1234
in
British Tinnitus Association
6 years ago
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