Second Reoccurrence

[yo207]

Hello fellow survivors. I am looking for some information/help. Diagnosed 9/12 stage 3c with debunking, colon resection. First round carbo/taxol abdominal and port. Recurrence 6/16 in spleen, pelvis and small bowel resection. Just had CT which shows new growth in mesentery near small bowel. Feeling worn and torn. I have been scheduled for a PET scan next week. My first. Just noticed that CT scan says restaging. Should I just assume it is back again and I will have to do this again? How many more reoccurrences before I throw in the towel? Very angry and venting. Just turned 54 with 7 month old granddaughter. God bless us all. Any advice appreciated. Sorry for the somber tone.

[Lily-Anne]

I feel your pain. I have a lump I can feel near my belly button about the size of a golf ball. If you have no pain or problems they will probably recommend watch and wait.

Try not to worry

LA xx

[yo207 in reply to Lily-Anne]

Thank you Lily-Anne. I hope all goes well for you as well. I will try not to worry.

[Katmal-UK]

Hi, can relate to your anger having had 2 recurrences so far, can only say I am in my third (longest) remission. Hope everything goes well for you xx Kathy xx

[yo207 in reply to Katmal-UK]

Thank you for understanding. Best of luck to you.xxxxx

[Hidden]

I have had a few recurrences and am stable for now, as long as the disease is manageable it is tolerable. In between regimes, I plan small weekend trips or a week in the sun just to focus on something different. I have two grandsons, one six and one seven months so if I need treatment after next scan I will have it to spend more time getting to know my grandchildren

[yo207 in reply to Hidden]

Thank you for your words of wisdom. Good luck and God Bless!

[lorraine71-Australia]

Hi, This is the dreadful thing about ovarian cancer the recurrence.

The fact we all react to chemo in different ways is also is hard to understated.

I'm glad that your team have scheduled a scan this will tell them more and help with a treatment plain.

Just think about your beautiful granddaughter and I know you will not think of throwing in the towel but keep on fighting.

I'm on my 5th line of treatment in 3 years and yes I sometimes think I can't take any more, but Then I look at my family and keep on.

At the moment I'm off chemo as I am in a new trial for a drug, this drug if successful is aimed at ovarian cancer recurrence it will make cancer more sensitive to chemo, when I finished the 6 doses then I will go back on chemo and hope it works, how great for all us ladies who do have a recurrence

Glad you feel you can vent your feelings here we all understand..Take care of yourself Lorraine xx

[yo207 in reply to lorraine71-Australia]

Thank you. I too am glad that I can vent to those who understand. God Bless you! This is a horrible disease!

[harpist_UK]

My medical team say to me to consider it a chronic disease - they talk about periods of stability, where nothing is happening, and periods of progression where the rotter is active. I find this helps me come to terms with it, rather than hoping for remissions which never come. In two years, since my diagnosis in October 2015, I have only had 5-6 months off medication - I was on Avastin for a year to hold it. And yet I can say I've had a pretty good quality of life and have not been restricted in my activities. It helps me to think of this as good fortune, and also to plan nice things to do during the times when I am stable - enjoy your family, your friends, beautiful places, anything that makes you feel good. You need to do this to offset all the hospital stuff which unfortunately is a part of our lives. I am currently in a period of recurrence with two failed chemos since July and about to start a trial, so it has been more challenging recently and I quite understand where you are coming from with 'worn and torn' and anger. Express these feelings, then you will get your second wind, and your third, and on you go .... All the best. x

[yo207 in reply to harpist_UK]

Thank you. Good luck and God Bless you.

[LittleSan]

Nothing much to add but offering support and understanding. xx

[yo207 in reply to LittleSan]

Thank you. I appreciate it!

[Di16]

I too understand your anger &a feeling worn. I was told I had my 5th recurrence in October, a few months after radical surgery, when I'd had high hopes of more time free of the beast, so was feeling pretty angry. And previously I'd had a couple of periods of feeling depressed & weepy connected with previous recurrences. But I calmed down, &I am trying to get on with my life. I have 4 grandchildren, & there is another due in early April, so I'm looking forward to meeting that one. Di

[airfemale]

Hi to you. I am in my sixth year with 3 occurrences. You were diagnosed before me and you are lucky to have had a longer remission. I am currently doing a trial. This disease is a constant battle of wills. Good luck to you. Let us know how you get on. I will post when I know how my trial goes. Regards Sharon.

[Bliney]

I had a recurrence and a second opinion on having surgery at Queen Charlotte's Hammersmith which I went ahead with, then chemo again carbo Caelyx. Clear scan now and hoping for a long remission.

Hope you have the treatment that is right for you and a long remission.

[yo207 in reply to Bliney]

Thank you. Good luck to you. I will stay in touch.

[Katiebairdie]

Hello, I am sitting in the chemo ward starting treatment for my third recurrence. I feel very calm, no anger or worry. Being able to access this site has been a great help to me. There is so much support and love here and info that the doctors don’t give you.

I hope you feel better very soon and good luck with trials.

Kxx

[ellseybellsey]

I really do feel your pain I’ve just been informed that it’s highly likely I am having a recurrence or a new cancer, just waiting on biopsy and scan results.

Sending you hugs xx

[yo207 in reply to ellseybellsey]

Thank you. I am sorry to hear your news. I am praying for you as well. God Bless!

[judyved-US]

I am on my second recurrence. Please don't give up. There are so many new treatments available now. Enjoy your family. One day at a time......Best to you......Judyved

[yo207]

Thank you. God Bless you!