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what is it this time?
Ok, so I’ve been SI for just under a month, moving from twice weekly to about EOD following symptoms response. I was initially taking 3mg folic acid each morning with food along with magnesium at night. Two days ago I bought a new brand of folic and increased my dosage to 5mg (following recommendations
Ok, so I’ve been SI for just under a month, moving from twice weekly to about EOD following symptoms response. I was initially taking 3mg folic acid each morning with food along with magnesium at night. Two days ago I bought a new brand of folic and increased my dosage to 5mg (following recommendations
PlatypusProfit8077
in
Pernicious Anaemia Society
18 days ago
Pins and needles help
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
mallard16
in
Pernicious Anaemia Society
19 days ago
Is neuropathy related to Thyroid? If so, what tests do I get?
I have periperal neuropathy primarily in my feet/shins. Is neuropathy related to thyroid issues? If so, is there anyrhing else to test except for a standard thyroid panel? I do currently take B12 injections every 4 days so I have that cause covered which has helped but wondering if something else is
I have periperal neuropathy primarily in my feet/shins. Is neuropathy related to thyroid issues? If so, is there anyrhing else to test except for a standard thyroid panel? I do currently take B12 injections every 4 days so I have that cause covered which has helped but wondering if something else is
SueK2
in
Thyroid UK
19 days ago
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Don't know where to start
After 4 years I still don't really know what I have.Initially diagnosed with Undifferentiated Inflammatory Arthritis, then discovered by accident that it had changed to Connective Tissue Disease and Lupus. I also discovered only yesterday that at some point I tested positive for ANA which I've never
After 4 years I still don't really know what I have.Initially diagnosed with Undifferentiated Inflammatory Arthritis, then discovered by accident that it had changed to Connective Tissue Disease and Lupus. I also discovered only yesterday that at some point I tested positive for ANA which I've never
Brychni
in
LUPUS UK
19 days ago
bleeding
Hi all I was taking clopidrell blood thinners from few years then I sadly kept heavy nose bleeds so I been taking 75 mg Asprin daily and I notice I have now bleeding gums ! Also got to repeat blood test for Gp I have low folate and low B12 so seeing Gp Thursday ! I have an app coming up for heamatology
Hi all I was taking clopidrell blood thinners from few years then I sadly kept heavy nose bleeds so I been taking 75 mg Asprin daily and I notice I have now bleeding gums ! Also got to repeat blood test for Gp I have low folate and low B12 so seeing Gp Thursday ! I have an app coming up for heamatology
Birdlady2021
in
MPN Voice
19 days ago
feeling overwhelmed with information.
good morning As you know I have recently upped my supplements to include vitamin d, b complex, k2, magnesium and selenium. I already take cod liver oil on top of my prescribed fluoxetine, Levo, cerazette (birth control) and loratadine(antihistamine). Can I take everything bar the Levo at the same time
good morning As you know I have recently upped my supplements to include vitamin d, b complex, k2, magnesium and selenium. I already take cod liver oil on top of my prescribed fluoxetine, Levo, cerazette (birth control) and loratadine(antihistamine). Can I take everything bar the Levo at the same time
Underactiveclare
in
Thyroid UK
1 year ago
New PA diagnosis
Hi all Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3 I was given the B12 loading dose of 6 injections. I read since a high intake of B12 is not good for the kidneys? Does anyone know if this is the case
Hi all Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3 I was given the B12 loading dose of 6 injections. I read since a high intake of B12 is not good for the kidneys? Does anyone know if this is the case
Bacca
in
Pernicious Anaemia Society
19 days ago
still no answers
Hi,I posted a while ago concerning my son who had a fit test of over 200 , he had a previous colonoscopy which was clear. He has had a CT of his pelvis and abdomen and has had the all clear from this today in a letter and been discharged from the clinic. This is all great news but we still have
Hi,I posted a while ago concerning my son who had a fit test of over 200 , he had a previous colonoscopy which was clear. He has had a CT of his pelvis and abdomen and has had the all clear from this today in a letter and been discharged from the clinic. This is all great news but we still have
Longboots7979
Caregiver
in
Colon Cancer Connected
19 days ago
Intrinsic factor jump from 1.1 to now 18.8 high
hello All, so I received my blood test results today for intrinsic factor and it is 18 high over the limit of 1.1. in February I was at 1.1. does anyone have any suggestions on why such a jump. I have been injecting b12 for 1.5 months now. would that have changed anything? my CBC was really good hemoglobin
hello All, so I received my blood test results today for intrinsic factor and it is 18 high over the limit of 1.1. in February I was at 1.1. does anyone have any suggestions on why such a jump. I have been injecting b12 for 1.5 months now. would that have changed anything? my CBC was really good hemoglobin
JesusMercy60
in
Pernicious Anaemia Society
19 days ago
Advice needed hyperthyroidism
So I had a baby Jan 2024 I started getting severe panic attacks again which I hadn't had in about 2 years since starting sertraline My heart was 177 pushing a double pram up the hill home whereas when I was heavily pregnant it was 153 doing the same thing so I contacted my Dr and advised my iron is
So I had a baby Jan 2024 I started getting severe panic attacks again which I hadn't had in about 2 years since starting sertraline My heart was 177 pushing a double pram up the hill home whereas when I was heavily pregnant it was 153 doing the same thing so I contacted my Dr and advised my iron is
Abbie10101
in
Thyroid UK
20 days ago
Prescribed levothyroxine at last!
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
After a long struggle, you know how it goes... I have finally been offered a trial of levothyroxine by a GP. My Medichecks results in 2020 were ignored by my GP (serum TSH 6 range 0.7-4.2) plus presence of large amount of antibodies. NHS ones kept coming back 'normal'. A different GP agreed to
Sleepysparrow
in
Thyroid UK
3 months ago
Back after a long time
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
mymomhaspd
in
Cure Parkinson's
20 days ago
LDN & THIAMINE
I’m new here . Has anyone on here been using both low-dose naltrexone and thiamine? or does anyone know of anyone who has used both concurrently?
I’m new here . Has anyone on here been using both low-dose naltrexone and thiamine? or does anyone know of anyone who has used both concurrently?
HealthyOptions
in
Cure Parkinson's
20 days ago
high mcv on blood work
Hello all, so I got my blood work cbc back on line today and my MCV is at 101 higher than before ,platelets are at 227 closer to the bottom range and my hemoglobin is 14.5 range and RDW is at the bottom line of range 11.7. I visit my Dr. on the 2nd next week. my liver enzymes are high as well alt and
Hello all, so I got my blood work cbc back on line today and my MCV is at 101 higher than before ,platelets are at 227 closer to the bottom range and my hemoglobin is 14.5 range and RDW is at the bottom line of range 11.7. I visit my Dr. on the 2nd next week. my liver enzymes are high as well alt and
JesusMercy60
in
Pernicious Anaemia Society
21 days ago
Parkinson's Link to Gut Bacteria Suggests Unexpected, Simple Treatment
https://www.sciencealert.com/parkinsons-link-to-gut-bacteria-suggests-unexpected-simple-treatment Researchers have suspected for some time that the link between our gut and brain plays a role in the development of Parkinson's disease. A new study just identified gut microbes likely to be involved
https://www.sciencealert.com/parkinsons-link-to-gut-bacteria-suggests-unexpected-simple-treatment Researchers have suspected for some time that the link between our gut and brain plays a role in the development of Parkinson's disease. A new study just identified gut microbes likely to be involved
John_morris71
in
Cure Parkinson's
21 days ago
Pattern of Improved Supplementation and Results of 5 day Trial
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting an alarm to inject at night. 50 mg B6 in the form of P-5-P or pain from peripheral neuropathy returns. The most recent improvement in my self
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Hashimoto's not diagnosed yet but had my Iron blood results back
Hi All. Any advice welcome as really struglling physically and mentally. I have been really struggling the last few days with being beyond tired more than normal 😭 I am currently waiting to see specilist privately but my appointment isn't until the 1st August. I published my resent blood results on
Hi All. Any advice welcome as really struglling physically and mentally. I have been really struggling the last few days with being beyond tired more than normal 😭 I am currently waiting to see specilist privately but my appointment isn't until the 1st August. I published my resent blood results on
Tinkerbell_84
in
Thyroid UK
22 days ago
Rejected by NHS again
Hi everyone. After being diagnosed with gastritis (cause unknown) in December I took the advice of the gastroenterologist and started Omeprazole treatment. I’ve been having stomach issues for at least 7 years. After four months of treatment I was experiencing breakthrough symptoms so decided to taper
Hi everyone. After being diagnosed with gastritis (cause unknown) in December I took the advice of the gastroenterologist and started Omeprazole treatment. I’ve been having stomach issues for at least 7 years. After four months of treatment I was experiencing breakthrough symptoms so decided to taper
pj16
in
Pernicious Anaemia Society
22 days ago
Help with Co factors
Hi So after at least two long years of trying to get a diagnosis through the GP I have had to resort to SI EOD which my hubby has taken to like a duck to water 😊 However I still don’t really understand which Co factors I should be taking Can anyone recommend a good brand and dosage of folic acid
Hi So after at least two long years of trying to get a diagnosis through the GP I have had to resort to SI EOD which my hubby has taken to like a duck to water 😊 However I still don’t really understand which Co factors I should be taking Can anyone recommend a good brand and dosage of folic acid
Doeyditdot
in
Pernicious Anaemia Society
22 days ago
Recomendations for zinc supplements....
Free T4 Free T4 * 4.3 pmo/L (7.8 - 18.0 )TFT Serum TSH* 100.00 mIU/L( 0.2 - 4.3) Vitamin B12 Serum Vtamin B12 388 ng/L (110 - 900) Ferritin Serum Ferrtin * 23 ng/mL (30 - 337) Further to our clinic consultation, your zinc level is at 8.7mo/L. Normal level is between 9.8 up to 17.9 mo/L. Recomendations
Free T4 Free T4 * 4.3 pmo/L (7.8 - 18.0 )TFT Serum TSH* 100.00 mIU/L( 0.2 - 4.3) Vitamin B12 Serum Vtamin B12 388 ng/L (110 - 900) Ferritin Serum Ferrtin * 23 ng/mL (30 - 337) Further to our clinic consultation, your zinc level is at 8.7mo/L. Normal level is between 9.8 up to 17.9 mo/L. Recomendations
Verde1
in
Thyroid UK
22 days ago
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