I’m new here . Has anyone on here been using both low-dose naltrexone and thiamine?
or does anyone know of anyone who has used both concurrently?
I’m new here . Has anyone on here been using both low-dose naltrexone and thiamine?
or does anyone know of anyone who has used both concurrently?
Yes,I do. LDN 4.5 mg. and b1 25 mg.M,W,F
Please share the effects this combo has on you?
B1 has increased my energy. LDN is really good at lowering inflammation. My Naturopath and DO said stay on LDN!It's really hard for me to say how much these two supplements are helping because I went on both of these within a few months of diagnosis. I also do many other therapies such as red light, breathing exercises,exercise and craniosacral therapy.
I would say don't expect a miracle but expect both of these supplements to help.
Cranio is the best. I miss it, but have been focused on Feldenkrais. I will see if my doc can prescribe LDN, I need the anti inflammatory right now. Thanks for the reminder.
Thanks for the information. How long has it been since you were diagnosed?
September of 2022
i’m sorry to ask so many questions, but I am new and trying to learn this quickly and as much as I can. Can you also tell me which you started on first, LDN or B1 or did you start them both at the same time?
I'm happy to help 😊 I went on LDN first. My Naturopath put me on it in hopes of stopping progression. There are some testimonials out there that has proven this to be true for a few people.
As with ALL alternative treatments, it may work, it may not but for me it's worth a try.
I have been trying everything. My health has been complex but I have been very persistent in getting to the bottom of ìt.
have you heard anything about taking the B1 as an injectable? or are you doing the sublingual form only? How did you end up selecting 25 mg for your B1? Did it have anything to do with being that you were on LDN also?
Yes, the injection would be the quickest results but more costly and finding a Provider to do it would be hard.B1 and LDN do not interact so I did not choose the dose based on LDN
I bought the book "Parkinsons and B1-therapy " and followed the protocol by Daphne Bryan. I started at a higher dose and kept on adjusting till it felt right.
I only use the sublingual.
If you are looking for natural treatments I recommend this website
Robert Roger's has studied natural treatments for PD for 20 years...
His top 3 recommendations are Exercise, Dìet,and red light therapy.
The red light therapy I just started. I'm 6 weeks into it.
Thank you for all your input. I’m sorry I didn’t answer sooner. I will look into these suggestions.
What has the red light therapy done for you? And what diet plan are you following?
So far I think my mental clarity is better. I also feel as though my body movement is a little better. I feel a little quicker and more fluid. I usually eat healthy but I'm not on a specific diet. I just asked Robert Roger's about this as I mentioned above. It's one of the last things I feel I need to check off on doing all I can to get better.
He said stay away from sugar. Use monk fruit sweetener and Stevia.Intermittent Fasting is good but make it easy..go 12 hrs then 13...whatever you feel comfortable doing and can commit to up to 16hrs.
Try and eat organic or just the best you can afford. As far as the rest go with your gut. Every person is different and what works for one person may not work for another. Watch and test how you feel after eating certain foods. I feel really good after eating beans or roasted vegetables.
hi again… I was just wondering how you’re doing your red light therapy.
I think it's helping. There can be improvements up to a year. It's hard for me to tell where I'm really at. I am sick off and on from removing toxins. I keep pressing on believing I can get to a state of wellness again.
Are you going somewhere to get your red light therapy, or did you buy the helmet? If you bought one, what brand did you get? I’m thinking about buying the Symbyx Neuro.
Does the red light therapy help reduce toxins? How are you feeling and what things do you think are improving?
I bought a helmet from vilight. I heard of it through this website parkinsonsrecovery.com/ There is a coupon code through the website that will give you 10 percent off. I think it is HEALING 4ME
You have up to 8 months to return it.
Everyone is different, it has been reported to help with fine motor skills and tremors.
For me it has helped with mental clarity and speech. I am at about 3 1/2 months of using it. It takes 12 weeks to see results.
I don't think it helps with detox but does help with healing.
For detox I do epsom salt bath, sauna, charcoal, lemon water, Nattokinase and NAC.
I have good days and bad days. I have been addressing all underlying issues. It's a battle. When pulling out toxins it can make you very sick.
I just keep having faith that taking this hard road to wellness will be worth it.
I hope that all of this works well for you. I was considering purchasing a red light therapy helmet. The main thing I’m dealing with so far is tremors. I’m hoping that’ll help that.
When were you diagnosed with Parkinson’s disease? I was just diagnosed a few months ago. Although… I have been going to doctors for the last three years trying to get an answer.
I’m not really familiar with the detox part of it. What did you mean that you don’t really think that it helps with detox, but it does help with healing? Also, Is there a place that tells you when how much and and how often you should be doing Epson salts, sauna, & lemon water? I haven’t been doing that.
if you want me to stop bothering you, please let me know. I know I’m asking a lot of questions.
we have a YMCA here that’s offering cycling and rock steady classes for people with Parkinson’s. I understand that’s supposed to be very helpful with managing the symptoms. I’m having to have to hold off going to that until the torn disc in my back heals. I do what exercising I can that’s a workaround with my back.
Here is a link that explains the healing aspects of red light therapy. Another name is photobiomodulation.It promotes healing, reduces inflammation and protects cellular health. ncbi.nlm.nih.gov/pmc/articl...
Sometimes hidden toxins can contribute to the onset of parkinsons.
I did alot of testing to find the underlying causes of my parkinsons onset. I found I had toxins in my well water. My Dr is also treating me for covid shot injury since my onset started with the shot. I'm working on drawing these toxins out. I have to pace myself with ridding myself of toxins...too much too fast can make you sick.
You could drink lemon water daily. I take an Epsom salt bath once a week. I'm in the sauna 2 or 3 times a week.
My best advice for you would be to buy John Colemans. book "Rethinking Parkinsons Disease"
I wouldn't worry too much about what you are not doing 🙂. Make one small change at a time and really stick with it.
Do the type of exercise you are able to accomplish now like walking.
I was diagnosed in 2022. Hope that answers your questions.
It’s surprising how many toxins we’re exposed to. I go to an MD who is also a functional medicine doctor. He suggested we may have mold in our house and he was right. We immediately rectified that problem. He has done several tests that have given us a lot of information about the underlying issues that I have. He did a test for vitamin deficiencies, gut health, heavy metals, toxins etc.. Each test has given us a wealth of information to work with. He has me on a lot of supplements to try to bring me back to normal as possible. He just tells me what I need and tells me the best brands to buy, in some cases. I really like him and trust his suggestions, especially since he sells no products takes a lot of time talking to me and explaining in a way that I can understand well.
Thank you for the recommendation of that book. I’ve already ordered it in the Kindle version and have started reading and making notes. Sounds like a good resource.
I’ve been trying to follow a very healthy diet, but as I read John Coleman‘s book,I can see that there is room for improvement. It won’t be too difficult making the changes that I’ve read so far.
That was interesting you saying that about Covid shot injury. What is, and how does one treat a Covid shot injury?
My husband and I took part in the phase 3 clinical trials for the vaccine. I started getting symptoms, probably about three months afterward. Probably no connection there, but made me a little nervous to get more vaccines, once I connected the possible dots. If there is any connection, I didn’t want to exacerbate the issues that I already have, so it has been a year or two since my last vaccination.
I’d love to hear any new ideas that you may have or learn about. Thank you. I enjoy our conversations. I wish for us both to have continued improvement. Take care.
It sounds like you are right on track for a path of recovery and wellness. It also sounds like you have a good Doctor!
Covid shot injury is a toxic reaction to the spike protein.
It's treated with a variety of supplements that destroy spike protein such as Nattokinase ,Ivermectrin and black cumin seed oil.
I also was just tested for mold toxins. Imm still waiting for the results.
This website has been a gift from God for me. The creator Robert Roger's has become my parkinsons wellness mentor.
Well… I really do appreciate your wealth of information. I know that this will be extremely useful to me. Let me know how your toxin results turn out.