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I find this helpful.
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it is established that it is about delay of treatment and or severity of symptoms. There is no basis for stating that as fact although it often
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Imerslund-Gräsbeck one to know about
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
Oneash
in
Pernicious Anaemia Society
3 months ago
here again needing advice!!
Had a private blood test with medicheck a few weeks ago. Here are the results: TSH 1.23 mu/L Normal range 0.27-4.2 mu/L Thyroxine 16.9 pmol/L Normal FT4 levels 12-22 pmol/L Triiodothyronine 4.2 pmol:L Normal levels FT3 3.1-6.8 pmol/L I am still feeling really rubbish on 100 microgram levothyroxine
Had a private blood test with medicheck a few weeks ago. Here are the results: TSH 1.23 mu/L Normal range 0.27-4.2 mu/L Thyroxine 16.9 pmol/L Normal FT4 levels 12-22 pmol/L Triiodothyronine 4.2 pmol:L Normal levels FT3 3.1-6.8 pmol/L I am still feeling really rubbish on 100 microgram levothyroxine
Vorney
in
Thyroid UK
3 months ago
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Blood Pressure Medication
Unfortunately I now have to start BP medication and GP can only seem to find capsules. As I have problems with Acacia Powder and Cellulose and these seem to be in all BP medication, GP has not found me ones I can take after seeming to look for the last fortnight. Is there anyone on this forum who
Unfortunately I now have to start BP medication and GP can only seem to find capsules. As I have problems with Acacia Powder and Cellulose and these seem to be in all BP medication, GP has not found me ones I can take after seeming to look for the last fortnight. Is there anyone on this forum who
nightingale-56
in
Thyroid UK
3 months ago
New Concept?
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14 days not like when I was under supplementing and it was 30 days and I was pretty sure the trial was positive. I made a rational increase of
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
3 months ago
Tiredness
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
Hi, Can anyone help please. I am under Haemotology at the hospital for active monitoring as a bone marrow biopsy showed I have Weinstrom M( a type of Lymphoma) I have a three monthly B12 inj and am on 75 mcg of Levothyroxine for my thyroid. My bloods last week at the Haemotology dept showed all my bloodwork
PamBow
in
Thyroid UK
3 months ago
diabetes & B12 Deficiency
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better. I’ve had all the classic symptoms. I’ve had the 6 loading doses, 2 further jabs at 6 weeks apart and I’m now on a 4 weekly regime with the UK
Pa234aw
in
Pernicious Anaemia Society
3 months ago
B12 injections out of stock for a long time
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
My last post was regarding this but I don’t know what date that was. Versandapo.de and Apohealth.de have been out of stock with the Panpharma B12 for a long time. I have given my email address to Versandapo and they said they will contact me when back in stock but it’s been a couple of months (since
Ryaan
in
Pernicious Anaemia Society
3 months ago
Any suggestions please.
Hello. I wonder if you would be kind enough to give me your views on my latest results please. I currently take 100mcg thyroxine at bedtime. My GP withdrew my T3 ( 5mcg) around 5 years ago. Apparently it doesn't work and was too expensive. I feel dreadful. I'm underweight with a BMI of 18 and on top
Hello. I wonder if you would be kind enough to give me your views on my latest results please. I currently take 100mcg thyroxine at bedtime. My GP withdrew my T3 ( 5mcg) around 5 years ago. Apparently it doesn't work and was too expensive. I feel dreadful. I'm underweight with a BMI of 18 and on top
andreab
in
Thyroid UK
3 months ago
Latest test after 4 months on T3
I just wanted to check in as my endo has scheduled an 'urgent' call with me after seeing these results. Should I be worried? TIA all you beautiful people! TSH X <0.005 mIU/L (Range: 0.27 - 4.2) Free T3 5.3 pmol/L (Range: 3.1 - 6.8) Free Thyroxine 18.3 pmol/L (Range: 12 - 22) Thyroglobulin Antibodies
I just wanted to check in as my endo has scheduled an 'urgent' call with me after seeing these results. Should I be worried? TIA all you beautiful people! TSH X <0.005 mIU/L (Range: 0.27 - 4.2) Free T3 5.3 pmol/L (Range: 3.1 - 6.8) Free Thyroxine 18.3 pmol/L (Range: 12 - 22) Thyroglobulin Antibodies
wavedancers
in
Thyroid UK
3 months ago
Hypo Dr lowered dose!
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Hi everyone, My Dr. lowered my prescription from 150mcg to 125mcg on the basis of a TSH result of 0.01. Test done as advised on here. No T4 or T3 was done. No discussion about symptoms . In fact it was done without any discussion. I’ve had to wait a month to have an appointment with my Dr. Was not
Lowestoft
in
Thyroid UK
3 months ago
B12 over 4000 with injections, any need to worry?
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Hello lovely people, I've been SI 1500ug twice weekly since mid December as a bit of an experiment to see if it would help my symptoms, many which are neuro. Not officially diagnosed as B12 deficient as my blood tests before were all fine but I was heavily supplementing so not really possible to say
Bertiepuss
in
Pernicious Anaemia Society
3 months ago
Courage
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
There seems to be a misconception that it takes courage to make the rational choices I make with regards to my self treatment. I am guessing it is a projection of others fears which I do not have. It only took about 6 months for me to firmly establish that those in the medicial field were very comfortable
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
ferritin level!??
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
ThyroidObsessed
in
Thyroid UK
3 months ago
Which Brand B12 NHS injections please ?
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
My NHS surgery use Gerot Lannach and boy do they sting ! 😲 Had a conversation with the nurse doing the injection today, who is more than happy (.......to the point of being over excited ! ) to fight on our behalf to change to a different, non stinging brand, if I can give her some suggestions of what
Spritze
in
Pernicious Anaemia Society
3 months ago
friend with MS… interesting parallels
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
hi just sharing as this intrigued me. Visited a friend I haven’t seen for 12 years recently, she moved away. She was diagnosed with MS just before she left and talking to her I learned the following. MS support group recommended loading dose of 40,000 iu Vit D then 8,000 a day more in winter. This
Regenallotment
in
Thyroid UK
3 months ago
Link between Vitamin B12 Deficiency and MS
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
BettysMom
in
My MSAA Community
3 months ago
Low cortisol
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
redhead41
in
Thyroid UK
3 months ago
Flying with b12 medication
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Good evening, Just wondering, if a person ever needs to travel (fly) with their b12 medication... Is that fine? Has anyone had any issues with that? Thank you, S
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
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