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New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
3 months ago
High cortisol hashimotos hypothyroid high B12 high magnesium T4 T3 Cushings? Help
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
HealthySam
in
Thyroid UK
3 months ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
3 months ago
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folate injection Australia
does anyone know how to get the above in Australia?
does anyone know how to get the above in Australia?
Inquiringmind12
in
Pernicious Anaemia Society
3 months ago
One more question about folate
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's system? Thanks again! Nancy
ndodge
in
Pernicious Anaemia Society
3 months ago
Folder levels high
Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based multi with 800 mcg of folate, pretty much just on the days I inject. My naturopath doctor prescribed methyl folate. I took a1000mcg dose and
ndodge
in
Pernicious Anaemia Society
3 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
3 months ago
Advice following GP visit please
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
TheMudRunner
in
Thyroid UK
3 months ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
3 months ago
Guess what? Your body has changed and will never be the same.
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
I recently read a post from a guy that stated he had muscle and stamina loss. The post and responses then went on in a very hand wringing way to ask and discuss things like, “should I eat whey”, “what about protein and in what form”, “I never eat or drink dairy products”. It then went on to lament all
OldGuysRule
in
Advanced Prostate Cancer
3 months ago
normal TSH help.
I am about to go to the doctors in an hour to speak about some blood tests I had done last week. To me the results are on the higher side. From what I’m reading most doctors don’t like to do antibody tests and t3 and t4. How can I persuade them to do these just to check my levels? I had lots of other
I am about to go to the doctors in an hour to speak about some blood tests I had done last week. To me the results are on the higher side. From what I’m reading most doctors don’t like to do antibody tests and t3 and t4. How can I persuade them to do these just to check my levels? I had lots of other
GLDMJP14
in
Thyroid UK
3 months ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
3 months ago
weird stool?
hey so I'm undergoing some tests due to stomach pain, I had an ultrasound done which came back clear but I'm still terrified I have pancreatic cancer or something like that! I'm 30 years old which I know would be rare but not unheard of! Could the ultrasound miss this?? I have upper back pain that comes
hey so I'm undergoing some tests due to stomach pain, I had an ultrasound done which came back clear but I'm still terrified I have pancreatic cancer or something like that! I'm 30 years old which I know would be rare but not unheard of! Could the ultrasound miss this?? I have upper back pain that comes
Megaaalee
in
British Liver Trust
3 months ago
Muscle Cramps?
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
Carrielam
in
Cure Parkinson's
3 months ago
Biotin in Vitamin B complex supplements
HiI've been talking a vitamin B complex for years, only to realise Biotin affects thyroid bloodworks, I can't believe I never knew! My questions is, do I continue with the complex or just some specific B vitamins? Or just stop taking them, when my thyroid bloods are due? Does Biotin affect all the blood
HiI've been talking a vitamin B complex for years, only to realise Biotin affects thyroid bloodworks, I can't believe I never knew! My questions is, do I continue with the complex or just some specific B vitamins? Or just stop taking them, when my thyroid bloods are due? Does Biotin affect all the blood
PapiGirl
in
Thyroid UK
3 months ago
SSC and Vitamin D
I have SSc (Scleroderma)/Reynauds/Pulmonary Fibrosis/Inflamatory Arthritis. And other stuff!. 2010 diagnosis. The stuff on the web address below is hard reading, but Vitamin D is so important to help you with our conditions. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5042230/#:~:text=Vitamin%20D
I have SSc (Scleroderma)/Reynauds/Pulmonary Fibrosis/Inflamatory Arthritis. And other stuff!. 2010 diagnosis. The stuff on the web address below is hard reading, but Vitamin D is so important to help you with our conditions. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5042230/#:~:text=Vitamin%20D
homeat42
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Nd Thyroid to thyroxine
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Bridb
in
Thyroid UK
3 months ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
3 months ago
Brothers. Recent blood results
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
six weeks 100mcg Accord TSH. 2.9. (0.3-5.5) FT4. 14.7 ( 10-22) Peroxidase 275.49 No FT3 done B 12 295. (197-771) Folate. 3.4. (2.1-26.8) ( Dr said all normal 😂) Any advice would be helpful
Bean101
in
Thyroid UK
3 months ago
anybody had these tests before?
Hi Everyone Long time, no post so I apologise. Since I last spoke to anyone I have been diagnosed with Osteoperosis, so fighting a number of demons. My Rheumatologist has been concerned about my ever decreasing levels of calcium despite eating calcium rich food and doubling my prescribed Calcium supplements
Hi Everyone Long time, no post so I apologise. Since I last spoke to anyone I have been diagnosed with Osteoperosis, so fighting a number of demons. My Rheumatologist has been concerned about my ever decreasing levels of calcium despite eating calcium rich food and doubling my prescribed Calcium supplements
jillydabrat
in
MPN Voice
3 months ago
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