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Vitamin B1
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Stomach problems and steroids - where next
I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg. But the death of a close friend, for whom I am executor, resulted in a big flare. I consulted Rod Hughes privately in autumn 2023 and was advised to go to 15 mg and reduce in stages. I reached 9 but a flare caused by
I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg. But the death of a close friend, for whom I am executor, resulted in a big flare. I consulted Rod Hughes privately in autumn 2023 and was advised to go to 15 mg and reduce in stages. I reached 9 but a flare caused by
Hidcote
in
PMRGCAuk
4 months ago
Levothyroxine optimised?
Hi lovely people! My latest thyroid results were: TSH 1,27 (0,380-5,330μUI/mL) (18% through range) fT4 1,16 (0.38-1,40 ng/dL) (88% through range) fT3 3,79 (2,5-3,9pg/mL) (92% through range) Miraculously they finally tested fT3 for the first time, and I was so happy to see that I seem to be converting
Hi lovely people! My latest thyroid results were: TSH 1,27 (0,380-5,330μUI/mL) (18% through range) fT4 1,16 (0.38-1,40 ng/dL) (88% through range) fT3 3,79 (2,5-3,9pg/mL) (92% through range) Miraculously they finally tested fT3 for the first time, and I was so happy to see that I seem to be converting
catpotter44
in
Thyroid UK
4 months ago
Would be grateful for your thoughts on my blood results before endo apt please, still feeling exhausted and weak. Thank you
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hopetoheal22
in
Thyroid UK
4 months ago
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Unrelated PMR question, but asking for a desperate friend in need …
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
LemonZest11
in
PMRGCAuk
4 months ago
Supplements still necessary?
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Aumshantii
in
Pernicious Anaemia Society
4 months ago
Perspective: My 20mg a day is ~ 1/8th of a Sublingual B1
Most things declare the vitamin content, but Alinamin-F declares TTFD. The molar weight of TTFD is 398.54 g/mol and the molar weight of Thiamine (B1) is 265.355 g/mol, therefore 50 mg is 32.9mg B1 (66.59%). Fursultiamine is another name for TTFD. So my sweet spot of 20mg a day is 13.3mg B1 or approximately
Most things declare the vitamin content, but Alinamin-F declares TTFD. The molar weight of TTFD is 398.54 g/mol and the molar weight of Thiamine (B1) is 265.355 g/mol, therefore 50 mg is 32.9mg B1 (66.59%). Fursultiamine is another name for TTFD. So my sweet spot of 20mg a day is 13.3mg B1 or approximately
Gcf51
in
Cure Parkinson's
1 year ago
Reversing out worse than actual symptoms
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
Trialerror
in
Pernicious Anaemia Society
4 months ago
Vitamins for quality eggs
So i Just had my fet which was negative. Now I have to start all over I have no more embryos left. I bought these and want to ask what and when to start and stop. Fertistill (Myo-Inositol, Cinnamon, Coenzima Q10, folic acid, Vitamin D3) Vitamin e Ubiquinol Brazilian nuts Pom juice Beet Ananas (core
So i Just had my fet which was negative. Now I have to start all over I have no more embryos left. I bought these and want to ask what and when to start and stop. Fertistill (Myo-Inositol, Cinnamon, Coenzima Q10, folic acid, Vitamin D3) Vitamin e Ubiquinol Brazilian nuts Pom juice Beet Ananas (core
Zoomm
in
Fertility Network UK
4 months ago
Turmeric and a Flare and Drama + Thoughts
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Hidden
in
PMRGCAuk
4 months ago
Pmr , Rs3pe
My dad is 78 yrs old was fit and healthy he started having symptoms of limited shoulder movement, pain at the back of his thighs , swollen hands that he couldnt move and fatigue, high crp and esr in blood, carpal tunnel in both hands due too swelling He has seen a reumy at hospital at hospital and put
My dad is 78 yrs old was fit and healthy he started having symptoms of limited shoulder movement, pain at the back of his thighs , swollen hands that he couldnt move and fatigue, high crp and esr in blood, carpal tunnel in both hands due too swelling He has seen a reumy at hospital at hospital and put
bmwm135i
in
PMRGCAuk
4 months ago
B12 suppliers to UK
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
FlorencePocket-Owl
in
Pernicious Anaemia Society
4 months ago
Swollen tongue and teeth impressions on tongue
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
lostherpocket
in
Thyroid UK
4 months ago
Antibody blood test
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Nattycake
in
Thyroid UK
4 months ago
vitamin d tablets
been taking vitamin d tablets as my levels came back low but since I have I have had the most horrible smelling bowel movements and my tummy seems upset, could this be from them? Sounds weird but just don't seem right! Usually I would put it down to something else but it does seem to be from a day or
been taking vitamin d tablets as my levels came back low but since I have I have had the most horrible smelling bowel movements and my tummy seems upset, could this be from them? Sounds weird but just don't seem right! Usually I would put it down to something else but it does seem to be from a day or
Megaaalee
in
British Liver Trust
4 months ago
Can I get some advice on my latest results, please?
Hello All I recently had my blood test through my GP for my Vitamin D and other tests. (Currently on 100mcg T4 and 10mcg T3 due to see my endo around July 2024) Date: 02/05/2024 (Early morning fasting after taking my Levo and T3). Serum Vitamin B12 239 ng/L [200 - 900] Serum Vitamin D 101 nmol
Hello All I recently had my blood test through my GP for my Vitamin D and other tests. (Currently on 100mcg T4 and 10mcg T3 due to see my endo around July 2024) Date: 02/05/2024 (Early morning fasting after taking my Levo and T3). Serum Vitamin B12 239 ng/L [200 - 900] Serum Vitamin D 101 nmol
BookLover2020
in
Thyroid UK
4 months ago
graves journey update
Thought I’d follow up post endocrinology appointment. New blood tests came back FT4 11.5 (range 11-22) TSH > 0.01 So whilst my FT4 is making great strides in reduction and the 20mg carbimazole is working, TSH still needs to wake up. All hyperthyroid symptoms have gone. Feel the least anxious I
Thought I’d follow up post endocrinology appointment. New blood tests came back FT4 11.5 (range 11-22) TSH > 0.01 So whilst my FT4 is making great strides in reduction and the 20mg carbimazole is working, TSH still needs to wake up. All hyperthyroid symptoms have gone. Feel the least anxious I
Hungryallthetimes
in
Thyroid UK
4 months ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
4 months ago
Update on my daughter's GP call today. So angry.
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
I'm so angry but not surprised. I didn't expect much tbh. My daughters last Vitamin results from 2022 were B12 290, Ferritin 24, folate 9.2 & Vit D 39. She been on thyroxine since a teenager now in her 40's. TSH levels fluctuating all over the place for past 6 years. Well the GP called today
Otto11
in
Thyroid UK
4 months ago
supplements with essential thrombocyethemia
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated interferon for a number of years. Just wondered what supplementation anyone would recommend for our conditions - having a terrible time health wise and had burning leg and weakness issues - I had a car accident in February
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated interferon for a number of years. Just wondered what supplementation anyone would recommend for our conditions - having a terrible time health wise and had burning leg and weakness issues - I had a car accident in February
BeckyDing
in
MPN Voice
4 months ago
‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products, particularly when taken in combination,’ https://www1.racgp.org.au/newsgp/clinical/i-couldn-t-walk-gp-s-personal-story-of-vitamin-b6
Farooqji
in
Cure Parkinson's
4 months ago
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