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Vitamin B12
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Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
4 months ago
update
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
well after getting my labs back from Dr. Cooper I have to say that I am a little disappointed in the fact that he said my feretin levels were good at 51. I have understood from you guys that it needs to be at least 100 so him saying that 51 is good disappoints me. That being said I received my results
6236
in
Restless Legs Syndrome
4 months ago
How quickly would B12 Levels drop post injection?
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Hello, I had 6 loading doses of B12 in September following a B12 level of <145 (test doesn’t specify below that cut off) I had some symptoms including muscle aches particularly my legs above my knees, anxiety, panic attacks, fatigue, dizziness and pins and needles on my left hand. No evidence of anaemia
Sparkleros
in
Pernicious Anaemia Society
4 months ago
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Hello everyone 😊
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Hello, I hope no one minds me expressing my fears. What it is I struggle like many to get the same brand of liothyronine or just get any thats available on the nhs at times and wait time at times has been months. Its stressful just going to the chemist and I'm made to feel that I'm difficult
Elizajoe102
in
Thyroid UK
4 months ago
Is 3 times enough? And inherit.
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
I've been si M,W & F for couple months now and beginning to think it's not enough. Not sure if this happens to anyone else, but I get very tired, and weak until I eat something. It's a night and day difference after I eat, then a few hours later that all repeats. Do you all think I may need to increase
MrJustatip
in
Pernicious Anaemia Society
4 months ago
Serious Nerve Damage from Use of Nitrous Oxide
More on the news today about nitrous oxide and the serious nerve damage to those using it but, again, no mention of how use depletes
vitamin
B12
. Also horrifying to hear how easy it is to buy and that the cylinders are even larger than before 😱
More on the news today about nitrous oxide and the serious nerve damage to those using it but, again, no mention of how use depletes
vitamin
B12
. Also horrifying to hear how easy it is to buy and that the cylinders are even larger than before 😱
Polaris
in
Pernicious Anaemia Society
1 year ago
Help with b12 deficiency
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
I have neurofibromatosis 1 and now I have low b12 my nerves help just wondering if there is something can help
Vegan10
in
Changing Faces
4 months ago
Hello and happy new year everyone!! Aching legs when I walk more then 50 yards (in a nutshell)!!
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
Hello All, It's been ages since I wrote a post. I have been relatively OK for a while and then went down hill middle of December with my annual COPD freakout chest infection - heavy duty antibiotics sorted that out but of course, as I have discovered, "old age don't come alone". I am 70 now and although
sheenah
in
Thyroid UK
4 months ago
Tablets v Injections
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Hi, After a few years of monitoring my B12 levels are now low enough for my GP to offer treatment. I was expecting injections but have been prescribed tablets. Is anyone else on these ? I assumed from what I had read that injections were the primary option. Thanks
Redmusic
in
Pernicious Anaemia Society
4 months ago
Hello!
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a diagnosed B12 deficiency & despite nearly 5 months of SI of B12 & oral sublingual B12 I am not improving. I’m sure everyone here understands the
Hidden
in
Pernicious Anaemia Society
4 months ago
Blood Test Advice
The form says: FBC, Ferritin, Liver function, Thyroid function,
Vitamin
D. At the moment I supplement with Vitamins
B12
, B complex, C, D, K2 and Turmeric, Selenium and Magnesium. I have stopped B complex but is there anything else I should stop before the test.
The form says: FBC, Ferritin, Liver function, Thyroid function,
Vitamin
D. At the moment I supplement with Vitamins
B12
, B complex, C, D, K2 and Turmeric, Selenium and Magnesium. I have stopped B complex but is there anything else I should stop before the test.
carnation
in
Thyroid UK
3 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
4 months ago
NICE Guidelines Delay?
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
Does anyone have any information about the delay for the publication date of the new NICE B12 guidelines to be moved from next week to early March? I need the new guidelines to fight for reinstatement of my 8 weekly injections which were stopped when I changed to a new surgery which insists on testing
RoseFlowerDew
in
Pernicious Anaemia Society
4 months ago
Iron and B12
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
mingsbeard
in
Tinnitus UK
4 months ago
Blood results
Have recently had a private blood test done to check my B12, results were 47.4 (range 37.5-188) It was an active B12 test. Notes from doctor were it is borderline, and for me to get a mma blood test next, is this something the gp will do for me even though my results are not low?
Have recently had a private blood test done to check my B12, results were 47.4 (range 37.5-188) It was an active B12 test. Notes from doctor were it is borderline, and for me to get a mma blood test next, is this something the gp will do for me even though my results are not low?
Kayls32
in
Pernicious Anaemia Society
4 months ago
best place for b12 ampoules
well now I know my out of date stock isn’t worth using where are people buying their b12 for injections? I last bought before the final brexit from Germany but prices have gone through the roof!
well now I know my out of date stock isn’t worth using where are people buying their b12 for injections? I last bought before the final brexit from Germany but prices have gone through the roof!
Mag999
in
Pernicious Anaemia Society
4 months ago
Daughter thyroid results
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
PennB
in
Thyroid UK
4 months ago
rotexmedica bbe dates
hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe to carry on using it? Thanks.
hi I have several boxes of b12 ampoules which are best before 02/24. Is it safe to carry on using it? Thanks.
Mag999
in
Pernicious Anaemia Society
4 months ago
Recent results & help needed on next steps
CRP HS result 5.15mg/L range 0-5mg/L Ferritin result 23.5ug/L range 13-150ug/L Folate Serum result 9.42 ug/L range 3.89-19.45ug/L
Vitamin
B12
- Active result 65.6pmol/L range 37.5-150pmol/L
Vitamin
D result 56nmol/L (<25 deficient 25-<50 insufficient 50-75 adequate <75 - 200 optimal TSH result 1.44mU
CRP HS result 5.15mg/L range 0-5mg/L Ferritin result 23.5ug/L range 13-150ug/L Folate Serum result 9.42 ug/L range 3.89-19.45ug/L
Vitamin
B12
- Active result 65.6pmol/L range 37.5-150pmol/L
Vitamin
D result 56nmol/L (<25 deficient 25-<50 insufficient 50-75 adequate <75 - 200 optimal TSH result 1.44mU
Smv95
in
Thyroid UK
10 months ago
What the heck, Thyroid!?
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Rexz
in
Thyroid UK
4 months ago
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