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Vitamin B12 / Folic acid
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Research - support
Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I see from their communications that they are working on a lot of things at the moment including responding to the NICE guidelines on our behalf and funding research into lots of different things relating to pernicious anaemia
Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I see from their communications that they are working on a lot of things at the moment including responding to the NICE guidelines on our behalf and funding research into lots of different things relating to pernicious anaemia
LadyBothwell
in
Pernicious Anaemia Society
10 months ago
Updated labs, new doctor, but still a no on adjusting meds
I posted my labs back in December and contacted my doctor asking for an increase in levothyroxine to 100 instead of my current 75. I've talked with them twice about this, but they seem to think that since my TSH is in range that any med adjustments may make me have some heart issues. I recently changed
I posted my labs back in December and contacted my doctor asking for an increase in levothyroxine to 100 instead of my current 75. I've talked with them twice about this, but they seem to think that since my TSH is in range that any med adjustments may make me have some heart issues. I recently changed
spookyscaryskeletons
in
Thyroid UK
3 months ago
confused re meds
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Cooper02
in
PMRGCAuk
2 months ago
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Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic Review
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
Sydney75
in
Cure Parkinson's
6 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
2 months ago
Regular Bloods ? but waiting on thyroid bloods
Hi folks, Just wondering if anyone of you who have some experience and a fine eye, does anything scream at you here with my bloods? My eagerly awaited thyroid bloods have not come through yet. Vitamin B12 170 ng/L Range 140 - 844 Serum Folate 6.0 ng/mL 3.1
Hi folks, Just wondering if anyone of you who have some experience and a fine eye, does anything scream at you here with my bloods? My eagerly awaited thyroid bloods have not come through yet. Vitamin B12 170 ng/L Range 140 - 844 Serum Folate 6.0 ng/mL 3.1
madeline05
in
Thyroid UK
3 months ago
Advice Please - Feeling less well
Good Morning to all - Having written to you only last week to say that I was feeling so much better - I am now feeling less well and would be grateful for your advice please - Following an increase of 25mcg Thyroxine to 125mcg - in early June - I have started to experience improvements and the lifting
Good Morning to all - Having written to you only last week to say that I was feeling so much better - I am now feeling less well and would be grateful for your advice please - Following an increase of 25mcg Thyroxine to 125mcg - in early June - I have started to experience improvements and the lifting
Lemondrizz1
in
Thyroid UK
10 months ago
Is this common? fatigue and joint pain / cold hands and feet
On my 3rd month of treatment for active TB, currently on Rifampin, isoniazid, and b6. Looking at 6 months of treatment, maybe 9. I feel fatigued all the time, even with good sleep, exercise, drinking lots of water, eating whole foods and probiotics— like this general feeling of unwell and tiredness.
On my 3rd month of treatment for active TB, currently on Rifampin, isoniazid, and b6. Looking at 6 months of treatment, maybe 9. I feel fatigued all the time, even with good sleep, exercise, drinking lots of water, eating whole foods and probiotics— like this general feeling of unwell and tiredness.
Keepfighting_
in
TB Alert
6 months ago
T4 14.8 TSH 3.41
Hi, I’m new to the forum and blood tests in general so hopefully I will give relevant info. I’m 54 and have had fatigue for the past 6 months. I’ve always been fairly low energy but this is a different level. I am 10 years post menopause so it’s not that, and I’ve been on HRT a long time. My blood
Hi, I’m new to the forum and blood tests in general so hopefully I will give relevant info. I’m 54 and have had fatigue for the past 6 months. I’ve always been fairly low energy but this is a different level. I am 10 years post menopause so it’s not that, and I’ve been on HRT a long time. My blood
Lovicat
in
Thyroid UK
6 months ago
burning feet is a lot worse sense getting 7 b12 injections.
Feet were hurting slightly like prickly feelings and now after getting 7 b12 injections the symptoms are now severe burning sensation. Is this expected? Hoping this is the nerves over firing and the burning goes away soon.
Feet were hurting slightly like prickly feelings and now after getting 7 b12 injections the symptoms are now severe burning sensation. Is this expected? Hoping this is the nerves over firing and the burning goes away soon.
84withb12d
in
Pernicious Anaemia Society
10 months ago
Thyroid, Cortisol And Sodium Question
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Hi All, Got my latest results and it's a bit messy. I got off NDT 1,5 grains and switched to 88 mcg of levo, my old levo I was on before. Prior to that, I was on 75/88 mcg, alternating. So I increased and now re-checked my bloods after 8 weeks. Btw, I'm well versed in everything recommended here
Juliet_22
in
Thyroid UK
6 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
4 months ago
What to ask Endo?
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Sesameseed82
in
Thyroid UK
3 months ago
FBC Test results help please
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
tzracer
in
Pernicious Anaemia Society
3 months ago
Supplimenting Vit B12 and Folate - how much?
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
GrowingVeg
in
Thyroid UK
6 months ago
which way to go (severe RLS)
Dear members, I am here trying to help my mother, whose RLS is poorly controlled these days. Just some background info: in 2021 she was put on Pramipexole, first just 0.125 mg was controlling her symptoms well, but it only lasted for half a year maybe. So her current dose is 0.375, which she splits
Dear members, I am here trying to help my mother, whose RLS is poorly controlled these days. Just some background info: in 2021 she was put on Pramipexole, first just 0.125 mg was controlling her symptoms well, but it only lasted for half a year maybe. So her current dose is 0.375, which she splits
daisydaisy26
in
Restless Legs Syndrome
10 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
4 months ago
Blood Test Results.
Some of you will remember it took me a month to get blood test results because in the first instance the Doc who arranged them wanted to give me the results. Made about 3 appointments which were cancelled because he changed his working days or whatever so eventually decided that just to get the results
Some of you will remember it took me a month to get blood test results because in the first instance the Doc who arranged them wanted to give me the results. Made about 3 appointments which were cancelled because he changed his working days or whatever so eventually decided that just to get the results
Desanthony
in
Atrial Fibrillation Support
6 months ago
Is it OK to take 2 different types of B1 at the same time? with HDT, B1 Therapy, etc.
I am currently having success with taking my sweet spot for TTFD (17.5mg) one day and my sweet spot for B1 hcl oral (1000mg) the next [Why both - TTFD elevates my mood* better than just B1 hcl oral]. Problem: I have a bad neck and I have to take more pain relievers on TTFD days. Which creates another
I am currently having success with taking my sweet spot for TTFD (17.5mg) one day and my sweet spot for B1 hcl oral (1000mg) the next [Why both - TTFD elevates my mood* better than just B1 hcl oral]. Problem: I have a bad neck and I have to take more pain relievers on TTFD days. Which creates another
Gcf51
in
Cure Parkinson's
6 months ago
Help with next appointment following loading doses
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
GW1000
in
Pernicious Anaemia Society
6 months ago
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