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Experiences with
Vitamin B12 deficiency
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Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
5 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
9 months ago
Vitamin timings
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Joant24
in
Thyroid UK
5 months ago
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Parkinson's Link to Gut Bacteria Suggests Unexpected, Simple Treatment
https://www.sciencealert.com/parkinsons-link-to-gut-bacteria-suggests-unexpected-simple-treatment Researchers have suspected for some time that the link between our gut and brain plays a role in the development of Parkinson's disease. A new study just identified gut microbes likely to be involved
https://www.sciencealert.com/parkinsons-link-to-gut-bacteria-suggests-unexpected-simple-treatment Researchers have suspected for some time that the link between our gut and brain plays a role in the development of Parkinson's disease. A new study just identified gut microbes likely to be involved
John_morris71
in
Cure Parkinson's
3 months ago
Interesting Dynamic
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Ongoing saga of getting back my b12 prescription.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Nackapan
in
Pernicious Anaemia Society
11 months ago
Blood test for following do I need to stop taking supplements
Hi All I an due a blood test Thursday morning at 8am and I am getting tested for the following FULL IRON PANEL ZINC SELERIUM T3 CORTISOL MAGNESIUM AND CHOLESTEROL (TRYIN TO GET THIS ADDED ON) IF THE NURSE WILL ALLOW. I am takikg the follow supplements. Vit c effervescent 1200mg Vit D with K2 3000iug
Hi All I an due a blood test Thursday morning at 8am and I am getting tested for the following FULL IRON PANEL ZINC SELERIUM T3 CORTISOL MAGNESIUM AND CHOLESTEROL (TRYIN TO GET THIS ADDED ON) IF THE NURSE WILL ALLOW. I am takikg the follow supplements. Vit c effervescent 1200mg Vit D with K2 3000iug
Tinkerbell_84
in
Thyroid UK
4 months ago
Resent Test Results
Help and thoughts on my test results 5/6/24 - 9-45am Free T4 (fT4)  14 pmol/L (9.1 - 17.6) Triiodothyronine  3.8 pmol/L (2.4 - 6.0)  TSH 0.26 mIU/L (0.32-4.9) I'm taking 125 & 150 Levothyroxine every other day my test results 11/12/23 - morning Free T4
Help and thoughts on my test results 5/6/24 - 9-45am Free T4 (fT4)  14 pmol/L (9.1 - 17.6) Triiodothyronine  3.8 pmol/L (2.4 - 6.0)  TSH 0.26 mIU/L (0.32-4.9) I'm taking 125 & 150 Levothyroxine every other day my test results 11/12/23 - morning Free T4
SilkyLegs
in
Thyroid UK
4 months ago
ferritin level!??
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
My ferritin level has come back at - 43.5 ug/L (20.0 - 130.0) Folate - 11.7 ug/L (2.0. - 18.7) B12 This is so frustrating as I eat lots of fresh red meat and also supplement with iron 😩 B12 - 736 (197 - 771) Can anyone advice….?? Many thanks in advance 😞
ThyroidObsessed
in
Thyroid UK
7 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
6 months ago
The Origin of Ferritin Reference Intervals: A Systematic Review
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
humanbean
in
Thyroid UK
3 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
9 months ago
Starting B12 Injections - What To Expect?
Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, one every other day for 2 weeks then one every three months. I just wondered what others experiences are with these injections - how quickly did you start to feel better? Any side effects? And how is it after I finish the
Hi! I am now going to be starting Vitamin B12 injections in a couple of weeks, one every other day for 2 weeks then one every three months. I just wondered what others experiences are with these injections - how quickly did you start to feel better? Any side effects? And how is it after I finish the
Hidden
in
Pernicious Anaemia Society
7 months ago
Need Help Please
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally thought I was going to die. Was off work for 14 mths w/ b12 def. My dad has PA and to my knowledge I was never tested but assume I have it. Life
Swift20
in
Pernicious Anaemia Society
11 months ago
Researchers identify bacterial mechanism for vitamin B12 uptake.
https://phys.org/news/2023-11-bacterial-mechanism-vitamin-b12-uptake.html This work was done by a physicist. The scientist who work for the pharmaceutical companies will likely be aware of it and incorporate it into their work. . Like it or not scientists who work for the pharmaceutical are Premier
https://phys.org/news/2023-11-bacterial-mechanism-vitamin-b12-uptake.html This work was done by a physicist. The scientist who work for the pharmaceutical companies will likely be aware of it and incorporate it into their work. . Like it or not scientists who work for the pharmaceutical are Premier
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Found some old results
From all my test results in my bio, it is known I am a poor convertor. From recommendations within the Group back in 2016 it was felt I needed to add some T3, which my Endo at the time wouldn't do because of my severe anxiety levels and he said it would have to be dosed very carefully. I started the
From all my test results in my bio, it is known I am a poor convertor. From recommendations within the Group back in 2016 it was felt I needed to add some T3, which my Endo at the time wouldn't do because of my severe anxiety levels and he said it would have to be dosed very carefully. I started the
Jefner
in
Thyroid UK
7 months ago
Private blood results
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Tinkerbell_84
in
Thyroid UK
5 months ago
Blood test results advice since starting T3
Just got my medichecks results through. Tests taken pre 9am, fasted with delayed T4 and split T3 dose as per protcol. To recap, I added 1 x 5mcg T3 for the first time about 8 weeks ago. Endo told me to reduce my thyroxine from 125 x 6/100x1 . I didnt do this, but reduced half way and have been taking
Just got my medichecks results through. Tests taken pre 9am, fasted with delayed T4 and split T3 dose as per protcol. To recap, I added 1 x 5mcg T3 for the first time about 8 weeks ago. Endo told me to reduce my thyroxine from 125 x 6/100x1 . I didnt do this, but reduced half way and have been taking
JUUJOO
in
Thyroid UK
4 months ago
Vit D, vit B12, folate, ferritin optimal levels
Hi. Can anyone remind me what the optimal levels on a medichecks test are for the above levels please? Many thanks in advance.
Hi. Can anyone remind me what the optimal levels on a medichecks test are for the above levels please? Many thanks in advance.
Mickeydooley
in
Thyroid UK
13 days ago
How to change from T3 only to T4?
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
Nikkkita
in
Thyroid UK
5 months ago
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