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Experiences with
Vitamin B12 deficiency
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Starting medication advice
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
katyy94x
in
Thyroid UK
7 months ago
Carnivore Diet - Can't solidly recommend it
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
bassofspades
in
Cure Parkinson's
7 months ago
My Current Criteria for dosage, form and frequency of injections.
I have always been about I should not inject any more or more often than is appropriate for my body. I have also been about I should not inject less although I was overly influenced by the EOD methodology. Any less than EOD I quickly decided made no sense to inject less unless I was symptom free. Determining
I have always been about I should not inject any more or more often than is appropriate for my body. I have also been about I should not inject less although I was overly influenced by the EOD methodology. Any less than EOD I quickly decided made no sense to inject less unless I was symptom free. Determining
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
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Lanzoprazole and low B12
His bloods: B12 201 ng/L (145-914 ng/L) with note that “If strong clinical features of
vitamin
B12
deficiency
… levels up to 200 ng/L may indicate deficiency.” Serum Folate 8.9 ug/L (<3 suggests deficiency). Total white cell count 3.71 x 10*9/L (4-10 x10*9/L). MCV 99.3 fL (83-101 fL).
His bloods: B12 201 ng/L (145-914 ng/L) with note that “If strong clinical features of
vitamin
B12
deficiency
… levels up to 200 ng/L may indicate deficiency.” Serum Folate 8.9 ug/L (<3 suggests deficiency). Total white cell count 3.71 x 10*9/L (4-10 x10*9/L). MCV 99.3 fL (83-101 fL).
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Going Round in Circles - ???
I am hoping that you can help - although I am not sure what I am asking - but just need to offload - I hope that you will be able to see my previous posts when you will see that although not having had a B12 diagnosis, because of my many symptoms during the past two years, and no one being able to
I am hoping that you can help - although I am not sure what I am asking - but just need to offload - I hope that you will be able to see my previous posts when you will see that although not having had a B12 diagnosis, because of my many symptoms during the past two years, and no one being able to
Lemondrizz
in
Pernicious Anaemia Society
11 months ago
Folate
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
Loafinabout
in
Thyroid UK
7 months ago
Association between dietary thiamine intake and the risk of cognitive decline
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
Buckholt
in
Cure Parkinson's
7 months ago
GP call
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Doris11
in
Thyroid UK
7 months ago
Atrial Fibrillation
l have recently linked my AF with lack of B12. I was diagnosed with AF and Pernicious Anemia at around about the same time, prescribed BetBeta Blockers and Warfarin for AF and B12 IM every 3 months. Looking back I know that the AF flutter would start when I was nearing the B12 IM. During lockdown I injected
l have recently linked my AF with lack of B12. I was diagnosed with AF and Pernicious Anemia at around about the same time, prescribed BetBeta Blockers and Warfarin for AF and B12 IM every 3 months. Looking back I know that the AF flutter would start when I was nearing the B12 IM. During lockdown I injected
Helliborous
in
Pernicious Anaemia Society
11 months ago
Vitamin B supplements
I recently posted my iron test results which were on the high side and therefore I didn't need to supplement and if possible I should try to bring my levels down. I am about to start taking Vitamin B supplements based on a Blue Horizon thyroid test. My question is - will B supplements increase my iron
I recently posted my iron test results which were on the high side and therefore I didn't need to supplement and if possible I should try to bring my levels down. I am about to start taking Vitamin B supplements based on a Blue Horizon thyroid test. My question is - will B supplements increase my iron
sabby-c
in
Thyroid UK
29 days ago
Normal bloods still so tired 😞
Just had bloods redone as feel so tired and achey. All look ok bar folate - could this cause such fatigue?TSH - suppressed FT4 - 18.2 (9-22) FT3 (upper limit I think 6.6) Folate 5 Ferritin 115 B12 1546 - on weekly injections I am also peri menopausal and also have PoTs so hard to know what is causing
Just had bloods redone as feel so tired and achey. All look ok bar folate - could this cause such fatigue?TSH - suppressed FT4 - 18.2 (9-22) FT3 (upper limit I think 6.6) Folate 5 Ferritin 115 B12 1546 - on weekly injections I am also peri menopausal and also have PoTs so hard to know what is causing
kirsty1946
in
Thyroid UK
8 months ago
Vitamins for cognition
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Hello, my adult son has cognitive/short term memory difficulties following a TBI. He takes omega 3, B12, vitamin D and magnesium supplements and it's difficult to know if they are helping or not. I wondered if any of you could advise which supplements have been helpful to you. Lions mane and ashwaganda
Loveblue123
in
Headway
6 months ago
Functional B12 deficiency?
My daughter was found to be deficient in B12 4 years ago. She started shots of 1ml hydroxocobalamin every 3 to 4 weeks. After 3 years she decided she didn't need them anymore, so she stopped. After about a year she started to get symptoms of deficiency again. She has been getting shots every 3 to
My daughter was found to be deficient in B12 4 years ago. She started shots of 1ml hydroxocobalamin every 3 to 4 weeks. After 3 years she decided she didn't need them anymore, so she stopped. After about a year she started to get symptoms of deficiency again. She has been getting shots every 3 to
Rummie
in
Pernicious Anaemia Society
11 months ago
Decrease in the bacterial genes responsible for the synthesizing of riboflavin (vitamin B2) and biotin (vitamin B7)
"A new study from Japan has revealed a link between gut microbiota and Parkinson's disease (PD). The researchers found a reduction in the gut bacteria of genes responsible for synthesizing the essential B vitamins B2 and B7. " Twitter thread by Vipin M. Vashishtha: https://threadreaderapp.com/thread
"A new study from Japan has revealed a link between gut microbiota and Parkinson's disease (PD). The researchers found a reduction in the gut bacteria of genes responsible for synthesizing the essential B vitamins B2 and B7. " Twitter thread by Vipin M. Vashishtha: https://threadreaderapp.com/thread
genesurf
in
Cure Parkinson's
4 months ago
Counter-intuitive.
I had in my head that the further I went along with my injections the harder it would be to evaluate the effects of the injection as I improved. In the last 7 months of injecting more B12 more often it has become easier to evaluate changes I make the more I heal. Most of it seems to be my neurological
I had in my head that the further I went along with my injections the harder it would be to evaluate the effects of the injection as I improved. In the last 7 months of injecting more B12 more often it has become easier to evaluate changes I make the more I heal. Most of it seems to be my neurological
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Frequency of Injections
It is definitive for me that more frequent injections lead to my body healing. How I arrived at this being a possibility is through 3 years of study, imagining, unlearning, critical thinking, exploration and discovery. 1.5 mg every day did lead to feeling less worse over 2.5 years it was not until
It is definitive for me that more frequent injections lead to my body healing. How I arrived at this being a possibility is through 3 years of study, imagining, unlearning, critical thinking, exploration and discovery. 1.5 mg every day did lead to feeling less worse over 2.5 years it was not until
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
8 months ago
Thyroid test results - 15 wks pregnant
[i]Please see results and my comments below. Appreciate some advice, particularly on the vitamin levels. MT x[/i] [i] [/i]
[u]Inflammation [/u]
CRP HS
3.510 mg/L (Range: < 3) - [i]no idea why this is raised[/i]
[u]Iron Status [/u]
Ferritin
40.60 ug/L (Range: 30 - 169) - [
[i]Please see results and my comments below. Appreciate some advice, particularly on the vitamin levels. MT x[/i] [i] [/i]
[u]Inflammation [/u]
CRP HS
3.510 mg/L (Range: < 3) - [i]no idea why this is raised[/i]
[u]Iron Status [/u]
Ferritin
40.60 ug/L (Range: 30 - 169) - [
Molly161018
in
Thyroid UK
4 months ago
Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
8 months ago
Results are in
Haven't tested since last July. Wanted to test again end of last year but pharmacies kept messing with my meds so I had to keep waiting for things to settle down for a few weeks Latest results on 125mcg Levo and 10mcg T2 split dose. Levo taken 24hrs before, 5mcg T3 taken around 4pm and 5mcg T3 taken
Haven't tested since last July. Wanted to test again end of last year but pharmacies kept messing with my meds so I had to keep waiting for things to settle down for a few weeks Latest results on 125mcg Levo and 10mcg T2 split dose. Levo taken 24hrs before, 5mcg T3 taken around 4pm and 5mcg T3 taken
Jefner
in
Thyroid UK
5 months ago
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