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11yo latest results
Hello All, Here are my daughters latest results, I’m still battling with GP plus NHS consultants to get anywhere. She has only been off any B12/folate for 5 weeks (she does eat B12 fortified foods) but has been taking iron. Her medical history is low platelets but she obviously also has hashimotos.
Hello All, Here are my daughters latest results, I’m still battling with GP plus NHS consultants to get anywhere. She has only been off any B12/folate for 5 weeks (she does eat B12 fortified foods) but has been taking iron. Her medical history is low platelets but she obviously also has hashimotos.
RachelP03
in
Pernicious Anaemia Society
4 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
4 months ago
Starting T3 - advice please
I am fortunate to have been allowed a trial of T3 through the NHS (in Scotland) Can I ask for some advice / could anyone link to some helpful posts around starting T3? I am currently on 100mcg Levo. This is being reduced to 50mcg with 5mcg of Liothyronine twice a day (12 hours apart - so 7:30am and
I am fortunate to have been allowed a trial of T3 through the NHS (in Scotland) Can I ask for some advice / could anyone link to some helpful posts around starting T3? I am currently on 100mcg Levo. This is being reduced to 50mcg with 5mcg of Liothyronine twice a day (12 hours apart - so 7:30am and
GW1000
in
Thyroid UK
4 months ago
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Vitamin B12 deficiency from the perspective of a practicing hematologist
I feel this article contains many bits of information that often pop up on this forum, and explains them quite thoroughly and clearly. At the end is a statement that is relevant to most people on this forum, and I quote that statement: "It should be noted that patients with pernicious anemia at times
I feel this article contains many bits of information that often pop up on this forum, and explains them quite thoroughly and clearly. At the end is a statement that is relevant to most people on this forum, and I quote that statement: "It should be noted that patients with pernicious anemia at times
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Opinion on my B12 and folate tests, and what are ideal levels?
I got the results back for my b12 and folate a few days ago. My folate is low, so I have changed my diet to get my folate up that way. I can't tolerate any supplement form even in small doses (folate, folinic, folic acid etc). What about my active b12 - Monitor My Health says it is fine, is that right
I got the results back for my b12 and folate a few days ago. My folate is low, so I have changed my diet to get my folate up that way. I can't tolerate any supplement form even in small doses (folate, folinic, folic acid etc). What about my active b12 - Monitor My Health says it is fine, is that right
Carrie234
in
Thyroid UK
4 months ago
Interactive seminar on Garvan institute's work to improve the treatment of advanced cancers, including myeloma, breast and prostate cancer
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Seasid
in
Advanced Prostate Cancer
4 months ago
gastric cancer and PA does everyone have bad stomach issues with PA and how long going untreated is gastric cancer risk?
Hello all, so with 3 months almost of eod inj. my stomach has improved a lot. I still can't eat the vegie load I used to eat I have gained weight from 86 lbs to 100 lbs now since treatment with inj. but I keep reading about the gastric cancer on post's and I'm curious with the PA do we all have upset
Hello all, so with 3 months almost of eod inj. my stomach has improved a lot. I still can't eat the vegie load I used to eat I have gained weight from 86 lbs to 100 lbs now since treatment with inj. but I keep reading about the gastric cancer on post's and I'm curious with the PA do we all have upset
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
using both cyano and methy b12
hello, just a question please has anyone used both cyano and methyl b12 injections either alternating them or switched during treatments, I have methyl b12 left over and just got a new prescription to try the cyano cobalamin, I am injecting tomorrow again and was going to use one or the other. thank
hello, just a question please has anyone used both cyano and methyl b12 injections either alternating them or switched during treatments, I have methyl b12 left over and just got a new prescription to try the cyano cobalamin, I am injecting tomorrow again and was going to use one or the other. thank
JesusMercy60
in
Pernicious Anaemia Society
4 months ago
understanding results
Hi I just had my thyroid checked and I've been told I'm in excellent health. But I'm so exhausted and in pain quite a lot and I don't feel in excellent health! I also have a diagnosis of endometriosis. not currently on any thyroid medication thyroid: tsh 2.01 (0.27 - 4.2) t3 4.5 (3.1 - 6.8) thyroxine
Hi I just had my thyroid checked and I've been told I'm in excellent health. But I'm so exhausted and in pain quite a lot and I don't feel in excellent health! I also have a diagnosis of endometriosis. not currently on any thyroid medication thyroid: tsh 2.01 (0.27 - 4.2) t3 4.5 (3.1 - 6.8) thyroxine
eixip
in
Thyroid UK
4 months ago
finally added blood work. What’s a good % + ratio?
As suggested, I finally got round to filling in my blood work. What’s a good percentage and what’s a good ratio? Thanks TSH 5.19 mIU/L (0.35 - 5.00) 104.1% Free T4 (fT4) 12.5 pmol/L (9.00 - 22.00) 26.9% Free T3 (fT3) 4 pmol/L (2.40 - 6.00) 44.4% T4:T3 Ratio 3.125 Thyroglobulin Antbodies (TgAb)
As suggested, I finally got round to filling in my blood work. What’s a good percentage and what’s a good ratio? Thanks TSH 5.19 mIU/L (0.35 - 5.00) 104.1% Free T4 (fT4) 12.5 pmol/L (9.00 - 22.00) 26.9% Free T3 (fT3) 4 pmol/L (2.40 - 6.00) 44.4% T4:T3 Ratio 3.125 Thyroglobulin Antbodies (TgAb)
Jgoodwin977
in
Thyroid UK
4 months ago
Blood Test Results Critique Please
Hi, just got my test results back. Would those who have more blood test result interpreting experience than I please comment on them. I asked for full blood count and iron panel, do these tests align with that request? I asked that B12 be excluded as I SI EOD. I take a magnesium supplement at 300mg,
Hi, just got my test results back. Would those who have more blood test result interpreting experience than I please comment on them. I asked for full blood count and iron panel, do these tests align with that request? I asked that B12 be excluded as I SI EOD. I take a magnesium supplement at 300mg,
B12again
in
Pernicious Anaemia Society
4 months ago
serum b12 in the norm and active high.
hey everyone, I’m new here and hoping you can help me. Whenever I get my active b12 checked via Thriva they come back saying I am at the max they test at 150. however when I get my serum b12 checked im within the norm. Last checked in Feb and I was 354 (150-1000) mmol/L range. I know serum is your
hey everyone, I’m new here and hoping you can help me. Whenever I get my active b12 checked via Thriva they come back saying I am at the max they test at 150. however when I get my serum b12 checked im within the norm. Last checked in Feb and I was 354 (150-1000) mmol/L range. I know serum is your
Caroline1111
in
Pernicious Anaemia Society
4 months ago
Just Venting
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
Suite1000
in
My Breast Cancer Community
4 months ago
Reversing out symptoms
is it generally right that the last symptom that you developed before starting B12 injections is usually the one that flares up first when reversing out begins. I have terrible burning across my abdomen just under my skin, which I developed in the last year, and it seems to be getting worse. I’m telling
is it generally right that the last symptom that you developed before starting B12 injections is usually the one that flares up first when reversing out begins. I have terrible burning across my abdomen just under my skin, which I developed in the last year, and it seems to be getting worse. I’m telling
Chickens44
in
Pernicious Anaemia Society
4 months ago
Considering orchiectomy due to chronic constipation from Orgovyx
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
NewPotatoCaboose
in
Advanced Prostate Cancer
2 months ago
Why do GP like to group everything as depression and anxiety?
HI All I have questions about NHS and GP which I never understood. This is based of my experience of dealing with GPs not possible not a norm I am not sure why this so normalised. 1) Why do GPs prefer to brand every symptom (exhaustion, memory loss, tiredness, sleep disorder so many more) under
HI All I have questions about NHS and GP which I never understood. This is based of my experience of dealing with GPs not possible not a norm I am not sure why this so normalised. 1) Why do GPs prefer to brand every symptom (exhaustion, memory loss, tiredness, sleep disorder so many more) under
thyroidsymtoms
in
Thyroid UK
4 months ago
11yo daughters latest results
Hello All, Here are my daughters latest results. She has been off any B12/folate for 5 weeks but has been taking iron. Her medical history is low platelets but she obviously has hashimotos. Really low FT4 but high FT3 (body flogging itself?), very bizarre. Symptoms: tiredness, lack of stamina, breathlessness
Hello All, Here are my daughters latest results. She has been off any B12/folate for 5 weeks but has been taking iron. Her medical history is low platelets but she obviously has hashimotos. Really low FT4 but high FT3 (body flogging itself?), very bizarre. Symptoms: tiredness, lack of stamina, breathlessness
RachelP03
in
Thyroid UK
4 months ago
ET Jak2 . Low iron
I’m reaching out to the knowledgeable members of this incredible community from whom I have learned so much… to maybe give me some further insight…. I was diagnosed almost a year ago. Have been on Hydrea 2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating
I’m reaching out to the knowledgeable members of this incredible community from whom I have learned so much… to maybe give me some further insight…. I was diagnosed almost a year ago. Have been on Hydrea 2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating
Stargaye
in
MPN Voice
4 months ago
B12 injections - mouth spray as well?
I've had 2 B12 injections so far, with another tomorrow morning. While I was waiting for the treatment to start I ordered some mouth spray for B12 - 1 dose is 1,200ug. Today I was so tired I had to stay in bed after dragging myself on a dog walk so I had a dose of it. I just wanted to check that this
I've had 2 B12 injections so far, with another tomorrow morning. While I was waiting for the treatment to start I ordered some mouth spray for B12 - 1 dose is 1,200ug. Today I was so tired I had to stay in bed after dragging myself on a dog walk so I had a dose of it. I just wanted to check that this
eatingbiscuits
in
Pernicious Anaemia Society
4 months ago
results comparison - question around conversion…
hi there I have posted a few times in the past - more recently about my private dr suggesting T3 medication route. After getting advice on her I decided not to pursue that at this time and instead titrate my T4 / Levo up a step (from 50mcg to 75mcg daily) - have just done blood test after 8 weeks
hi there I have posted a few times in the past - more recently about my private dr suggesting T3 medication route. After getting advice on her I decided not to pursue that at this time and instead titrate my T4 / Levo up a step (from 50mcg to 75mcg daily) - have just done blood test after 8 weeks
Gosierunn
in
Thyroid UK
4 months ago
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