11yo daughters latest results: Hello All, Here... - Thyroid UK

Thyroid UK

141,245 members166,495 posts

11yo daughters latest results

RachelP03 profile image
10 Replies

Hello All,

Here are my daughters latest results. She has been off any B12/folate for 5 weeks but has been taking iron. Her medical history is low platelets but she obviously has hashimotos. Really low FT4 but high FT3 (body flogging itself?), very bizarre. Symptoms: tiredness, lack of stamina, breathlessness at times, insomnia at times etc.

I can see her folate and D are also very low.

Thoughts? Thank you.

Written by
RachelP03 profile image
RachelP03
To view profiles and participate in discussions please or .
Read more about...
10 Replies
greygoose profile image
greygoose

Very difficult to read those numbers. When enlarged they get very blurry.

Yes, the antibodies are saying she has Hashi's.

Really low FT4 but high FT3 (body flogging itself?), very bizarre.

This is what tends to happen when the thyroid is failing. No, the body is not 'flogging' itself. The thyroid makes more T3 than T4 to keep you going. BUT, could be the result of a recent Hashi's 'hyper' swing.

RachelP03 profile image
RachelP03 in reply togreygoose

Thank you. She always tends to have high in range FT3 so this isn’t unusual. A few months back all her numbers were massively high which looked like a hyper swing but this seems to be a more “normal” ie consistent profile for her. It’s just she is so symptomatic! I think she also needs B12 addressing! Unfortunately as she is a minor, my please are going on deaf ears!

greygoose profile image
greygoose in reply toRachelP03

So, for how long has she been testing her thyroid?

Did her doctor order these tests or are they private? Doctors won't always accept private test results.

And they only tend to look at the TSH. So, as hers is well in-range, they're not going to take much notice.

RachelP03 profile image
RachelP03 in reply togreygoose

We have been testing her thyroid sporadically privately for the last few years due to significant family history and her own health issues. The GP has also tested it a few times with very similar results.

greygoose profile image
greygoose in reply toRachelP03

Trouble is, they're incapable of joining up the dots. But, keep testing, you never know when things will change.

SlowDragon profile image
SlowDragonAdministrator

please add image in a reply to make it more readable

Why has she stopped B12 and B complex

Both are too low, as is vitamin D and ferritin

Has she had coeliac blood test

RachelP03 profile image
RachelP03 in reply toSlowDragon

We stopped multivitamin because I believe it has been masking a “true” picture of her B12 levels because once you’re on it, it skews the data. It’s only been 5 weeks but we have a paediatric haematology appointment next week so I wanted to go in with my own data and then they’ll also repeat bloods including FBC on the day I am sure. She has been tested twice for coeliac but negative. We have also done food allergy/intolerance testing and significant issues with egg and dairy which we haven’t yet removed.

SlowDragon profile image
SlowDragonAdministrator in reply toRachelP03

It takes 4-6 months for B12 levels to drop to a base level if been supplementing

Multivitamins never recommended for anyone with Hashimoto’s. Most multivitamins contain iodine best avoided

RachelP03 profile image
RachelP03

Results reposting.

Reply
SlowDragon profile image
SlowDragonAdministrator

NHS won’t understand Active B12 result

Any Active B12 below 70 is considered suspicious

Get NHS to test Serum B12 and folate

Not what you're looking for?

You may also like...

Help with interrupting daughters results (Hashimoto’s)

Have not posted on behalf of my daughter for a while as she has gone through a very low period when...
KIRM profile image

Daughters latest blood test

Here is the results for my daughter for bloods taken this week. She is not on any thyroid...
Catlover3 profile image

10yo daughters results HELP!

Hello, I have posted before regarding my daughter who is 10yo but we have just had some very...
RachelP03 profile image

Daughters latest test results

My daughter has been through the mill with her thyroid She has been under active, then over active....
scotkaz profile image

Thrown a Curve Ball with my daughters latest results. Advice please...

My daughter on 100mcg T4 daily for 3 years. Endo thought she wasn't converting to enough T3 so for...
KIRM profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.