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Out of interest......what were you initially (mis)diagnosed with?
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
BeachArt
in
Pernicious Anaemia Society
3 months ago
changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
4 months ago
Vitamin D and Vitamin K Absorption Advice for the Community
Hi Everyone, I was curious about how much fat exactly we need at a meal when taking the fat soluble vitamins D and K so I looked it up. I wanted to share here in case it is helpful to anyone. Research suggests that 11g of fat at a meal is what is needed for optimal absorption of these vitamins. Some
Hi Everyone, I was curious about how much fat exactly we need at a meal when taking the fat soluble vitamins D and K so I looked it up. I wanted to share here in case it is helpful to anyone. Research suggests that 11g of fat at a meal is what is needed for optimal absorption of these vitamins. Some
Houseelf
in
Bone Health and Osteoporosis UK
4 months ago
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help please, liothyronine, Roma brand
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
Cheekycharlie1981
in
Thyroid UK
3 months ago
Blood results - Any Advice?
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Kim327
in
Thyroid UK
3 months ago
UPDATE: NEW RESULTS
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
irishacres
in
Thyroid UK
3 months ago
Zypan?
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
MLJ2024
in
Pernicious Anaemia Society
3 months ago
Is this too little or too much NDT Armour symptom?
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Gillybean1
in
Thyroid UK
3 months ago
Biopsy Results
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
Helliborous
in
Pernicious Anaemia Society
5 months ago
B12 ampules
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
bethmoggie
in
Pernicious Anaemia Society
3 months ago
are my labs showing anything?
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
M-usher
in
Pernicious Anaemia Society
3 months ago
Anyone tried adrenal supplements? Any feedback please?
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Currently looking at adrenal supplements saw from an old post on here a product recommendation and used by a Dr P but this has been discontinued now and the closest product is this one. Thorne Advanced Adrenal Cortex. Any feedback on these supplements or similar support please and what supplements
Fizzwhizz
in
Thyroid UK
4 months ago
Rang gp surgery 🤦♀️
Firstly I have
a
reaction to mannitol 🤦♀️ and when I was given the
vitamin
D tablets from gp they were ALLURA red, then I tried the brilliant blue, then the yellow ones, with the same gastric effects, I had to discontinued them.
Firstly I have
a
reaction to mannitol 🤦♀️ and when I was given the
vitamin
D tablets from gp they were ALLURA red, then I tried the brilliant blue, then the yellow ones, with the same gastric effects, I had to discontinued them.
birkie
in
Thyroid UK
3 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
3 months ago
The ratty feeling won't go!
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
Oneash
in
Pernicious Anaemia Society
3 months ago
Help with Results and Hair Loss
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Henwood
in
Thyroid UK
3 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
3 months ago
Itchy and soreness.
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
elizabeth-57
in
LUPUS UK
3 months ago
Worried about TSH levels :( 0.04mlU/L
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
LittleMissTeapot
in
Thyroid UK
3 months ago
How do I prepare my body for embryo transfer?
Hi all, Next month, me and my partner are having ivf donor egg with his sperm. Can you recommend anything you did to prep your body and mental state before you started? been talking multi vitamins lots of veg etc. Did you do anything else? Hugs M xx
Hi all, Next month, me and my partner are having ivf donor egg with his sperm. Can you recommend anything you did to prep your body and mental state before you started? been talking multi vitamins lots of veg etc. Did you do anything else? Hugs M xx
2022Ana
in
Fertility Network UK
5 months ago
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