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Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Molliesmamma
in
Fibromyalgia Action UK
6 months ago
Advanced Thyroid Function Blood Test
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
Berryquilter
in
Thyroid UK
6 months ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting
a
reply to the
Vitamin
B1 thread as I noticed
a
search on HealthUnlocked for Benfotiamine doesn't list the thread for
Vitamin
B1 and the information I posted doesn't fit in one reply.
I am reposting
a
reply to the
Vitamin
B1 thread as I noticed
a
search on HealthUnlocked for Benfotiamine doesn't list the thread for
Vitamin
B1 and the information I posted doesn't fit in one reply.
jazj
in
Advanced Prostate Cancer
9 months ago
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Drug induced Dyskinesia - some measures to control
Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (10:00am - 8.00pm) She also takes Magnesium Citrate, Magnesium Glycinate on alternate days and
Vitamin
D once
a
month as supplements
Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (10:00am - 8.00pm) She also takes Magnesium Citrate, Magnesium Glycinate on alternate days and
Vitamin
D once
a
month as supplements
gdineshnathan
in
Cure Parkinson's
11 months ago
Haematologists consultant
Hi Iāve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnāt deficient!! , my dr didnāt
Hi Iāve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnāt deficient!! , my dr didnāt
Windyway
in
Pernicious Anaemia Society
6 months ago
3 am protocol for T3, please tell me about it?
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
Please could you tell me what I need to know about the 3 am protocol for T3? Does there need to be a gradual transition from split dosing? Anything else I should know? I have been on T3 only for some years and recently have been very tired and depressed, for me the usual symptoms of being hypo. T3
thyr01d
in
Thyroid UK
7 months ago
Decision about T3 and T4 dosing
My endo agreed to add T3 to my Levothyroxine last summer. I have been taking 2 x 5mcg T3 and 50mcg T4 for some months. My results are: August 2023 - 2 x 5 mcg T3 plus 50/25mcg alternating T4 TSH 0.19 (0.35-4.94) T4 10 (9-19.1) T3 3.7 (2.4-6) November 2023 2 x 5mcg T3 plus 50mcg T4 TSH 0.05 (0.35
My endo agreed to add T3 to my Levothyroxine last summer. I have been taking 2 x 5mcg T3 and 50mcg T4 for some months. My results are: August 2023 - 2 x 5 mcg T3 plus 50/25mcg alternating T4 TSH 0.19 (0.35-4.94) T4 10 (9-19.1) T3 3.7 (2.4-6) November 2023 2 x 5mcg T3 plus 50mcg T4 TSH 0.05 (0.35
FleetRose
in
Thyroid UK
7 months ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
6 months ago
Latest blood results
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Ganggywaller
in
Thyroid UK
6 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
6 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
5 months ago
Autoimmune neurological B12 deficiency
I came across this fascinating study on an autoimmune condition that results in B12 deficiency selectively in the central nervous system. Cerebrospinal fluid B12 is essentially non-existent but serum levels are normal, making this very hard to detect! https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1
I came across this fascinating study on an autoimmune condition that results in B12 deficiency selectively in the central nervous system. Cerebrospinal fluid B12 is essentially non-existent but serum levels are normal, making this very hard to detect! https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1
etreas
in
Pernicious Anaemia Society
2 months ago
High doses of B12
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Rafiki2
in
Cure Parkinson's
6 months ago
My last post for a while, Thanks everyone!!!
Iād like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
Iād like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson
38yroldmale
in
Cure Parkinson's
6 months ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
5 months ago
Do B Complex vitamins upset the stomach? Advice please
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Irish_Gal
in
Thyroid UK
7 months ago
My Platelets go down during the warmer months...
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Hello everyone, I am new here--diagnosed in 2018 with JAK2+ ET, platelets currently in the low 600's. Here is my question: every year since I was diagnosed my platelets are much better in my May and September labs and then are much higher in December and March. For example, I was at 506 in September
Plateletsgonewild
in
MPN Voice
6 months ago
Chlorella
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
I have been told that chlorella is a good source of b12 but I am doubtful that in a daily dose of 10 chlorella tablets you would get sufficient b12? I would be grateful for any info/advice. Thanks Vonni
Vonni7
in
Pernicious Anaemia Society
6 months ago
Levothyroxine
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
leeHil
in
Thyroid UK
7 months ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
6 months ago
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