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Finger joints and other things
Hi..I have been taken off leflunamide, as was getting so many infections, awaiting new biologic ...but in meantime ,fingers agony,and one stuck in bent position then when released its squint !also both hands keep locking into like a spasticity if hold anything for small length of time in addition blepharitis
Hi..I have been taken off leflunamide, as was getting so many infections, awaiting new biologic ...but in meantime ,fingers agony,and one stuck in bent position then when released its squint !also both hands keep locking into like a spasticity if hold anything for small length of time in addition blepharitis
Luppykate
in
LUPUS UK
2 months ago
Pregnenolone study for L-DOPA induced dyskinesia
Here is a link to a helpful study - Pregnenolone for the treatment of L-DOPA-induced ... National Institutes of Health (NIH) (.gov) https://pubmed.ncbi.nlm.nih.gov › ...
Here is a link to a helpful study - Pregnenolone for the treatment of L-DOPA-induced ... National Institutes of Health (NIH) (.gov) https://pubmed.ncbi.nlm.nih.gov › ...
Trailing
in
Cure Parkinson's
2 months ago
new person
hi I’m 51 and have just been diagnosed with advanced glucoma . (I mistakenly thought I just needed glasses 😬My vision fields are sounding quite limited and I am looking for tips to help make life easier and hopefully to feel more confident with basics like walking, working, busy or new places . I would
hi I’m 51 and have just been diagnosed with advanced glucoma . (I mistakenly thought I just needed glasses 😬My vision fields are sounding quite limited and I am looking for tips to help make life easier and hopefully to feel more confident with basics like walking, working, busy or new places . I would
Ughb
in
Glaucoma UK
2 months ago
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Dry eyes ,disrupted tear film, ?Sjogrens
I believe we have a few members who have posted about this in the past. I'm a PMR long termer diagnosed in Nov 2017 and currently taking 2.5mg Prednisolone. In June 2023 I had a revision of refractive surgery to both eyes at a world leading specialist centre in London. The procedure is known to affect
I believe we have a few members who have posted about this in the past. I'm a PMR long termer diagnosed in Nov 2017 and currently taking 2.5mg Prednisolone. In June 2023 I had a revision of refractive surgery to both eyes at a world leading specialist centre in London. The procedure is known to affect
PMRnewbie2017
in
PMRGCAuk
2 months ago
Another update on the swollen eye
Back in Moorfields today, turns out the original diagnosis was Retinal detachment,Anterior Uveitis, possible Scleritis. After all the tests today and a weekend of 60mg steroids the eye has improved, no need for op today to reattach retina as it is healing a bit. The cause of the inflammation seems to
Back in Moorfields today, turns out the original diagnosis was Retinal detachment,Anterior Uveitis, possible Scleritis. After all the tests today and a weekend of 60mg steroids the eye has improved, no need for op today to reattach retina as it is healing a bit. The cause of the inflammation seems to
Fatsiajaponica
in
PMRGCAuk
2 months ago
Hydroxychloroquine, and high blood sugar
When I agreed to try Hydroxychloroquine I must admit being a little anxious about effects/side-effects. Started in May I think,200mg daily, HbA1c was 54 at last November 2023. HbA1c 30th May was 66, I know Hydroxy wouldn't have done this but just received results from annual diabetic
When I agreed to try Hydroxychloroquine I must admit being a little anxious about effects/side-effects. Started in May I think,200mg daily, HbA1c was 54 at last November 2023. HbA1c 30th May was 66, I know Hydroxy wouldn't have done this but just received results from annual diabetic
Polo22
in
NRAS
2 months ago
Very early Dry AMD
Hello. I have had stable eyes since childhood correction squints but always needed glasses (Varifical glasses with strong prescription, long sighted with addition for reading). My mother had dry macular and I supported her thru her 80s to 99 yrs watching her slowly loose all vision I’ve had test last
Hello. I have had stable eyes since childhood correction squints but always needed glasses (Varifical glasses with strong prescription, long sighted with addition for reading). My mother had dry macular and I supported her thru her 80s to 99 yrs watching her slowly loose all vision I’ve had test last
HiHoHumm
in
Macular Society
2 months ago
Emollient cream
Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up to my operation next Friday. My skin is very fragile and dry and I have Cetraben emollient cream prescribed to put on it, especially after a
Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up to my operation next Friday. My skin is very fragile and dry and I have Cetraben emollient cream prescribed to put on it, especially after a
caftan
in
PMRGCAuk
2 months ago
Update as the weeks are moving on
Hi everyone hope you are enjoying the summery weather. I have finished my first radiotherapy so its now on to the next step. But I don't feel much like the next step right now due to side effects , which they say should wear off in a few weeks . Its an exhausting path so I hope it has reduced the
Hi everyone hope you are enjoying the summery weather. I have finished my first radiotherapy so its now on to the next step. But I don't feel much like the next step right now due to side effects , which they say should wear off in a few weeks . Its an exhausting path so I hope it has reduced the
katieoxo60
in
Lung Conditions Community Forum
2 months ago
Anyone have Fuchs as well as Glaucoma
I was initially diagnosed with thickened corneas in the late 1990s - then had a vitreous detachment in 2009 and diagnosed with Fuchs plus Glaucoma suspect with early stage cataracts - was treated with Cosopt until I moved areas in 2021 - since then I’ve had different diagnoses from a hole in my macula
I was initially diagnosed with thickened corneas in the late 1990s - then had a vitreous detachment in 2009 and diagnosed with Fuchs plus Glaucoma suspect with early stage cataracts - was treated with Cosopt until I moved areas in 2021 - since then I’ve had different diagnoses from a hole in my macula
Libluce68
in
Glaucoma UK
2 months ago
Hashimotos and Hyperlipidemia
I was just reading a post on the forum from a person who is a poor converter of T3 to T4. Does anyone have any knowledge whether this would apply to someone having been diagnosed by a specialist hospital clinical biochemist with Hyperlipidemia?
I was just reading a post on the forum from a person who is a poor converter of T3 to T4. Does anyone have any knowledge whether this would apply to someone having been diagnosed by a specialist hospital clinical biochemist with Hyperlipidemia?
MarnieB
in
Thyroid UK
2 months ago
Rash photo.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
Newbie here. Not diagnosed with lupus nor Sjogren's, though I do have symptoms of both. I've had this weird rash on the back of my neck, into my hairline for a while now. Any ideas if it could be lupus/Sjogren's related? Many thanks in advance for any replies.
grumpyold
in
LUPUS UK
2 months ago
DE treatment protocol
hi all, I am about to start treatment for a DE transfer. My protocol is from day 1 to have progynova 3 times a day. Then a scan at 12-14 days followed by progesterone. My previous FET transfers (with OE) have had ceteotide injections for 5 days. This is a slightly different protocol without the
hi all, I am about to start treatment for a DE transfer. My protocol is from day 1 to have progynova 3 times a day. Then a scan at 12-14 days followed by progesterone. My previous FET transfers (with OE) have had ceteotide injections for 5 days. This is a slightly different protocol without the
MintNewt
in
Fertility Network UK
2 months ago
Thyroid Eye Disease- link to recent webinar from TEDct
This is a VIDEO LINK of a recent TEDct Webinar (July 2024) discussing: Thyroid Eye Disease Treatment and Clinical Trials Latest Advances in Thyroid Eye Disease Care https://youtu.be/TwSVwLl-2UI
This is a VIDEO LINK of a recent TEDct Webinar (July 2024) discussing: Thyroid Eye Disease Treatment and Clinical Trials Latest Advances in Thyroid Eye Disease Care https://youtu.be/TwSVwLl-2UI
Buddy195
Administrator
in
Thyroid UK
2 months ago
Starting Pegasys
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
hi all, I’m about to start the next stage of my treatment journey, 45mg Pegasys fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start. I’ll update this thread over the next 12 months with various updates from how the first injection went and
Steve_Essex
in
MPN Voice
2 months ago
Tilt Table Test
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110 before taking a nosedive to 80/54 with me on the verge of passing out. My nurse then stopped the test and reclined the table. I am pretty certain that I did not escape Sjogrens with my year on Pegasys. I
Wewo01
in
MPN Voice
2 months ago
My Cetrotide injection spilled, I’m worried
Hi, so I was on day 2 of my Cetrotide injection and spilled a lot of it when I didn’t realize bubbles in the syringe. I could only inject a little more liquid that was left. Should I be worried? My doctor put me on 3 more Cetrotide for the weekend. I am seeing her on Monday morning and due for possible
Hi, so I was on day 2 of my Cetrotide injection and spilled a lot of it when I didn’t realize bubbles in the syringe. I could only inject a little more liquid that was left. Should I be worried? My doctor put me on 3 more Cetrotide for the weekend. I am seeing her on Monday morning and due for possible
IVlover
in
Fertility Network UK
2 months ago
Poor Stormy
My doggy had to have surgery on his front paw today. He injured it about 10 days ago and I took him to the vet that I have used before. They said just let it rest and it should be fine. Well, it got massively worse all of a sudden. I took him today after being up with him all night in pain. His paw was
My doggy had to have surgery on his front paw today. He injured it about 10 days ago and I took him to the vet that I have used before. They said just let it rest and it should be fine. Well, it got massively worse all of a sudden. I took him today after being up with him all night in pain. His paw was
Amore55
in
My MSAA Community
2 months ago
GCA tapering query
Following my recent diagnosis of GCA, I had an appointment with GP after my pred being upped to 40mg daily. We agreed to me staying on 40mg for time being and he is happy for me to follow my tapering regime when ready - he feels I have known what to do during my PMR journey(thanks to support of this
Following my recent diagnosis of GCA, I had an appointment with GP after my pred being upped to 40mg daily. We agreed to me staying on 40mg for time being and he is happy for me to follow my tapering regime when ready - he feels I have known what to do during my PMR journey(thanks to support of this
SanG55
in
PMRGCAuk
2 months ago
Great progress on Pegasys!
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
Minify
in
MPN Voice
2 months ago
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