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#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
8 months ago
Wet AMD and Dry AMD
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
wanttosee
in
Macular Society
8 months ago
Home pressure monitor to hire?
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Bonniecat7
in
Glaucoma UK
8 months ago
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Home tonometer
Hi there, has anyone got a home tonometer?I have narrow angles, and raised eye pressure, I had a laser iridotomy about 5 years ago, the holes are still open but my eye pressure still remains on the high side. I went to emergency eye clinic yesterday to get my eye pressures check as I had pain in my left
Hi there, has anyone got a home tonometer?I have narrow angles, and raised eye pressure, I had a laser iridotomy about 5 years ago, the holes are still open but my eye pressure still remains on the high side. I went to emergency eye clinic yesterday to get my eye pressures check as I had pain in my left
Dmfan1
in
Glaucoma UK
8 months ago
Cataract surgery?
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
8 months ago
Double vision episode
Just had one. First since November 2021. Then I was on high dose pred for GCA, coming down. Continued to taper quite successfully, eventually to zero in November 2022. But PMR followed, so went onto 15mg pred, tapering again quite successfully. Down to 5 mg since 6th February. Clearly no blood test
Just had one. First since November 2021. Then I was on high dose pred for GCA, coming down. Continued to taper quite successfully, eventually to zero in November 2022. But PMR followed, so went onto 15mg pred, tapering again quite successfully. Down to 5 mg since 6th February. Clearly no blood test
Lutra2
in
PMRGCAuk
8 months ago
A shunt or not?
has anyone had the experience of having a shunt put in their eye for glaucoma at the same time as a cataract operation? I’ve had one very successful cataract operation and I’m about to have the second. The consultant wants to put in a shunt as the pressure in that eye is 22, Have never had any
has anyone had the experience of having a shunt put in their eye for glaucoma at the same time as a cataract operation? I’ve had one very successful cataract operation and I’m about to have the second. The consultant wants to put in a shunt as the pressure in that eye is 22, Have never had any
Orlando23
in
Glaucoma UK
8 months ago
Fibro and Sjogrens
Hi all, I've been diagnosed with fibro for 8 years, but for last few months I've felt so much worse, with new symptoms of really painful dry red eyes, extremely dry mouth, dry skin with rashes and dry cough, and increased pain and fatigue. My gp says it's sjogrens, an autoimmune disease, and referred
Hi all, I've been diagnosed with fibro for 8 years, but for last few months I've felt so much worse, with new symptoms of really painful dry red eyes, extremely dry mouth, dry skin with rashes and dry cough, and increased pain and fatigue. My gp says it's sjogrens, an autoimmune disease, and referred
Janpan7
in
Fibromyalgia Action UK
8 months ago
1.5 mgs now blood tests all over the place
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
paleolady
in
PMRGCAuk
8 months ago
Vision in the recovery weeks ( and long term) after a trabeculectomy.
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
Cyclingalong
in
Glaucoma UK
8 months ago
First MS Neuro Appointment!
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
MSFlea
in
My MSAA Community
8 months ago
Any practical tools to prevent computer vision syndrome?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
bliinkai
in
Pain Concern
8 months ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
8 months ago
Functional practitoner
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
Poshy
in
IBS Network
8 months ago
NTG and thin corneas
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
NoraBoneGirl
in
Glaucoma UK
8 months ago
Stopped Methotrexate being screened for Adalimumab
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
Amandaazz
in
NRAS
8 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
8 months ago
Myopic CNV, floaters and flashes.
Hi. I'm looking for reassurance. I was diagnosed with myopic cnv in 2020. 3 injections then stable. Reoccurrence in 2023 and 3 more injections, 4th this coming Monday.This evening, I'm experiencing insect-like floaters, and intermittent orange flashes in corner of eye. Do I relax and wait till
Hi. I'm looking for reassurance. I was diagnosed with myopic cnv in 2020. 3 injections then stable. Reoccurrence in 2023 and 3 more injections, 4th this coming Monday.This evening, I'm experiencing insect-like floaters, and intermittent orange flashes in corner of eye. Do I relax and wait till
Bluegreensea
in
Macular Society
8 months ago
Hay fever medicines
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
Samazeuilh2
in
Atrial Fibrillation Support
5 months ago
Selegiline side effects
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Joluu
in
PSP Association
8 months ago
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