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Venous ulcer compression system
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Oral thrush?
Hi friends, do any of you suffer with those white spots on tonsils like the oral thrush thing? I often tend to develop these since long back even before the detection of SLE. And still it is happening. Sometimes it goes away itself and sometimes it turns up too painful and gross.
Hi friends, do any of you suffer with those white spots on tonsils like the oral thrush thing? I often tend to develop these since long back even before the detection of SLE. And still it is happening. Sometimes it goes away itself and sometimes it turns up too painful and gross.
Putloo
in
LUPUS UK
4 years ago
Period issues
I recently had gotten the hormonal coil, and 3 weeks later I had to get it removed as one the worst periods of my life nearly pushed it out completely, I was gonna get a new one the same day however it hurt 10x more than the first time I had it inserted. If the coil doesn't help my periods I'm running
I recently had gotten the hormonal coil, and 3 weeks later I had to get it removed as one the worst periods of my life nearly pushed it out completely, I was gonna get a new one the same day however it hurt 10x more than the first time I had it inserted. If the coil doesn't help my periods I'm running
starfoam
in
Women's Health
4 years ago
CLL - Extremely Vulnerable clarified
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
bennevisplace
in
CLL Support
4 years ago
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An account of a brain cell transplant
This stem cell transplant did not produce a cure but it is an interesting read to understand where the state of medicine is right now regarding a cure or at least a treatment for Parkinson's disease. https://www.statnews.com/2020/05/12/medical-first-parkinsons-brain-cell-transplant-stem-cells/
This stem cell transplant did not produce a cure but it is an interesting read to understand where the state of medicine is right now regarding a cure or at least a treatment for Parkinson's disease. https://www.statnews.com/2020/05/12/medical-first-parkinsons-brain-cell-transplant-stem-cells/
Zardoz
in
Cure Parkinson's
4 years ago
Calquence Headaches and Low Blood Counts?
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
stonefilly
in
Non Hodgkin's Lymphoma Friends
4 years ago
Advice and help please
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
NIKKibailie
in
My Ovacome
4 years ago
Could anyone please advice me as to whether it is o.k for Hashimoto's people to take hydrocortisone tablets for a mouth ulcer ?
Hello friends, I have a small (sort of) ulcer in my mouth, just under my lip, and it's been there for a few weeks now. It came on after a strong bite into my lip.... It isn't uncomfortable or painful, but when I showed it to my doctor, he made no comment, just produced the tablets, which apparently
Hello friends, I have a small (sort of) ulcer in my mouth, just under my lip, and it's been there for a few weeks now. It came on after a strong bite into my lip.... It isn't uncomfortable or painful, but when I showed it to my doctor, he made no comment, just produced the tablets, which apparently
C70rol
in
Thyroid UK
5 years ago
mouth ulcers
Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad it is difficult to eat , and talking is nigh on impossible, i already tried all ulcer creams and gels from pharmacy and mouthwash from oncologist but not had much effect .. Any suggestions would be welcome. thanks Meg x
Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad it is difficult to eat , and talking is nigh on impossible, i already tried all ulcer creams and gels from pharmacy and mouthwash from oncologist but not had much effect .. Any suggestions would be welcome. thanks Meg x
megb246
in
My Ovacome
5 years ago
Webinar - Coronavirus and acute leukaemia
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
Leukaemia Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust. Dr Patel will discuss the potential changes to your care as a result of the coronavirus outbreak as well as providing
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Stem Cell Transplant
My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB for 14 months and it has been amazing but I am terrified about doing a stem cell transplant. Can someone share their experiences if you have
My doctor says that after a 2nd remission, meaning after ibrutinib and venetoclax have failed that a stem cell transplant is the next option. I have been on IB for 14 months and it has been amazing but I am terrified about doing a stem cell transplant. Can someone share their experiences if you have
steve_canada
in
CLL Support
4 years ago
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too.
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.” A.M. Carter Mar 22 · 12 min read https://medium.com/@amcarter/i-had-no-immune-system-for-months-after-my-bone-marrow-transplant-1b097f16040c
“I had no immune system for months after my bone marrow transplant. Here’s how I avoided viral illness, and how you can, too. It’s easier than you think.” A.M. Carter Mar 22 · 12 min read https://medium.com/@amcarter/i-had-no-immune-system-for-months-after-my-bone-marrow-transplant-1b097f16040c
hsouter
in
CLL Support
4 years ago
In extremely vulnerable group but don't understand why
On Monday I got a text, followed by a letter, informing me that I have been identified as someone at risk of severe illness and thereby extremely vulnerable if I were to catch coronavirus. Instructions are not to leave home, even for food and meds, and stay away from others indoors. There is a list of
On Monday I got a text, followed by a letter, informing me that I have been identified as someone at risk of severe illness and thereby extremely vulnerable if I were to catch coronavirus. Instructions are not to leave home, even for food and meds, and stay away from others indoors. There is a list of
Hidden
in
British Heart Foundation
4 years ago
Confused /scared about Covid 19
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Clarence45
in
Leukaemia Support
4 years ago
Government Advice on Coronavirus
In a nutshell...keep smiling. Government Advice in the UK as at 12th March 2020 · All people with flu-like symptoms – a fever above 37.8C or a persistent cough- should stay at home, away from other people, for seven days. · Schools should not take trips abroad. · Older people
In a nutshell...keep smiling. Government Advice in the UK as at 12th March 2020 · All people with flu-like symptoms – a fever above 37.8C or a persistent cough- should stay at home, away from other people, for seven days. · Schools should not take trips abroad. · Older people
Kevin53
in
LUPUS UK
4 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Jm954
Administrator
in
CLL Support
4 years ago
Laparoscopy and Diagnosis - any advice appreciated
I'm completely torn about getting a laparoscopy after seeing a gynaecologist for the first time yesterday. My GP has been so lovely and supportive, adamant that there is an underlying problem (potentially endo) and we will get to the bottom of it. I had an ultrasound which showed cysts on both ovaries
I'm completely torn about getting a laparoscopy after seeing a gynaecologist for the first time yesterday. My GP has been so lovely and supportive, adamant that there is an underlying problem (potentially endo) and we will get to the bottom of it. I had an ultrasound which showed cysts on both ovaries
kharv
in
Endometriosis UK
5 years ago
Sores and mouth ulcers
Hi all. I'm new here and this is my first post. Anyways I was diagnosed with lupus a few years ago and have tried various meds. I'm now on celecept hyroxchloaquin and etroxib for the pain in my joints and to Try and help with the mouth ulcers which are the main symptom I deal with. The only thing that
Hi all. I'm new here and this is my first post. Anyways I was diagnosed with lupus a few years ago and have tried various meds. I'm now on celecept hyroxchloaquin and etroxib for the pain in my joints and to Try and help with the mouth ulcers which are the main symptom I deal with. The only thing that
Crue0710
in
LUPUS UK
5 years ago
Blister at roof of mouth
I have a sore throat I have compromised immune system take pred, Have dry mouth also take levothyrozine n azathroprine been like this for 7 days been to drs who said although I have raised temp and sore red throat I didn’t need antibiotics, but for last few days I’ve had very sore place on roof of my
I have a sore throat I have compromised immune system take pred, Have dry mouth also take levothyrozine n azathroprine been like this for 7 days been to drs who said although I have raised temp and sore red throat I didn’t need antibiotics, but for last few days I’ve had very sore place on roof of my
Eternity6
in
NRAS
5 years ago
Sore mouth!
Newbie here. Quick question! My mouth is sore, not truly bad, but noticeable. I had oral thrush once, side effect of antibiotics, and am wondering if it’s starting again, or is this a known side effect of Pred, or alendronic acid or other marvellous tablets? I don’t want it to get bad...it was like a
Newbie here. Quick question! My mouth is sore, not truly bad, but noticeable. I had oral thrush once, side effect of antibiotics, and am wondering if it’s starting again, or is this a known side effect of Pred, or alendronic acid or other marvellous tablets? I don’t want it to get bad...it was like a
Pixix
in
PMRGCAuk
5 years ago
Options other than transplant?
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Gemini1967
in
Leukaemia Support
4 years ago
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