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Urso
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New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Toddyboo
in
PBC Foundation
6 months ago
Wednesday Words
It is used as a marker of the disease statis and when to begin treatment with
Urso
. Certainly the lower the number the better. Right now, as of 2023, the ideal targets are under 217. Hopefully in the near future the target number will be under 130.
It is used as a marker of the disease statis and when to begin treatment with
Urso
. Certainly the lower the number the better. Right now, as of 2023, the ideal targets are under 217. Hopefully in the near future the target number will be under 130.
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to
Urso
my Alkaline Phosphate is now 130 initially 400.
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to
Urso
my Alkaline Phosphate is now 130 initially 400.
coronavirus19
in
PBC Foundation
6 months ago
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urso / stomach issues
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
Samanthaann
in
PBCers Organization
10 months ago
to anyone new to the group.....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Welcome to more of our new members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
What if?
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
We understand....
I have been on
Urso
since 1985 with little side effects really. This past week the fatigue for me has been a real reminder of what life was like for me prior to transplant. Moving one foot in front of the other has often been a real struggle. I do know how so many of you experience this 'fatigue'.
I have been on
Urso
since 1985 with little side effects really. This past week the fatigue for me has been a real reminder of what life was like for me prior to transplant. Moving one foot in front of the other has often been a real struggle. I do know how so many of you experience this 'fatigue'.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Terrible joint pains
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Elkol
in
PBC Foundation
9 months ago
PBC, now cirrhosis
Been on
Urso
for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage four.
Been on
Urso
for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage four.
Beatrice110924
in
Sjogren's Support
6 months ago
for our 'newest' members....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
for some of our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Fibroscan Results with PBC
I've read online that bloods should be monitored after a month of starting
Urso
. (I'm UK based) Thanks in advance.
I've read online that bloods should be monitored after a month of starting
Urso
. (I'm UK based) Thanks in advance.
Becks880
in
PBC Foundation
9 months ago
Gabapentan/neurotonin
I know it does not cause liver issues and does not react with
URSO
. Has anybody else with PBC taken this as a nerve blocker? I am not home to ask my doctors….
I know it does not cause liver issues and does not react with
URSO
. Has anybody else with PBC taken this as a nerve blocker? I am not home to ask my doctors….
Gaspereaux
in
PBC Foundation
8 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
I also have T2 Diabetes but it's completely in control ( Hba1c - 5 ) Update : After one month of rigourous training , my ALT/AST Levels are finally coming down . i stopped
Urso
acid that day only and has been completely focusing on my diet. They are fully down but down from 225/300 to 65/120
I also have T2 Diabetes but it's completely in control ( Hba1c - 5 ) Update : After one month of rigourous training , my ALT/AST Levels are finally coming down . i stopped
Urso
acid that day only and has been completely focusing on my diet. They are fully down but down from 225/300 to 65/120
Imviiku
in
Living with Fatty Liver and NASH
6 months ago
Introduction to our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
another pharma update
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of
Urso
, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of
Urso
, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
9 months ago
interesting convo with Rheumatologist
But the interesting part of the conversation was when I kept saying “I MUST have an overlap because my fibroscan and LFTs are stable on
Urso
, but my symptoms are worse!”.
But the interesting part of the conversation was when I kept saying “I MUST have an overlap because my fibroscan and LFTs are stable on
Urso
, but my symptoms are worse!”.
CeeCee101
in
PBC Foundation
7 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and
Urso
since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago.
I’ve been on cavedilol medication since May 2023 and
Urso
since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago.
Dexter786
in
British Liver Trust
9 months ago
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