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Urso
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What if?
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
No time is wasted taking nothing besides their
Urso
or Ocaliva. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
back pain with urso
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
Samanthaann
in
PBC Foundation
8 months ago
to all our newly diagnosed people
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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Welcome to more of our new members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
12 days ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on
Urso
and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of.
Hi I have lived with this condition for almost 20 years and been on
Urso
and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of.
Sandpiperx
in
PBC Foundation
5 months ago
for some of our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. Maybe you are just new to this group. We are all in this together.
DonnaBoll
Administrator
in
PBC Foundation
18 days ago
Introduction to our newer members
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
for all new members of late.....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
another pharma update
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
With patients taking
Urso
, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons. Those on Ocaliva, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them.
DonnaBoll
Administrator
in
PBC Foundation
28 days ago
delay..
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Water consumption with Urso
The consultant explained how
Urso
works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
The consultant explained how
Urso
works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
Flid
in
PBC Foundation
9 months ago
Hypereosinofilia with Pbc,ursofalk side effects.
Anyone else experienced burning sensation in the liver from
Urso
? Thank you!
Anyone else experienced burning sensation in the liver from
Urso
? Thank you!
Alina8004
in
PBC Foundation
7 months ago
new diagnosis of pbc
I have just had a new diagnosis of pbc, I am taking
urso
, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
I have just had a new diagnosis of pbc, I am taking
urso
, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
Cumbria7
in
PBC Foundation
9 months ago
itch and bilirubin, long covid
1) since startin*
urso
I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage.
1) since startin*
urso
I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage.
Artsy123
in
PBCers Organization
8 months ago
Foundation services
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Foundation services
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
urso weight gain or weight loss
hi I’ve been taking 1.250mg of
urso
for 5 weeks approx neither gained or lost weight.it would be wonderful if I got the weight loss 🤣 I’m 13 stone, Anyone actually lost weight on these meds
hi I’ve been taking 1.250mg of
urso
for 5 weeks approx neither gained or lost weight.it would be wonderful if I got the weight loss 🤣 I’m 13 stone, Anyone actually lost weight on these meds
Eternity6
in
PBC Foundation
10 months ago
primary billiary cirrhosis and blood tests
I’m wondering if this is why they have prescribed me
URSO
acid. thank you
I’m wondering if this is why they have prescribed me
URSO
acid. thank you
Hidden
in
British Liver Trust
10 months ago
foods I can’t tolerate since taking Urso
I’ve been taking
Urso
for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
I’ve been taking
Urso
for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
Grams2020
in
PBC Foundation
10 months ago
joint pain
Taking
urso
. Has anyone else experienced this? If so how do you handle. Thanks.
Taking
urso
. Has anyone else experienced this? If so how do you handle. Thanks.
Samanthaann
in
PBC Foundation
10 months ago
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