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Experiences with
Urso
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Help confused with diagnosis of pbc
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Misn
in
PBC Foundation
10 months ago
to all our newly diagnosed people
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. Hopefully you feel that whoever is caring for you, knows about PBC and how to treat someone with it. If this isn’t the case, we can talk about this..
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Travel insurance with PBC. UK
My liver is fine, responding well to
URSO
etc. However, finding travel insurance has been ‘interesting’. Most companies (including the ones listed on the Liver Trust site) are charging almost £2000 for 12 months for me and my husband!!
My liver is fine, responding well to
URSO
etc. However, finding travel insurance has been ‘interesting’. Most companies (including the ones listed on the Liver Trust site) are charging almost £2000 for 12 months for me and my husband!!
Jacqui0112
in
PBC Foundation
9 months ago
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for all new members of late.....
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Sore throat on urso
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Misn
in
PBC Foundation
10 months ago
urso non responder
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
Samanthaann
in
PBC Foundation
10 months ago
Double Dosing Cholestyramine
Taking a double dose means staying up late to time it with
Urso
as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on internet says not to do that. I'm not sure what to do.
Taking a double dose means staying up late to time it with
Urso
as I have to wait hours between each. My internist says I can take two cholestyramine doses at once. The packaging and everything on internet says not to do that. I'm not sure what to do.
Carly92
in
PBC Foundation
9 months ago
delay..
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
Urso
is a must drug to take. It has been proven to be the first line treatment for PBC. Take one day at a time. We are all in this together. The more you learn from these reputable sources then the more informed you are of the care you should be getting and deserve.
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Newly diagnosed with PBC
My question is how long does it usually take for the
Urso
to start working for PBC and stabilise your liver? Thanks for reading this far 🙂
My question is how long does it usually take for the
Urso
to start working for PBC and stabilise your liver? Thanks for reading this far 🙂
Becks880
in
PBCers Organization
9 months ago
all phos
Went on
urso
and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Went on
urso
and 6 months later it dropped to 118. Today whic is 6 month later alk went back up to 146. Have not discussed with doctor yet. Has anyone else experienced the fluctuation? Thank you
Samanthaann
in
PBC Foundation
10 months ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on
Urso
and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of.
Hi I have lived with this condition for almost 20 years and been on
Urso
and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of.
Sandpiperx
in
PBC Foundation
8 months ago
urso capsules vs tablet
hi everyone, My insurance stopped paying for
Urso
300 capsules. They will pay for
Urso
250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
hi everyone, My insurance stopped paying for
Urso
300 capsules. They will pay for
Urso
250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
Samanthaann
in
PBC Foundation
1 year ago
Important from The PBC Foundation....
As with
Urso
, some people respond, some not: however, it is a vitally important part of a clinician’s toolkit in treating PBC.
As with
Urso
, some people respond, some not: however, it is a vitally important part of a clinician’s toolkit in treating PBC.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Foundation services
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
back pain with urso
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
my insurance would no longer pay for capsules so I had to change to tablets. A few weeks after. Taking I’m having lower back pain. Has anyone else experienced this? Not sure if it’s related or not. Thank you.
Samanthaann
in
PBC Foundation
11 months ago
Foundation services
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
It includes our Information Resources these can also be available printed if required PBC Compendium EASL / AASLD Guidelines
Urso
calculator Information Leaflets Previous editions of the Bear Facts 10.
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
Hypereosinofilia with Pbc,ursofalk side effects.
Anyone else experienced burning sensation in the liver from
Urso
? Thank you!
Anyone else experienced burning sensation in the liver from
Urso
? Thank you!
Alina8004
in
PBC Foundation
10 months ago
itch and bilirubin, long covid
1) since startin*
urso
I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage.
1) since startin*
urso
I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage.
Artsy123
in
PBCers Organization
11 months ago
Water consumption with Urso
The consultant explained how
Urso
works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
The consultant explained how
Urso
works in the body, partly by making bile water soluble and expelling with urine. Does this necessitate increased water consumption? I have never been good at staying hydrated and wonder if this is something I need to watch more carefully.
Flid
in
PBC Foundation
1 year ago
new diagnosis of pbc
I have just had a new diagnosis of pbc, I am taking
urso
, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
I have just had a new diagnosis of pbc, I am taking
urso
, I have had one telephone call with a gastro consultant, things are all up in the air I have lots of questions which I don’t feel have been answered. I felt rushed on the phone. I have got the pbc app which has helped greatly
Cumbria7
in
PBC Foundation
1 year ago
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