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Experiences with
Urso
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primary billiary cirrhosis and blood tests
I’m wondering if this is why they have prescribed me
URSO
acid. thank you
I’m wondering if this is why they have prescribed me
URSO
acid. thank you
Hidden
in
British Liver Trust
10 months ago
Newly diagnosed with PBC
I do have diarrhea after taking the first dose of the
Urso
! But I hope that will get better. I've been very uncomfortable, so I'm thankful to have a reason, and hopefully, things will improve now.
I do have diarrhea after taking the first dose of the
Urso
! But I hope that will get better. I've been very uncomfortable, so I'm thankful to have a reason, and hopefully, things will improve now.
Pawsandchoc
in
PBCers Organization
8 months ago
foods I can’t tolerate since taking Urso
I’ve been taking
Urso
for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
I’ve been taking
Urso
for 2 years now. Since then I’ve discovered I can’t eat mushrooms, onions and bell peppers. I use to enjoy these foods often. Now, when eaten I experience severe gas pain, indigestion and diarrhea. Has anyone else experienced this?
Grams2020
in
PBC Foundation
11 months ago
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joint pain
Taking
urso
. Has anyone else experienced this? If so how do you handle. Thanks.
Taking
urso
. Has anyone else experienced this? If so how do you handle. Thanks.
Samanthaann
in
PBC Foundation
11 months ago
Help new drug prescribed
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this
urso
???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same?
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this
urso
???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same?
Paula1710
in
British Liver Trust
10 months ago
pain relief for rotator cuff injury
My liver biopsy was inconclusive but I was started on
urso
due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation of radiologist report.
My liver biopsy was inconclusive but I was started on
urso
due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation of radiologist report.
Donti
in
PBC Foundation
8 months ago
low folate
I gave PBC for 15 years and I’m on
urso
. My levels are reasonable. I have acid reflux, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
I gave PBC for 15 years and I’m on
urso
. My levels are reasonable. I have acid reflux, and I’m on Nexium 10 daily. In the last few months my folate has dropped below the low end of the range. I’m wondering if anyone else has this and is it related to PBC or Nexium. I don’t have anaemia. Thank you
Gwelos
in
PBC Foundation
11 months ago
New symptoms?
I take
Urso
and can only imagine that this has prevented any worsening of my condition which was found by chance after a routine blood test for something else. Aged 55 now I have no fatigue but it's always at the back of my mind when I'm having a down day.
I take
Urso
and can only imagine that this has prevented any worsening of my condition which was found by chance after a routine blood test for something else. Aged 55 now I have no fatigue but it's always at the back of my mind when I'm having a down day.
KatherineM_PBC
in
PBC Foundation
9 months ago
still none the wiser
yesterday who started saying about biopsy’s again but then said he would wait until I had seen the liver clinic in kings collage which I was refurred too in 2023 who increased my
urso
dose from 900mg too 100mg!!
yesterday who started saying about biopsy’s again but then said he would wait until I had seen the liver clinic in kings collage which I was refurred too in 2023 who increased my
urso
dose from 900mg too 100mg!!
Lena2011
in
PBC Foundation
3 months ago
Total mess
I do not take
urso
or prednisone prednisone makes me manic and
Urso
makes me completely nauseous so I've been taking the 6MP drug since 2017 and it's kept me really balanced so that's my story.
I do not take
urso
or prednisone prednisone makes me manic and
Urso
makes me completely nauseous so I've been taking the 6MP drug since 2017 and it's kept me really balanced so that's my story.
mjk98
in
PBC Foundation
11 months ago
PBC or fatty liver
I haven't taken
Urso
, because the dr wanted me to lose weight first to see if it wasn't the fatty liver driving the liver enzymes. Any suggestions?
I haven't taken
Urso
, because the dr wanted me to lose weight first to see if it wasn't the fatty liver driving the liver enzymes. Any suggestions?
Zelda5
in
British Liver Trust
10 months ago
serum Alkaline phospharase abnormally high
Just wondering if anyone else had super weird raised SLT as a result of
Urso
? I’m hoping to see a specific PBC clinic soon as the last doctor I saw thought my fluctuating levels would make be a candidate for nee obeataxholix acid? Maybe they might also help with itch?
Just wondering if anyone else had super weird raised SLT as a result of
Urso
? I’m hoping to see a specific PBC clinic soon as the last doctor I saw thought my fluctuating levels would make be a candidate for nee obeataxholix acid? Maybe they might also help with itch?
mrsreddave
in
PBC Foundation
10 months ago
Anyone develop psoriasis along w/ PBC?
Is this a common PBC issue or
Urso
side effect?
Is this a common PBC issue or
Urso
side effect?
Sister65
in
PBCers Organization
1 year ago
Bloating stomach. Urso, or PBC ...or both?
Been on
Urso
about 2 years now. Liver tests are back to normal, except bilirubin is a little high on this last test. I'm re testing soon. Also, I get tan very easy! Anyone else? Anyone from the Washington State?
Been on
Urso
about 2 years now. Liver tests are back to normal, except bilirubin is a little high on this last test. I'm re testing soon. Also, I get tan very easy! Anyone else? Anyone from the Washington State?
TanGram
in
PBCers Organization
11 months ago
AIH/PBC Overlap Anyone on urso & Mercap
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
Eternity6
in
British Liver Trust
11 months ago
Alkaline phosphatase is 161
Pbc, they put me on ocaliva earlier this year along with
urso
, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Pbc, they put me on ocaliva earlier this year along with
urso
, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Dunks72
in
PBC Foundation
1 year ago
Bloat
I've been taking
urso
for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
I've been taking
urso
for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
Casslucy
in
PBC Foundation
1 year ago
ALP and when to add 2nd line therapy
Started
URSO
right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed.
Started
URSO
right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed.
Heaslea
in
PBC Foundation
1 year ago
foods to avoid and/or eat to help with itching?
I am on
urso
(about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!)
I am on
urso
(about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!)
Sister65
in
PBC Foundation
1 year ago
joint pain
I was diagnosed by an e-consult with gastro who said it was likely PBC & NASH and ordered
urso
. The funny thing is now I think back to all the times my hands and fingers would itch like crazy and realize that was actually a symptom.
I was diagnosed by an e-consult with gastro who said it was likely PBC & NASH and ordered
urso
. The funny thing is now I think back to all the times my hands and fingers would itch like crazy and realize that was actually a symptom.
AutumnWind
in
PBCers Organization
10 months ago
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