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Urso
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Elevated Vitamin B 12
i am embarrassed to write this ,,,my bloods cam back after six months of
Urso
and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day!
i am embarrassed to write this ,,,my bloods cam back after six months of
Urso
and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day!
Gaspereaux
in
British Liver Trust
3 months ago
overlap RA, medication?
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
CeeCee101
in
PBC Foundation
6 months ago
Taking Urso
I have a question about
Urso
. Is it fine to take your
Urso
in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests.
I have a question about
Urso
. Is it fine to take your
Urso
in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests.
Gaspereaux
in
PBC Foundation
8 months ago
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previous question
Someone recently asked me about taking
Urso
after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken
Urso
since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily.
Someone recently asked me about taking
Urso
after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken
Urso
since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily.
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
Wednesday's Word
[u][i]
responder........[/i][/u] Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper limits of normal and the bilirubin results are less than one time the upper limits of normal. I know this can be very confusing.
[u][i]
responder........[/i][/u] Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper limits of normal and the bilirubin results are less than one time the upper limits of normal. I know this can be very confusing.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
portland oregon
Hi, I was diagnosed with PBC 10 years ago was taking
Urso
for 5 yrs, I have been doing okay 👍
Hi, I was diagnosed with PBC 10 years ago was taking
Urso
for 5 yrs, I have been doing okay 👍
susanashworth
in
PBCers Organization
7 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in
Urso
non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol.
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in
Urso
non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Ursofalk
Has anyone else been given a guilt trip about
Urso
?
Has anyone else been given a guilt trip about
Urso
?
Oidra
in
PBC Foundation
7 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
5 months ago
Take all Urso dose at once?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
DebatDG9
in
PBC Foundation
7 months ago
Rheumatoid?
So….because I was suffering from lower back pain (not sure if it is from PBC,
URSO
or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle.
So….because I was suffering from lower back pain (not sure if it is from PBC,
URSO
or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle.
Gaspereaux
in
British Liver Trust
4 months ago
Wednesday Word
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Seladelpar update
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Joint/Muscle Pain
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
Gaspereaux
in
PBC Foundation
7 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
8 months ago
prescription
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
Lena2011
in
PBC Foundation
7 months ago
Don't Underestimate Yourself
Will the
Urso
work? Will I itch? Will I become fatigued? Will my disease get worse? What will my next lab results be? Even before diagnosis perhaps you were already faced with other challenges with your physical health, your job, your family, or just dealing with overall emotional problems.
Will the
Urso
work? Will I itch? Will I become fatigued? Will my disease get worse? What will my next lab results be? Even before diagnosis perhaps you were already faced with other challenges with your physical health, your job, your family, or just dealing with overall emotional problems.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Skypony
in
PBC Foundation
7 months ago
Possible Sjogren’s
I was diagnosed with PBC in 2005 and have been on
URSO
since diagnosis. No significant change in my PBC in all these years. Also, have Hashimoto’s 2016, and Oral Lichen Planus 2021. Recently, I was in the ER because I developed a speech issue. My family thought it was a stroke.
I was diagnosed with PBC in 2005 and have been on
URSO
since diagnosis. No significant change in my PBC in all these years. Also, have Hashimoto’s 2016, and Oral Lichen Planus 2021. Recently, I was in the ER because I developed a speech issue. My family thought it was a stroke.
PB4857
in
PBCers Organization
5 months ago
Urso stopped working
hi everyone Can anyone help
Urso
has stopped working and being put onto Ocaliva. i have been on
Urso
since diagnosed in 2012. Not sure what to expect ?? Thank you
hi everyone Can anyone help
Urso
has stopped working and being put onto Ocaliva. i have been on
Urso
since diagnosed in 2012. Not sure what to expect ?? Thank you
MrsFlee
in
PBC Foundation
10 months ago
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