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Urso
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I've just been diagnosed with PBC - in last four months I've been taking urso 2x a day now I'm taking 2x250mg at bedtime- anyone like this?
Just wondered as i thought taking it at bedtime was for disolving gall stones. I didn't know about at change to the prescription until the pharmacist explained.
Just wondered as i thought taking it at bedtime was for disolving gall stones. I didn't know about at change to the prescription until the pharmacist explained.
Bbbbbbbbbmmmm
in
PBC Foundation
6 years ago
Gastro/Hep Specialist Makes me More Baffled
The only positive I derived from this visit is that he agreed that I do not need to be
URSO
at this time only when other markers start to change. Baffled!
The only positive I derived from this visit is that he agreed that I do not need to be
URSO
at this time only when other markers start to change. Baffled!
Sdone
in
PBC Foundation
6 years ago
Age and Urso dosage if your over 70 does the dosage stay the same.
Has anyone had docter say the dosage should be less if your over 70
Has anyone had docter say the dosage should be less if your over 70
summer641946
in
PBC Foundation
6 years ago
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Reversal of fortune in bloodwork but staying positive
I started
Urso
and was a partial responder -biopsy confirmed stage 1pbc in September. Started ocaliva in November - strong improvement in enzymes initially then more gradual- bloodwork 3/28/18 had ALP 188 (down from high 300s at diagnosis and AST ALT almost normal.
I started
Urso
and was a partial responder -biopsy confirmed stage 1pbc in September. Started ocaliva in November - strong improvement in enzymes initially then more gradual- bloodwork 3/28/18 had ALP 188 (down from high 300s at diagnosis and AST ALT almost normal.
Ottley3
in
PBC Foundation
6 years ago
15 yrs with pbc
Seen drs every 6 months allergic to
urso
allergic to many many medications. I’m stage at stage 3 as of now.
Seen drs every 6 months allergic to
urso
allergic to many many medications. I’m stage at stage 3 as of now.
Teri8672
in
PBC Foundation
6 years ago
Turmeric
Hi Diagnosed with PSC 2 years ago aged 68 after years of UC put on
Urso
but it gives me Back pain and AcidReflux stopped using and Blood liver test were high consultant suggested I go back on them and it liver bloods were better Question apparently Turmeric is good forLiver and Joint Pain so been
Hi Diagnosed with PSC 2 years ago aged 68 after years of UC put on
Urso
but it gives me Back pain and AcidReflux stopped using and Blood liver test were high consultant suggested I go back on them and it liver bloods were better Question apparently Turmeric is good forLiver and Joint Pain so been
Roccadave
in
PBC Foundation
6 years ago
Sudden Drastic Change in AST and ALT
As of the beginning of 2018 I had the ALP, AST and ALT somewhat stabilized and under control with
Urso
. The ALP (normal 33-130) was running in the 300’s, but that was a far cry from the 750 it started out at when diagnosed 2 yrs ago.
As of the beginning of 2018 I had the ALP, AST and ALT somewhat stabilized and under control with
Urso
. The ALP (normal 33-130) was running in the 300’s, but that was a far cry from the 750 it started out at when diagnosed 2 yrs ago.
GhostHunter
in
PBC Foundation
6 years ago
Tendinitis
I was diagnosed with PBC In December last year , am on
urso
and all seems fine but started having really bad leg pain just above my ankle, saw a stand in gp who said it was tendinitis and gave me ibroprofen,,which I haven’t taken and told to rest it , but weeks on and it’s no better and the pain is keeping
I was diagnosed with PBC In December last year , am on
urso
and all seems fine but started having really bad leg pain just above my ankle, saw a stand in gp who said it was tendinitis and gave me ibroprofen,,which I haven’t taken and told to rest it , but weeks on and it’s no better and the pain is keeping
Jnuttall
in
PBC Foundation
6 years ago
Urso
Why would you not take
Urso
unless you are not a responder? What were the side effects that made you switch meds?
Why would you not take
Urso
unless you are not a responder? What were the side effects that made you switch meds?
Ellyne
in
PBC Foundation
6 years ago
Why do some consultants seem so patronising
I was sent to see a gastro consultant he said did I have any questions but then proceeded to talk to my husband When I last saw him he admitted that he did not know much about Pbc and this is the man that issued the prescription for
urso
!!!
I was sent to see a gastro consultant he said did I have any questions but then proceeded to talk to my husband When I last saw him he admitted that he did not know much about Pbc and this is the man that issued the prescription for
urso
!!!
George1234
in
British Liver Trust
6 years ago
PBC and Life Expectancy
This leaves us the section of the population who do not respond to
Urso
. (this could be because they don't respond, because they don't tolerate, or because they haven't been given access to
Urso
in the first place). What happens to them?
This leaves us the section of the population who do not respond to
Urso
. (this could be because they don't respond, because they don't tolerate, or because they haven't been given access to
Urso
in the first place). What happens to them?
PBCRobert
Administrator
in
PBC Foundation
6 years ago
Ocaliva is working for me 🙌🏻🙌🏻
Diagnosed around 5 years ago with PBC and was on 1500mg
urso
and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO.
Diagnosed around 5 years ago with PBC and was on 1500mg
urso
and nothing doing. After biopsy February I was told now stage 1 child’s cirrotic 😭 but NO symptoms like ZERO.
Alison2306
in
PBC Foundation
6 years ago
Pbc and joint pain
My last gastroenterology my liver function was normal due to
urso
I possibly have sjogren's, but not diagnosed as I won't have lip biopsy Any way, yesterday I wake up with pain in the hip joint, walking is OK but stairs cause alot of pain I ve been told pcb causes joint pain but not really explained
My last gastroenterology my liver function was normal due to
urso
I possibly have sjogren's, but not diagnosed as I won't have lip biopsy Any way, yesterday I wake up with pain in the hip joint, walking is OK but stairs cause alot of pain I ve been told pcb causes joint pain but not really explained
Pinkcrush
in
PBC Foundation
6 years ago
Positive AMA went down to normal
Hello everyone, So my doctor diagnosed me with pbc but never put me on
urso
because my bilirubin was not elevated. She decided to get my labs checked monthly. My AMA was still positive for the first two months, but now it is normal. Whats does this mean? Do I not have pbc?
Hello everyone, So my doctor diagnosed me with pbc but never put me on
urso
because my bilirubin was not elevated. She decided to get my labs checked monthly. My AMA was still positive for the first two months, but now it is normal. Whats does this mean? Do I not have pbc?
selinihun
in
PBC Foundation
6 years ago
Update: Partial responder to URSO - back to splitting the dose
Hi All - I posted a couple of months ago about being a partial responders to
URSO
. Diagnosed 3 years ago when LFTs were sky high. After first four months took daily dose of
URSO
in one go as recommended in patient info leaflet that comes with tablets.
Hi All - I posted a couple of months ago about being a partial responders to
URSO
. Diagnosed 3 years ago when LFTs were sky high. After first four months took daily dose of
URSO
in one go as recommended in patient info leaflet that comes with tablets.
LisaC22
in
PBC Foundation
6 years ago
PBC, tired but hopeful
The
Urso
helped tremendously and my doctor was even shocked at how quickly it brought down my LFTs. The itching is nearly gone, the brain fog is much better, the liver pain is totally gone, the achiness comes and goes but the bouts of tiredness can be overwhelming.
The
Urso
helped tremendously and my doctor was even shocked at how quickly it brought down my LFTs. The itching is nearly gone, the brain fog is much better, the liver pain is totally gone, the achiness comes and goes but the bouts of tiredness can be overwhelming.
kalikrissy
in
PBC Foundation
6 years ago
Alkphos
I’m on
Urso
and last November my alkphos was normal - like really normal- then in April I had a med check (cholesterol check) with my family dr and it had gone to 135 and I just had it done for my GI dr for PBC and it’s 157!!! I’m panicking!!!! All other blood work is perfect!!!!
I’m on
Urso
and last November my alkphos was normal - like really normal- then in April I had a med check (cholesterol check) with my family dr and it had gone to 135 and I just had it done for my GI dr for PBC and it’s 157!!! I’m panicking!!!! All other blood work is perfect!!!!
Sam1121
in
PBC Foundation
6 years ago
Can you highlight your hair if diagnosed with aih/pbc overlap?
I take budesonide 6mg and 50mg as a and 1000ml
urso
a day. Is it safe?
I take budesonide 6mg and 50mg as a and 1000ml
urso
a day. Is it safe?
Briggo
in
PBC Foundation
6 years ago
Sad today ama goes up b12 gluten?
On watch for now, allergic to
urso
On watch for now, allergic to
urso
Sdone
in
PBC Foundation
6 years ago
Texas PBC conference and support groups
My biopsy did come back positive for PBC. and I have started
URSO
, three capsules of 300 mg each, three times a day with meals. So far so good... Spending time with hundreds of men and women with this condition made me feel that I am not alone and I will survive.
My biopsy did come back positive for PBC. and I have started
URSO
, three capsules of 300 mg each, three times a day with meals. So far so good... Spending time with hundreds of men and women with this condition made me feel that I am not alone and I will survive.
FranSP
in
PBC Foundation
6 years ago
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