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Uniphyllin Continus
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Update- My Imbruvica plus Venetoclax Captivate trial.
Hello, I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after almost 1 year!! My Doctor prefers to say MRD- undetectable instead of MRD Negative. I am most likely on a placebo. Per the trial I am on either a placebo or imbruvica. I am Very very sure a placebo
Hello, I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after almost 1 year!! My Doctor prefers to say MRD- undetectable instead of MRD Negative. I am most likely on a placebo. Per the trial I am on either a placebo or imbruvica. I am Very very sure a placebo
Hoffy
in
CLL Support
5 years ago
Life is a living hell, crippling fatigue and brain fog
23, Male, Caucasian, 5'10, 165 lbs Hello all, I'm sure many of you can relate to my story so here goes. My health has felt like it’s been in the crapper for way too long. When I was 12-13 I was diagnosed with mild GERD (acid reflux). It affected my sleep a little bit from what I remember
23, Male, Caucasian, 5'10, 165 lbs Hello all, I'm sure many of you can relate to my story so here goes. My health has felt like it’s been in the crapper for way too long. When I was 12-13 I was diagnosed with mild GERD (acid reflux). It affected my sleep a little bit from what I remember
Zheshi
in
Pernicious Anaemia Society
5 years ago
CPAP
Had my sleep clinic results and yes I have sleep apnoea the top end of moderate. The have fitted me with a CPAP Machine today as the doc felt it was urgent so soon after the ablation. Can't wait to feel better. Any words of wisdom gratefully received. 😴😴
Had my sleep clinic results and yes I have sleep apnoea the top end of moderate. The have fitted me with a CPAP Machine today as the doc felt it was urgent so soon after the ablation. Can't wait to feel better. Any words of wisdom gratefully received. 😴😴
Hidden
in
Sleep Matters
5 years ago
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CPAP
Had my sleep clinic results and yes I have sleep apnoea the top end of moderate. The have fitted me with a CPAP Machine today as the doc felt it was urgent so soon after the ablation. Can't wait to feel better. Any words of wisdom gratefully received. 😴😴
Had my sleep clinic results and yes I have sleep apnoea the top end of moderate. The have fitted me with a CPAP Machine today as the doc felt it was urgent so soon after the ablation. Can't wait to feel better. Any words of wisdom gratefully received. 😴😴
Hidden
in
AF Association
5 years ago
Ground Hog Day
Well I had 3 days of sinus rhythm (with a few minor bumps). I had a bad headache all day Sunday and Monday and then this morning woke up at 1.45 am in AFib and it hasn’t stopped yet, nearly 14 hours later. The Digoxin keeps it down to a manageable rate so I can cope okay. It probably hasn’t helped that
Well I had 3 days of sinus rhythm (with a few minor bumps). I had a bad headache all day Sunday and Monday and then this morning woke up at 1.45 am in AFib and it hasn’t stopped yet, nearly 14 hours later. The Digoxin keeps it down to a manageable rate so I can cope okay. It probably hasn’t helped that
Kaz747
in
AF Association
5 years ago
Cpa
Cpap Im only using my cpap machine for two hours i Don't if its help need advice pls..
Cpap Im only using my cpap machine for two hours i Don't if its help need advice pls..
andyuson
in
Lung Conditions Community Forum
5 years ago
MST Continus 5mg
Has anyone else been giving MST Continus 5mg for the pain? If so how were the side effects?
Has anyone else been giving MST Continus 5mg for the pain? If so how were the side effects?
Lovisa
in
Endometriosis UK
5 years ago
New diagnosis
Need an answer I’ve recently was diagnosed with sleep apnea. Given a form to inform DVLA of my new diagnosis. Form says not to drive but nurse didn’t say much about driving. I’ve informed DVLA and they said I can either evoke my licence or have an assessment. My problem is my partner doesn’t drive so
Need an answer I’ve recently was diagnosed with sleep apnea. Given a form to inform DVLA of my new diagnosis. Form says not to drive but nurse didn’t say much about driving. I’ve informed DVLA and they said I can either evoke my licence or have an assessment. My problem is my partner doesn’t drive so
Matilda_1922
in
Sleep Matters
5 years ago
Is it best not to use a cpap machine while having COPD exacerbation ? What do fellow sufferers do ?
cpap/copd exacerbation
cpap/copd exacerbation
Bilko952
in
Lung Conditions Community Forum
5 years ago
CPAP Trial - one week in
It’s interesting that there has been a lot of discussion here lately around sleep apnea. I’m one quarter of the way through my 4 week CPAP trial. Being claustrophobic I’m struggling but getting used to it. I’m determined to complete the trial and see if it helps my heart. This is the mask so it’s the
It’s interesting that there has been a lot of discussion here lately around sleep apnea. I’m one quarter of the way through my 4 week CPAP trial. Being claustrophobic I’m struggling but getting used to it. I’m determined to complete the trial and see if it helps my heart. This is the mask so it’s the
Kaz747
in
AF Association
5 years ago
SLEEP APNOEA
Be careful with seeking a sleep apnoea diagnosis because if toggled with daytime sleepiness it could mean loss of your drivers license as you have to inform DVLA and they have the right to withdraw your license. You will be given a CPAP machine to use and providing you use it 80% of your sleeping hours
Be careful with seeking a sleep apnoea diagnosis because if toggled with daytime sleepiness it could mean loss of your drivers license as you have to inform DVLA and they have the right to withdraw your license. You will be given a CPAP machine to use and providing you use it 80% of your sleeping hours
Rosyrobics
in
AF Association
5 years ago
Body Vibrations Night Terrors
Finally .. it seems I'm not the only one. For the last three years i have suffered and endured the many sleepless nights with this body vibration. It all seemed to start with what I now know to be RLS ... restless leg syndrome. This then progressed to my whole body. No one can see this except
Finally .. it seems I'm not the only one. For the last three years i have suffered and endured the many sleepless nights with this body vibration. It all seemed to start with what I now know to be RLS ... restless leg syndrome. This then progressed to my whole body. No one can see this except
Steelriva
in
Living with Anxiety
5 years ago
Hi all
Hi everyone first afib attack was 2011 went from maybe 1 episode a year to now pretty much 2 days on 2 days off. 320mg sotolol and eliquis. Have been on cpap for nearly a year was getting 57 episodes an hour in my sleep study. Cpap hasn’t helped the afib but it has controlled my high bp to the point
Hi everyone first afib attack was 2011 went from maybe 1 episode a year to now pretty much 2 days on 2 days off. 320mg sotolol and eliquis. Have been on cpap for nearly a year was getting 57 episodes an hour in my sleep study. Cpap hasn’t helped the afib but it has controlled my high bp to the point
teenymak
in
AF Association
5 years ago
Cpap and RBD
Has anyone gone on a cpap machine for RBD and did it help?
Has anyone gone on a cpap machine for RBD and did it help?
lhart6387
in
Cure Parkinson's
5 years ago
Pramipexole side effects
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
StillStriving
in
Restless Legs Syndrome
5 years ago
Methadone treatment or not?
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
Merster
in
Restless Legs Syndrome
5 years ago
Aching arms - CPAP mask
Good afternoon everyone, I wear a CPAP mask every night, as i am a retainer and i just wondered does anyone else at night suffer with pain in in their arms and shoulders whilst sleeping? It sometimes feels as though I have been sleeping to soundly on my arm and I have to turn over onto my other side.
Good afternoon everyone, I wear a CPAP mask every night, as i am a retainer and i just wondered does anyone else at night suffer with pain in in their arms and shoulders whilst sleeping? It sometimes feels as though I have been sleeping to soundly on my arm and I have to turn over onto my other side.
Joseph260268
in
Lung Conditions Community Forum
5 years ago
Sleep Study
Three weeks ago I had a sleep study in hospital. I was rather anxious about it as I am highly claustrophobic. It was hard enough wearing pajamas, let alone having all the probes and wires on me. I was in tears (and in AF) when getting wired up. I did some deep breathing and meditating and finally got
Three weeks ago I had a sleep study in hospital. I was rather anxious about it as I am highly claustrophobic. It was hard enough wearing pajamas, let alone having all the probes and wires on me. I was in tears (and in AF) when getting wired up. I did some deep breathing and meditating and finally got
Kaz747
in
AF Association
5 years ago
Atrial Fib:- Identifying Triggers ...
Its interesting to read others A.F. triggers and reactions to alcohol. I have paroxysmal AF and discovered that if I have 'too much alcohol', I wake up in the middle of the night feeling anxious and realize I'm in AF. The strange thing is that other times I can have a higher consumpion and totally
Its interesting to read others A.F. triggers and reactions to alcohol. I have paroxysmal AF and discovered that if I have 'too much alcohol', I wake up in the middle of the night feeling anxious and realize I'm in AF. The strange thing is that other times I can have a higher consumpion and totally
Deacon-L
in
AF Association
5 years ago
Sleep apnea but can’t tolerate cpap machine
Hi is there anyone else who has sleep apnea but been unable to tolerate the machine. I was first diagnosed with sleep apnea 8 years ago at which time it was mild. 5 years ago I was retested and diagnosed with severe sleep apnea. I have tried on 3 occasions different masks persevering at least 6 weeks
Hi is there anyone else who has sleep apnea but been unable to tolerate the machine. I was first diagnosed with sleep apnea 8 years ago at which time it was mild. 5 years ago I was retested and diagnosed with severe sleep apnea. I have tried on 3 occasions different masks persevering at least 6 weeks
Moirb
in
Sleep Matters
5 years ago
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