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No difference in SBRT vs conventionally fractionated radiation for intermediate risk patients
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
Tall_Allen
in
Prostate Cancer Network
11 months ago
Menopause
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
keiralee
in
Restless Legs Syndrome
11 months ago
Hip Replacement and RA
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Angie2212
in
NRAS
1 year ago
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help with charity/grant
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
Buddysgreatadventure
in
Mencap
1 year ago
Newly diagnosed
Hi, this is all very new to me as only been diagnosed with fibro in the last few months. I originally was told about 3yrs ago that all my symptoms were down to being peri- menopausal and put on hrt patches, then changed to different hrt medicines when these didn't do anything. I then saw a different
Hi, this is all very new to me as only been diagnosed with fibro in the last few months. I originally was told about 3yrs ago that all my symptoms were down to being peri- menopausal and put on hrt patches, then changed to different hrt medicines when these didn't do anything. I then saw a different
Animal99
in
Fibromyalgia Action UK
11 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
9 months ago
Insulin
Im reading about Insulin and diabetics are more prone to PCa. What's the consensus on insulin with peeps that already have PCa? Im now on insulin until I can stop L/Z/P, or change to another ADT.
Im reading about Insulin and diabetics are more prone to PCa. What's the consensus on insulin with peeps that already have PCa? Im now on insulin until I can stop L/Z/P, or change to another ADT.
Hidden
in
Advanced Prostate Cancer
11 months ago
treatment and insurance questions
gleason 4+3=7 (70% pattern 4) involving one core less than 0.5mm. PSA 5.2. Biopsy results confirmed by MRI. I am 64 years old and will be 65 in December. I have horrible insurance with very limited treatment options. I would like to delay treatment until I have Medicare (5 months). I have met with
gleason 4+3=7 (70% pattern 4) involving one core less than 0.5mm. PSA 5.2. Biopsy results confirmed by MRI. I am 64 years old and will be 65 in December. I have horrible insurance with very limited treatment options. I would like to delay treatment until I have Medicare (5 months). I have met with
Hidden
in
Prostate Cancer And Gay Men
1 year ago
Prostap/tibolone - regal study
Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm not coping well. I dont want to be another horror story on the internet so to keep it brief my main concern is constant nausea (but I cant function) and worsened allergies (and I have a history of anaphylaxis as it is).
Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm not coping well. I dont want to be another horror story on the internet so to keep it brief my main concern is constant nausea (but I cant function) and worsened allergies (and I have a history of anaphylaxis as it is).
Ash24601
in
Endometriosis UK
11 months ago
steel hardware in spine and ADT and Radiation
We are off to Mayo Phoenix tomorrow for three month post RARP check up. Not sure what will be suggested, but definitely looking for referrals to oncology and radiology oncology, due to his high/very high risk findings and pathology. He has two steel rods and 9 screws in his thoracic and lumbar spine
We are off to Mayo Phoenix tomorrow for three month post RARP check up. Not sure what will be suggested, but definitely looking for referrals to oncology and radiology oncology, due to his high/very high risk findings and pathology. He has two steel rods and 9 screws in his thoracic and lumbar spine
Lokicliff
in
Advanced Prostate Cancer
11 months ago
Medications, supplements and other therapies used in Parkinsons
Here is a partial list of medication, supplements for other therapies used in Parkinsons What do you believe are the most beneficial/essential to treating Parkinsons and/or mitochondrial damage Which way should I go? Most bang for your bucks Carbadopa/Levadopa  L-5-hydroxytryptophan (5-HTP) Actylcholine
Here is a partial list of medication, supplements for other therapies used in Parkinsons What do you believe are the most beneficial/essential to treating Parkinsons and/or mitochondrial damage Which way should I go? Most bang for your bucks Carbadopa/Levadopa  L-5-hydroxytryptophan (5-HTP) Actylcholine
healthyheart7
in
Cure Parkinson's
2 years ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
11 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
10 months ago
Virtual Reality Therapy Anyone?
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
Wtfisup
in
My MSAA Community
1 year ago
ADT + darolutamide + docetaxel (ARASENS trial) has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Maxone73
in
Advanced Prostate Cancer
11 months ago
HRT patches
HI My doctor has asked me to consider HRT patches to help with my tiredness, aching joints , hot flushes and belly fat gain. I always thought that HRT can cause weight gain. Does any one have any experience of these patches they can share with me please. I'm so confused and i dont want to start something
HI My doctor has asked me to consider HRT patches to help with my tiredness, aching joints , hot flushes and belly fat gain. I always thought that HRT can cause weight gain. Does any one have any experience of these patches they can share with me please. I'm so confused and i dont want to start something
Gyp101
in
Women's Health
11 months ago
Arrythmias on Zytiga
i am finishing my19th month of degarelix and abiraterone. Over the past 3-4 months pvc/arrythmias have gotten more frequent progressing to daily. In fact at my last two injections the nurses have asked if I have a history of arrythmias given my HR was so irradict. So my question is do I request a dose
i am finishing my19th month of degarelix and abiraterone. Over the past 3-4 months pvc/arrythmias have gotten more frequent progressing to daily. In fact at my last two injections the nurses have asked if I have a history of arrythmias given my HR was so irradict. So my question is do I request a dose
Oceankayaker
in
Advanced Prostate Cancer
11 months ago
New to all this, please help with test results
People on the Hypothyroid UK forum have suggested that I join this forum because of some test results that I received yesterday. Long story short, I've finally been diagnosed with hypothyroid, but I'm still having awful problems with my memory, attention, concentration, finding words and ability to
People on the Hypothyroid UK forum have suggested that I join this forum because of some test results that I received yesterday. Long story short, I've finally been diagnosed with hypothyroid, but I'm still having awful problems with my memory, attention, concentration, finding words and ability to
TheSnufkin
in
Pernicious Anaemia Society
11 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
10 months ago
HRT and Alzheimer’s after 1 year
I found this article about HRT and Alzheimer’s and know a lot of us ladies are on them …. What is your thoughts on this article?
I found this article about HRT and Alzheimer’s and know a lot of us ladies are on them …. What is your thoughts on this article?
Batty1
in
Thyroid UK
11 months ago
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