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On the possible use of mushrooms and natural supplements, and their potential benefits, with citations
The following post provides information and NON-MEDICAL advice I've come across that I'll be presenting to my oncologist tomorrow. I thought it might be of value for others among us to consider, to further research (I provide citations), to comment on, and/or to speak to their doctor(s) and oncologist
The following post provides information and NON-MEDICAL advice I've come across that I'll be presenting to my oncologist tomorrow. I thought it might be of value for others among us to consider, to further research (I provide citations), to comment on, and/or to speak to their doctor(s) and oncologist
Pogee
in
CLL Support
4 years ago
Resuming Actemra... but now foot and leg pain. Any thoughts?
I had to stop Actemra for a month because of illness and have had a rough time resuming the injections. The first two injections brought headaches, nausea, flu-like symptoms, fatigue and a runny nose for 2 days ...memories of the symptoms I had experienced when I first started Actemra last November.
I had to stop Actemra for a month because of illness and have had a rough time resuming the injections. The first two injections brought headaches, nausea, flu-like symptoms, fatigue and a runny nose for 2 days ...memories of the symptoms I had experienced when I first started Actemra last November.
GratefulBailey
in
PMRGCAuk
4 years ago
Hi everyone I am wondering when I should have a pneumonia jab? Would it be the same time as flu vaccine? I am on watch and wait and have bee
Hi everyone I am wondering when I should have a pneumonia jab? Would it be the same time as flu vaccine? I am on watch and wait and have been for 5 years. I have had flu vaccine each year but never pneumonia. I am also going to try and not go back to work for as long as I can. Seeing management on Tuesday
Hi everyone I am wondering when I should have a pneumonia jab? Would it be the same time as flu vaccine? I am on watch and wait and have been for 5 years. I have had flu vaccine each year but never pneumonia. I am also going to try and not go back to work for as long as I can. Seeing management on Tuesday
robertsw
in
CLL Support
4 years ago
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Pneumonia Booster
Has anyone had a problem getting their pneumonia booster ? My consultant has recommended to GP but it was refused. I am 3 years into remission after 4 sessions of Rituximab and Bendamustine Chemo. Apparently I don’t meet my Health Centres criteria. !
Has anyone had a problem getting their pneumonia booster ? My consultant has recommended to GP but it was refused. I am 3 years into remission after 4 sessions of Rituximab and Bendamustine Chemo. Apparently I don’t meet my Health Centres criteria. !
Content82
in
CLL Support
4 years ago
urinary tract
Hey there. Is there anyone who is a Diabetic patient and suffers from urinary tract infections often and thereafter have a high fever? Please help me as my mother suffers from this and she is 49years old. Please suggest the ways to avoid this infection occurring often. Thank you in advance.
Hey there. Is there anyone who is a Diabetic patient and suffers from urinary tract infections often and thereafter have a high fever? Please help me as my mother suffers from this and she is 49years old. Please suggest the ways to avoid this infection occurring often. Thank you in advance.
shiv123456
in
Diabetes India
4 years ago
To test for COVID or not
My son had an asthma attack at school today. He has cough variant asthma so his attacks present as a “continuous cough”. His cough stopped when they finally gave him his inhaler (half an hour later). School wants us to take him for a COVID test Or they won’t let him return. GP surgery have said he doesn
My son had an asthma attack at school today. He has cough variant asthma so his attacks present as a “continuous cough”. His cough stopped when they finally gave him his inhaler (half an hour later). School wants us to take him for a COVID test Or they won’t let him return. GP surgery have said he doesn
Alderfox
in
Asthma Community Forum
4 years ago
Flu Jab
What does everyone think about having a flu jab. If I take any sort of medicine it causes me problems so I am worried about having this and what effect it might have.
What does everyone think about having a flu jab. If I take any sort of medicine it causes me problems so I am worried about having this and what effect it might have.
2106
in
Behçet's UK
4 years ago
Study provides insight on how to build a better flu vaccine.
Flu season comes around like clockwork every year, and sooner or later everyone gets infected. The annual flu shot is a key part of public health efforts to control the flu, but the vaccine’s effectiveness is notoriously poor, falling somewhere from 40% to 60% in a typical year. A growing body of evidence
Flu season comes around like clockwork every year, and sooner or later everyone gets infected. The annual flu shot is a key part of public health efforts to control the flu, but the vaccine’s effectiveness is notoriously poor, falling somewhere from 40% to 60% in a typical year. A growing body of evidence
2greys
in
Lung Conditions Community Forum
4 years ago
Flu jab
Many thanks for all the helpful replies, I'm resolved to have the flu jab this year as I'll never know if the jab triggered PMR and anyway I'm more at risk now especially this winter.
Many thanks for all the helpful replies, I'm resolved to have the flu jab this year as I'll never know if the jab triggered PMR and anyway I'm more at risk now especially this winter.
WillOllier
in
PMRGCAuk
4 years ago
Newish here but loving it! ET + JAK 2 + asprin only
So thank to everyone for their time and insights and tips and knowledge. Just wondering if this rings a bell with any one as an ET symptom? I have temperature ranges with feeling cold, once I get cold it is hardish to get warm again and extra layers don't help. My feet and arms suffer particularly with
So thank to everyone for their time and insights and tips and knowledge. Just wondering if this rings a bell with any one as an ET symptom? I have temperature ranges with feeling cold, once I get cold it is hardish to get warm again and extra layers don't help. My feet and arms suffer particularly with
Cassandra61
in
MPN Voice
4 years ago
Flu jab
hi all I dont write much here but I read all daily im just wondering if any of you will get flu jabs this year I get mine every year but now im worried as some people are saying they won't get flu jabs this year as worried about the vacine for covid 19 in case they put anything they shouldn't into flu
hi all I dont write much here but I read all daily im just wondering if any of you will get flu jabs this year I get mine every year but now im worried as some people are saying they won't get flu jabs this year as worried about the vacine for covid 19 in case they put anything they shouldn't into flu
Danielmystar
in
Lung Conditions Community Forum
4 years ago
Should I have the flu jab
I'm 63 and new to this group. I contracted PMR 2 years ago, a few days after having the flu jab. My doctor agrees that the flu jab may have triggered PMR but there is little evidence to confirm this and his advice is to have the jab again this Autumn (I didn't have it last year) as my immune system is
I'm 63 and new to this group. I contracted PMR 2 years ago, a few days after having the flu jab. My doctor agrees that the flu jab may have triggered PMR but there is little evidence to confirm this and his advice is to have the jab again this Autumn (I didn't have it last year) as my immune system is
WillOllier
in
PMRGCAuk
4 years ago
Radiation Started 7th session. Diet ? Exercise ? Supplements? Work?
UPDATE Just began my 2nd week of Radiation (6 more weeks) Began Lupron/ Casodex feb 25th '20 PSA undetectable DECIPHER test was covid-19 Delayed so still waiting Exercise - Jog 3 miles and lift weights (when I have the energy) daily My only supplement is Ginger in my tea. Modified Citrus Pectin
UPDATE Just began my 2nd week of Radiation (6 more weeks) Began Lupron/ Casodex feb 25th '20 PSA undetectable DECIPHER test was covid-19 Delayed so still waiting Exercise - Jog 3 miles and lift weights (when I have the energy) daily My only supplement is Ginger in my tea. Modified Citrus Pectin
sharpcut
in
Advanced Prostate Cancer
4 years ago
Cystitis symptoms after surgery
Has anyone suffered cystitis symptoms or actual cystitis after laparoscopy? I had mine yesterday and the cystitis symptoms are getting even worse! I’m worried I might have contracted it when I had a catheter put in and out during surgery? Any advice? Thanks
Has anyone suffered cystitis symptoms or actual cystitis after laparoscopy? I had mine yesterday and the cystitis symptoms are getting even worse! I’m worried I might have contracted it when I had a catheter put in and out during surgery? Any advice? Thanks
Consumer_researcher
in
Endometriosis UK
4 years ago
Matt Hancock to bring into Law allowing Nurses and Pharmacists to give Flu Vaccine.
https://twitter.com/rcngpnforum/status/1298971404784852993?s=21 This is news to me, have Lloyd’s Pharmacy illegally been giving me the flu jab for the last three years and before that my GP’s Practice nurse?!😉
https://twitter.com/rcngpnforum/status/1298971404784852993?s=21 This is news to me, have Lloyd’s Pharmacy illegally been giving me the flu jab for the last three years and before that my GP’s Practice nurse?!😉
Ian1967
in
Lung Conditions Community Forum
4 years ago
Not my finest...
First cold run, and it reminded me with a bang that I have asthma. Only managed to run for 25 minutes as a full blown attack was threatening and after gasping hopefully at my inhaler I realised that in a moment of stultifying stupidity I'd brought an empty one. Not good. I'm not going to call it a fail
First cold run, and it reminded me with a bang that I have asthma. Only managed to run for 25 minutes as a full blown attack was threatening and after gasping hopefully at my inhaler I realised that in a moment of stultifying stupidity I'd brought an empty one. Not good. I'm not going to call it a fail
Scout37
Graduate
in
Couch to 5K
4 years ago
CLL with CAD
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
Hidden
in
CLL Support
4 years ago
CLL and Cold Blood
Hoping someone can help.... my uncle has CLL but also a cold blood condition called Agglutinin... has anyone heard of it?!? He lives in central Florida. I am putting him in touch with a dr javier Pinilla for a 2nd opinion? He literally sits in his house with hats/socks/sweatshirt because his body temperature
Hoping someone can help.... my uncle has CLL but also a cold blood condition called Agglutinin... has anyone heard of it?!? He lives in central Florida. I am putting him in touch with a dr javier Pinilla for a 2nd opinion? He literally sits in his house with hats/socks/sweatshirt because his body temperature
nvparmelee
in
CLL Support
4 years ago
Flu jab early call-September!
I have been contacted already by my GP to get my annual flu jab. I have been called early because I have been shielding. I’m not complaining, just wondered if anyone else has had this conversation yet? Thank you😎
I have been contacted already by my GP to get my annual flu jab. I have been called early because I have been shielding. I’m not complaining, just wondered if anyone else has had this conversation yet? Thank you😎
Green230461
in
NRAS
4 years ago
Husband still not undetectable after restarting ADT...should we be worried?
My husband's T is at 2.5 and PSA is at 0.27 after 5 months on Firmagon (last month it was at 0.16). Should we be worried about castrate resistance at this point? His urologist said not to add another med before another PSA check bc PSA may have bumped bc of AUS surgery he had four weeks ago. He has
My husband's T is at 2.5 and PSA is at 0.27 after 5 months on Firmagon (last month it was at 0.16). Should we be worried about castrate resistance at this point? His urologist said not to add another med before another PSA check bc PSA may have bumped bc of AUS surgery he had four weeks ago. He has
SuppWife
in
Fight Prostate Cancer
4 years ago
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