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QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests š, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests š, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
3 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
3 months ago
Raised heart rate with Losartan
I take Tildiem 500mg for AF and Hypertension .My BP had been creeping up so 6 weeks ago GP added in Losartan 25mg.Since then I have been aware of my heartbeat more, similar to when I started Diltiazem. My main worry is my resting heart rate has increased from 60 to 70.Has anyone else experienced an
I take Tildiem 500mg for AF and Hypertension .My BP had been creeping up so 6 weeks ago GP added in Losartan 25mg.Since then I have been aware of my heartbeat more, similar to when I started Diltiazem. My main worry is my resting heart rate has increased from 60 to 70.Has anyone else experienced an
Redwing30
in
Atrial Fibrillation Support
2 months ago
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Changing Medication
Hi Iām just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi Iām just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
2 months ago
Cholesterol
I requested a diabetes blood test at my local surgery on Monday, received telephone call Tuesday, to arrange an appointment with my gp, regarding cholesterol. My question is should I take statins if offered? And is it possible to reverse high cholesterol?Im taking 75/100 mcg teva levothyroxine alternate
I requested a diabetes blood test at my local surgery on Monday, received telephone call Tuesday, to arrange an appointment with my gp, regarding cholesterol. My question is should I take statins if offered? And is it possible to reverse high cholesterol?Im taking 75/100 mcg teva levothyroxine alternate
Geegee777
in
Thyroid UK
9 months ago
EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
3 months ago
dipyridamole
Iām going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. Iām currently using buprenorphine
Iām going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. Iām currently using buprenorphine
707twitcher
in
Restless Legs Syndrome
3 months ago
Platelets Dropping
Is this ānormalā or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Is this ānormalā or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Hope49823
in
Advanced Prostate Cancer
3 months ago
Advice on cholesterol blood test
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Soaping
in
Thyroid UK
9 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
3 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. Iām trying to finalize my choice of radiation treatments. Iām currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. Iām trying to finalize my choice of radiation treatments. Iām currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
3 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
3 months ago
Travelling with opioids
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Simkin
in
Restless Legs Syndrome
3 months ago
Desperate for help
yet again I am having issues getting my Morningside T3 and I run out today and after last time of going without for 3 days I was so ill for over 2 weeks One pharmacy informed me they have Alliance and Advance? Can anyone tell me if either are both FREE of Mannitol and Acacia so I can try one of them
yet again I am having issues getting my Morningside T3 and I run out today and after last time of going without for 3 days I was so ill for over 2 weeks One pharmacy informed me they have Alliance and Advance? Can anyone tell me if either are both FREE of Mannitol and Acacia so I can try one of them
Jefner
in
Thyroid UK
3 months ago
Fatiqued and wiped out feeling
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
woppaginny
in
Advanced Prostate Cancer
3 months ago
Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
4 months ago
Indapamide
I have been on 10mg Amlodipine and 10mg Ramipril for some years now. My blood pressure has slight increased to 135/96. Due to the raised DBP, my doctors wants me to add Indapamide. Is anybody taking Indapamide? are there any side affects? Would be interested in hearging from anyone who is
I have been on 10mg Amlodipine and 10mg Ramipril for some years now. My blood pressure has slight increased to 135/96. Due to the raised DBP, my doctors wants me to add Indapamide. Is anybody taking Indapamide? are there any side affects? Would be interested in hearging from anyone who is
AnimalNatureLover
in
High Blood Pressure Support
3 months ago
WORRIED ABOUT REOCCURRENCE???
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
JWS13
in
Advanced Prostate Cancer
4 months ago
Barrigel is now preferred over "SpaceOAR" gel?
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
mababa
in
Advanced Prostate Cancer
4 months ago
why am I so tired
I was diagnosed with GCA in November. I have been reducing Prednisone every 2 weeks. I started on 40mg and I am now on 12.5mg. I have steroid induced diabetis and my readings have been very erratic. They seem to be settling down a bit. I am taking 160mg and 80mg of Gliclazide, I have also been prescribed
I was diagnosed with GCA in November. I have been reducing Prednisone every 2 weeks. I started on 40mg and I am now on 12.5mg. I have steroid induced diabetis and my readings have been very erratic. They seem to be settling down a bit. I am taking 160mg and 80mg of Gliclazide, I have also been prescribed
Ambatu
in
PMRGCAuk
4 months ago
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