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Transrectal High-Intensity Focused Ultrasound
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Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
21 days ago
Are we on the right track?
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Kathyford
in
Advanced Prostate Cancer
25 days ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
29 days ago
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High cholesterol
Just had telephone consultation with my gp, he said my cholesterol is 8.2 and I have high triglycerides. He offered me statins, I said I d think about it.Im writing this because I am a bit shocked and unsure what to do next. Any advice most welcome. Im taking 75/100 mcg teva levothyroxine alternate
Just had telephone consultation with my gp, he said my cholesterol is 8.2 and I have high triglycerides. He offered me statins, I said I d think about it.Im writing this because I am a bit shocked and unsure what to do next. Any advice most welcome. Im taking 75/100 mcg teva levothyroxine alternate
Geegee777
in
Thyroid UK
9 months ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
1 month ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
8 days ago
Interesting research
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Readlots
in
British Liver Trust
16 days ago
Good News!!!
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
lorri214
in
Restless Legs Syndrome
22 days ago
Doxazosin
Dr prescribed doxazosin 1 mg for seriously high BP took my first tab last night as advised,this morning dizzy,shaky,unsteady on feet......feeling weird,scared. Has anyone else experienced this with the medication?
Dr prescribed doxazosin 1 mg for seriously high BP took my first tab last night as advised,this morning dizzy,shaky,unsteady on feet......feeling weird,scared. Has anyone else experienced this with the medication?
Hotie
in
High Blood Pressure Support
1 month ago
Interesting update for those in the UK whose GP practice has Buprenorphine red listed
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Claire_lc
in
Restless Legs Syndrome
1 month ago
If PSA is Suppressed by Doublet ADT, Will Salvage IMRT Cause a PSA Rise?
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
103532
in
Advanced Prostate Cancer
2 months ago
Brain bleeds
Has anyone on Apixaban had a brain bleed if so what were your symptoms ?
Has anyone on Apixaban had a brain bleed if so what were your symptoms ?
Myflowers2
in
Atrial Fibrillation Support
2 months ago
oxycodone and buprenorphine experiment
as you all may know, I thought buprenorphine was causing some pain issues so I quit taking it and went back to 5 mg of oxycodone three times a day. I gave it a solid month to be sure. this was a terrible terrible mistake. it appears the buprenorphine has changed my body. The oxy was not only mostly
as you all may know, I thought buprenorphine was causing some pain issues so I quit taking it and went back to 5 mg of oxycodone three times a day. I gave it a solid month to be sure. this was a terrible terrible mistake. it appears the buprenorphine has changed my body. The oxy was not only mostly
Marlayna67
in
Restless Legs Syndrome
2 months ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
2 months ago
Calcium Citrate questions
I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach really doesn’t like it. It makes me gassy and and causes me to have stomach ache. I have read that Calcium Citrate is more gentle on the stomach so I am trying to find what the equivalent calcium citrate is to calcium carbonate
I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach really doesn’t like it. It makes me gassy and and causes me to have stomach ache. I have read that Calcium Citrate is more gentle on the stomach so I am trying to find what the equivalent calcium citrate is to calcium carbonate
Floridafan
in
PMRGCAuk
2 months ago
Cholesterol
I requested a diabetes blood test at my local surgery on Monday, received telephone call Tuesday, to arrange an appointment with my gp, regarding cholesterol. My question is should I take statins if offered? And is it possible to reverse high cholesterol?Im taking 75/100 mcg teva levothyroxine alternate
I requested a diabetes blood test at my local surgery on Monday, received telephone call Tuesday, to arrange an appointment with my gp, regarding cholesterol. My question is should I take statins if offered? And is it possible to reverse high cholesterol?Im taking 75/100 mcg teva levothyroxine alternate
Geegee777
in
Thyroid UK
9 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
2 months ago
QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
2 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
2 months ago
Advice on cholesterol blood test
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Soaping
in
Thyroid UK
9 months ago
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