I am looking for a facility in the West that will do an early-access dialysis graft. Hubby was procrastinating starting dialysis but became ill, went to the ER, and dialysis was started. In the month he's been hospitalized he has pulled 2 permacath ports out in his sleep. He doesn't remember doing it. He has been without dialysis four days now. If he wants to continue dialysis, he has to do it through a neck port. He must agree to wear padded mitts 24/7 (unless eating or I'm there monitoring) and stay in the hospital until a subcutaneous fistula is mature, which I understand could take four months. Then the neck port can be removed and he can go on outpatient dialysis with the arm fistula.
I don't think he'll be able to tolerate sitting in the hospital unable to use his hands, wearing "boxing glove" mitts all day and night, for months and months. The mitts are strapped with velcro, easily removed even in his sleep. If he removes the mitts, the neck port will be taken out and he will be sent home on hospice. He is 72 and wants to live.