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inflammatory breast disease possibly unknown primary?
Apologies for the confusing title. Hello to you all. I was diagnosed with MBC in October 2021 - unknown primary.mets in neck lymph nodes which then spread to bones and lungs. I'm on my 4th line of chemo - trodelvy. I will have a ct scan in a couple of weeks after I return from holiday. a few
Apologies for the confusing title. Hello to you all. I was diagnosed with MBC in October 2021 - unknown primary.mets in neck lymph nodes which then spread to bones and lungs. I'm on my 4th line of chemo - trodelvy. I will have a ct scan in a couple of weeks after I return from holiday. a few
FHgirl
in
SHARE Metastatic Breast Cancer
2 years ago
Results
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Can anyone make sense of these results for me please? I was ferritin level 6ugL (23-300) in September. It has rose which I'm happy about but I'm still incredibly symptomatic, I don't really understand blood test readings, can anyone shed some light on it? Serum Ferritin level (XE24r) 26ug/L (23-300
Pheebs93
in
Pernicious Anaemia Society
2 years ago
What to Expect During Quarterly Appointment with Surgical Oncologist?
Hello! I am here for my 84 year old mother who lives in India and is under the care of a Surgical/Medical Oncologist there for MBC, metastasized to liver and lungs. After undergoing a radical mastectomy (left breast) in May this year she was placed on a regimen of 1 mg Anastrozole/daily, on June 11
Hello! I am here for my 84 year old mother who lives in India and is under the care of a Surgical/Medical Oncologist there for MBC, metastasized to liver and lungs. After undergoing a radical mastectomy (left breast) in May this year she was placed on a regimen of 1 mg Anastrozole/daily, on June 11
ANKN25
in
SHARE Metastatic Breast Cancer
2 years ago
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Mastectomy and MBC
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Onedayatatime60
in
SHARE Metastatic Breast Cancer
2 years ago
ossible Relapse
I feel I may have PMR again after two years off pred. However CRP and ESR within normal limits. Have had a tkr 7 weeks ago and saw my othopaedic consultant few days ago who said he would ask GP to give a short dose of steroids (he thought symptoms maybe from using crutches) Has anyone had short dose
I feel I may have PMR again after two years off pred. However CRP and ESR within normal limits. Have had a tkr 7 weeks ago and saw my othopaedic consultant few days ago who said he would ask GP to give a short dose of steroids (he thought symptoms maybe from using crutches) Has anyone had short dose
maureenburton
in
PMRGCAuk
2 years ago
Advice on my blood test results, please.
Hello, I was diagnosed in August and really benefitted from advice from people here. I am lacking confidence in the GP as I feel they don't do anything proactively, although they have seemed happy to follow the guidance I am given here. My blood test results are below. I have been prescribed Vitamin
Hello, I was diagnosed in August and really benefitted from advice from people here. I am lacking confidence in the GP as I feel they don't do anything proactively, although they have seemed happy to follow the guidance I am given here. My blood test results are below. I have been prescribed Vitamin
Tired2022
in
Thyroid UK
2 years ago
Normal TSH and T4, but no endorphin rush when exercising and fatigued all of the time.
Hello all I would appreciate some advice about what to do next. I have a diagnosis of lupus and am taking methotrexate prescribed by my rheumatologist. I am pretty certain that I have hypothyroidism. I feel so very tired all of the time, so cold, my muscles and joints are painful, I have a perpetually
Hello all I would appreciate some advice about what to do next. I have a diagnosis of lupus and am taking methotrexate prescribed by my rheumatologist. I am pretty certain that I have hypothyroidism. I feel so very tired all of the time, so cold, my muscles and joints are painful, I have a perpetually
Ophelia1
in
Thyroid UK
2 years ago
CLL & Mastectomy / Implants
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
Amberesque
in
CLL Support
2 years ago
New primary Breast Cancer! Grade three lobular triple negative! Unrelated to my MBC. Time frame for surgery?
I was diagnosed with de novo MBC in November 2018 and no lump was found. So started on Ibrance and Letrozole as my first line of treatment. I recently felt a large lump in my breast appear almost overnight and mentioned it at my oncology appointment a few weeks later. I was then booked in for a biopsy
I was diagnosed with de novo MBC in November 2018 and no lump was found. So started on Ibrance and Letrozole as my first line of treatment. I recently felt a large lump in my breast appear almost overnight and mentioned it at my oncology appointment a few weeks later. I was then booked in for a biopsy
stardust1965
in
SHARE Metastatic Breast Cancer
2 years ago
Has anyone experienced this, whilst having Prostrap injections?
Hi everyone, Hopefully I’m posting in the right place! I’m 51 and due for a total hysterectomy (due to extremely heavy bleeding and pain over about 2 years) I’m meant to be having the op after i have finished a 3/4 month course of Prostrap injections. I have multiple fibroids, Adenomyosis and endometriosis
Hi everyone, Hopefully I’m posting in the right place! I’m 51 and due for a total hysterectomy (due to extremely heavy bleeding and pain over about 2 years) I’m meant to be having the op after i have finished a 3/4 month course of Prostrap injections. I have multiple fibroids, Adenomyosis and endometriosis
Jingles11
in
Adenomyosis Advice Association
2 years ago
Could anyone help me with my results please
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
Paula1710
in
Pernicious Anaemia Society
2 years ago
Comments please on recent blood tests. Thank you very much
Hello everyone, I did some blood tests this week, and here are the readings. I' m on 75mcg thyroxine a day, and take supplements for B12, vitamin D&K2. I have been on T4 for about 3 years. I've been on higher doses of T4 (up to 150mcg) but it only lowered my TSH without making a significant difference
Hello everyone, I did some blood tests this week, and here are the readings. I' m on 75mcg thyroxine a day, and take supplements for B12, vitamin D&K2. I have been on T4 for about 3 years. I've been on higher doses of T4 (up to 150mcg) but it only lowered my TSH without making a significant difference
lh22
in
Thyroid UK
2 years ago
12cm tumour fit through a Laporoscopy?
hi ladies 🙂 First post here so hope it's ok. I have a total hysterectomy booked in for next month. It was discussed with my consultant weeks ago that he would do a vertical abdominal surgery. However, I went for my pre-op today and they said I will be having a Laporoscopy instead. Just wondering
hi ladies 🙂 First post here so hope it's ok. I have a total hysterectomy booked in for next month. It was discussed with my consultant weeks ago that he would do a vertical abdominal surgery. However, I went for my pre-op today and they said I will be having a Laporoscopy instead. Just wondering
Weeworrier
in
My Ovacome
2 years ago
my mother 55years had a lump in right breast
my mother 55years had a lump in right breast on 20th july i took her to oncologist in my city vijayawada, doctor suggested fnac after reports came doctor said she need mastectomy, scheduled surgery on monday 25th july, i am spending sleepless nights crying so much i am worried about my mother, please
my mother 55years had a lump in right breast on 20th july i took her to oncologist in my city vijayawada, doctor suggested fnac after reports came doctor said she need mastectomy, scheduled surgery on monday 25th july, i am spending sleepless nights crying so much i am worried about my mother, please
kumar2
in
Breast Cancer India
2 years ago
Introduction and Preface to Comments
Hi, All. My first post. For several months, I've been reading your comments and empathizing with those who have suffered with this condition. To the extent that there is anything that may be unique to my circumstance, it may be the volume of medical experts with whom I have consulted and by whom
Hi, All. My first post. For several months, I've been reading your comments and empathizing with those who have suffered with this condition. To the extent that there is anything that may be unique to my circumstance, it may be the volume of medical experts with whom I have consulted and by whom
Hidden
in
Restless Legs Syndrome
2 years ago
New blood test results
Hi I have untreated hypothyroidism/hashimoto's, I was diagnosed about a year ago, but had symptoms - particularly 'hyper' ones for many years prior. I have been tested for Celiac and was negative, however since being on this forum, I have discovered the painful rash on my scalp that was attributed
Hi I have untreated hypothyroidism/hashimoto's, I was diagnosed about a year ago, but had symptoms - particularly 'hyper' ones for many years prior. I have been tested for Celiac and was negative, however since being on this forum, I have discovered the painful rash on my scalp that was attributed
Justine_Case
in
Thyroid UK
2 years ago
Second opinion
Hi, I was diagnosed last year with endometriosis by a non endo specialist where he laser/burnt off the endo covering my right pelvis and ligaments but left the deep infiltrated endo on the sigmoid colon, pounch of Douglas and rectum. The rectovaginal endo was then operated on by an endo specialist and
Hi, I was diagnosed last year with endometriosis by a non endo specialist where he laser/burnt off the endo covering my right pelvis and ligaments but left the deep infiltrated endo on the sigmoid colon, pounch of Douglas and rectum. The rectovaginal endo was then operated on by an endo specialist and
MyStar86
in
Endometriosis UK
2 years ago
Spasms and tender shin muscles with RLS/PLM?
I wake in the evening with spasms (a charlie horse) in my lower leg. Here is how chatGPT describes them. "The muscles on the outside of the lower leg, along the shins, are called the lateral compartment muscles of the leg. These muscles include the fibularis longus and brevis muscles, which are responsible
I wake in the evening with spasms (a charlie horse) in my lower leg. Here is how chatGPT describes them. "The muscles on the outside of the lower leg, along the shins, are called the lateral compartment muscles of the leg. These muscles include the fibularis longus and brevis muscles, which are responsible
coldfeet7
in
Restless Legs Syndrome
2 years ago
Total knee replacement. Looking for advice, guidance and wisdom.
I have a few concerns about my upcoming Total Knee Replacement surgery and would really appreciate hearing from those who have already been through this. Main concerns. 1. Does this major joint surgery impact negatively on CLL? Thats big issue. Currently in post FCR remission. 2. What may I reasonably
I have a few concerns about my upcoming Total Knee Replacement surgery and would really appreciate hearing from those who have already been through this. Main concerns. 1. Does this major joint surgery impact negatively on CLL? Thats big issue. Currently in post FCR remission. 2. What may I reasonably
JigFettler
Volunteer
in
CLL Support
2 years ago
Avastin...hmmm
Hi all, it's been awhile since I've been on here, so I will refresh all of you with my journey with cancer. I had Clear Cell Ovarian Cancer stage 3C, negative Brca. I did 6 rounds chemo, & also had a total hysterectomy. In fact today is my 1 year anniversary of that surgery, 9/8/ 22. I was then put
Hi all, it's been awhile since I've been on here, so I will refresh all of you with my journey with cancer. I had Clear Cell Ovarian Cancer stage 3C, negative Brca. I did 6 rounds chemo, & also had a total hysterectomy. In fact today is my 1 year anniversary of that surgery, 9/8/ 22. I was then put
gta03
in
SHARE Ovarian Cancer Support
2 years ago
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