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Aortic Stenosis I’m so confused!
Hi all, so glad I’ve stumbled across this forum!!!. I was found to have a heart murmur by accident in 2012. I was put under cardiology where they told me I had a bicuspid valve and was seen every 3 years initially. Iwas later signed off because they said it wasn’t progressing but to go back if I noticed
Hi all, so glad I’ve stumbled across this forum!!!. I was found to have a heart murmur by accident in 2012. I was put under cardiology where they told me I had a bicuspid valve and was seen every 3 years initially. Iwas later signed off because they said it wasn’t progressing but to go back if I noticed
Trynagetfitter
in
British Heart Foundation
4 months ago
Weekly Chat 22 - 28 January: jinxed it 🙈🤷♀️🛋️
(Edited to clarify I didn't really think I needed a hip replacement - I just looked as if I was on a waiting list for one if you watched me trying to get going from a stop! Apologies for any overdramatisation leading to confusion 🙈) Hello lovely VRBs. How's your week been? We'd love to hear all about
(Edited to clarify I didn't really think I needed a hip replacement - I just looked as if I was on a waiting list for one if you watched me trying to get going from a stop! Apologies for any overdramatisation leading to confusion 🙈) Hello lovely VRBs. How's your week been? We'd love to hear all about
linda9389
Administrator
in
Fun Beyond 10K & Race Support
4 months ago
Hip replacement
I would like to talk to people who have had a recent hip replacement, I had mine 3 weeks ago.
I would like to talk to people who have had a recent hip replacement, I had mine 3 weeks ago.
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AF Association
4 months ago
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Total Hip Replacement Decision
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to Pegasys. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES! In discussions with my Oncologist
Hello Friends, I have ET-MPL 515L, and this is year 10 with the disease, and I am doing well thanks to Pegasys. I have been informed, due to arthritis, I need a total hip replacement. Those of us with MPN's are at increased risk of vertebrae and hip fractures, YIKES! In discussions with my Oncologist
Indigo42916
in
MPN Voice
4 months ago
How I reinvented myself after PMR
This is per your request, PMRPro to add to your collection of our stories. See below: Sorry, don't know how to do a link so maybe you can cut and paste this. "Reinventing myself with PMR" - I have had PMR for 9 years, starting at age 62. It hit overnight like a sledgehammer and stopped me in my very
This is per your request, PMRPro to add to your collection of our stories. See below: Sorry, don't know how to do a link so maybe you can cut and paste this. "Reinventing myself with PMR" - I have had PMR for 9 years, starting at age 62. It hit overnight like a sledgehammer and stopped me in my very
artfingers
in
PMRGCAuk
4 months ago
Rotigitine Patches
Happy New year everyone. I have had Restless Legs now for many years and in the beginning was given several drugs. Many years ago I went to see Dr Fackrell privately in Bath and he diagnosed me as having severe restless legs and put me on Rotigitine Patches, which over the years have been pretty
Happy New year everyone. I have had Restless Legs now for many years and in the beginning was given several drugs. Many years ago I went to see Dr Fackrell privately in Bath and he diagnosed me as having severe restless legs and put me on Rotigitine Patches, which over the years have been pretty
Gonzo123
in
Restless Legs Syndrome
4 months ago
Steve 6 and a half years since heart failure.
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
My heart problems materialised when my customer said to me you look terrible as I wheeled a barrow up a ramp with heavy concrete blocks. Next morning I was in a ward being told I had heart failure. Was a shock and after 2 years on meds was finally sent in for a aortic root and valve replacement. So
Bobbymrg
in
British Heart Foundation
4 months ago
Brain tumors galore, cushings disease
I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease - lots of symptoms resolved eg. lost 25 kilos (4 stone) in weight, quality of skin improved etc. Also discovered two other brain tumours - one
I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease - lots of symptoms resolved eg. lost 25 kilos (4 stone) in weight, quality of skin improved etc. Also discovered two other brain tumours - one
Audrey8Claude
in
The Brain Tumour Charity
4 months ago
Angina, low dose aspirin
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
annpavitt250448
in
British Heart Foundation
5 months ago
No endo found
Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel adhesions noted. Mirena inserted. May 2022 the pain started again, lower left side and down my leg. All around mid and end cycle. Referred back to gynae. Since tried the progesterone only pill on top, had a normal mri
Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel adhesions noted. Mirena inserted. May 2022 the pain started again, lower left side and down my leg. All around mid and end cycle. Referred back to gynae. Since tried the progesterone only pill on top, had a normal mri
Ccn2018
in
Endometriosis UK
8 months ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
8 months ago
Dad’s story
I’m writing on behalf of my dad who was diagnosed with rheumatoid arthritis back in 1982 when he was 28. He managed his condition very well with no medication, just diet and a healthy lifestyle until things started getting worse around 12 years ago. He was put on a medication which controlled things
I’m writing on behalf of my dad who was diagnosed with rheumatoid arthritis back in 1982 when he was 28. He managed his condition very well with no medication, just diet and a healthy lifestyle until things started getting worse around 12 years ago. He was put on a medication which controlled things
Milly123W
in
NRAS
5 months ago
RLS and Glyxambi: empagliflozin 25 mg linagliptin 5mg
Hi every one. I have been on some diabetic medication for some time and wonder if anyone has any feedback on it especially with regard to the effect on RLS symptoms. I'm still having some irritating restlessness at night sometimes till 3 or 4 am and I'm grasping at straws. I've been able to add a
Hi every one. I have been on some diabetic medication for some time and wonder if anyone has any feedback on it especially with regard to the effect on RLS symptoms. I'm still having some irritating restlessness at night sometimes till 3 or 4 am and I'm grasping at straws. I've been able to add a
restlessstoz
in
Restless Legs Syndrome
5 months ago
Happy New Year
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
marionofnorwich
in
PMRGCAuk
5 months ago
Full Knee Replacement
I've been scheduled for a full knee replacement on Thursday next week (will have a friend stay with me for the first week). Does anyone have any hints and tips? I will buy a grabber thingy and have been looking at gadgets to help me put socks on - but am confused by all the different sorts. Rheum
I've been scheduled for a full knee replacement on Thursday next week (will have a friend stay with me for the first week). Does anyone have any hints and tips? I will buy a grabber thingy and have been looking at gadgets to help me put socks on - but am confused by all the different sorts. Rheum
veg_c2000
in
NRAS
5 months ago
Too heavy, feeling depressed.
Hi & happy, healthy new year 🎉 Prev spoke with Slow Dragon 💝 was so grateful for the good advice back then. My Levothyroxine dose increased to 200 i had hoped it would help me loose some weight. No such luck and after recent blood test, I was told to reduce dose to 175. I feel fine, tbh no different
Hi & happy, healthy new year 🎉 Prev spoke with Slow Dragon 💝 was so grateful for the good advice back then. My Levothyroxine dose increased to 200 i had hoped it would help me loose some weight. No such luck and after recent blood test, I was told to reduce dose to 175. I feel fine, tbh no different
MaSet
in
Thyroid UK
5 months ago
It's back after 7 years!
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
KarenBHorrocks
in
Endometriosis UK
4 months ago
Running after hip surgery
Would like to return to running after hip replacement 2 and a half years ago .I walk and do yoga
Would like to return to running after hip replacement 2 and a half years ago .I walk and do yoga
Josephanna
in
Couch to 5K
5 months ago
surgery ready
So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op tests and book of a tick box questionnaire. Feeling a bit weird, I know all the pain and bleeding and hospital visits will be over at last, and I know I need this surgery because without it I just won’t have a normal life
So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op tests and book of a tick box questionnaire. Feeling a bit weird, I know all the pain and bleeding and hospital visits will be over at last, and I know I need this surgery because without it I just won’t have a normal life
MrsPaddingtonBear
in
Endometriosis UK
8 months ago
Covid
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
Wesleygrange2a
in
MPN Voice
8 months ago
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