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Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
4 months ago
Zoledronic Acid - rare side effects?
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
Green_girl
in
Bone Health and Osteoporosis UK
7 months ago
Is all the extra medication needed?
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Stargiver
in
PMRGCAuk
7 months ago
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Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Tedsgran
in
Bone Health and Osteoporosis UK
7 months ago
Itching for answers.... thankyou!
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
quanglewangle
in
MPN Voice
7 months ago
Is there a chat network for people with osteoporosis in England?
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
Mylovelys
in
Bone Health and Osteoporosis UK
8 months ago
alendronic acid
I have lichen planus in my mouth. Will alendronic acid make it worse
I have lichen planus in my mouth. Will alendronic acid make it worse
Ambiwalker
in
Bone Health and Osteoporosis UK
8 months ago
Alendronic acid tablets 😠
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
Cfmad298601
in
PMRGCAuk
8 months ago
My MPN family need help/advice for natural way to treat minor Osteoporosis.
Happy New Year to you all and may it be a great one. I recently had a Dexa Scan and result is minor of Osteoporosis I guess that would be Osteopenia. Suggestion is by my GP to take Alendronic Acid, which after reading information about it raised many questions. Can i take it or there is more kinder
Happy New Year to you all and may it be a great one. I recently had a Dexa Scan and result is minor of Osteoporosis I guess that would be Osteopenia. Suggestion is by my GP to take Alendronic Acid, which after reading information about it raised many questions. Can i take it or there is more kinder
light
in
MPN Voice
8 months ago
Vitamine C and a flare-up?
Hello to everyone. I feel that a very large dose of vitamine C has caused my present flare and I'm just wondering if anyone else has been in this situation. I've had RA for over 30 years and after the first year or two in has settled in my hands, wrists, feet and ankles, so I consider myself lucky.
Hello to everyone. I feel that a very large dose of vitamine C has caused my present flare and I'm just wondering if anyone else has been in this situation. I've had RA for over 30 years and after the first year or two in has settled in my hands, wrists, feet and ankles, so I consider myself lucky.
Mardie
in
NRAS
29 days ago
Treating muscle pain post zoledronic acid infusion
I had my first zoledronic acid infusion just over 24 hours ago. I was recommended to take some paracetamol before bed, which I did. I had some migraine associated visual disturbances just before I turned my light out, but slept through OK. This morning I developed a headache, so took more paracetamol
I had my first zoledronic acid infusion just over 24 hours ago. I was recommended to take some paracetamol before bed, which I did. I had some migraine associated visual disturbances just before I turned my light out, but slept through OK. This morning I developed a headache, so took more paracetamol
Angel_doll
in
PMRGCAuk
8 months ago
Having pain for 3/4 weeks
Hello, I was wondering if anyone else struggle with pain when they are not on their period. I struggle with cramps, lower back pain and hip pain the week before my period, the week of my period and the week after so I seem to only get 1 week out of 4 where I'm not in pain. I had an internal ultrasound
Hello, I was wondering if anyone else struggle with pain when they are not on their period. I struggle with cramps, lower back pain and hip pain the week before my period, the week of my period and the week after so I seem to only get 1 week out of 4 where I'm not in pain. I had an internal ultrasound
Lucyfield11
in
Endometriosis UK
8 months ago
Hysteroscopy bleeding
Hi everyone!I had hysteroscopy on 14th of December to remove polyp. It was a but painful (I went without sedation) but bearable and quick. Had no bleeding afterwards. On 19th of December I had my first day of periods, as it was due. And on the second day I had so much blood and so many clots that I went
Hi everyone!I had hysteroscopy on 14th of December to remove polyp. It was a but painful (I went without sedation) but bearable and quick. Had no bleeding afterwards. On 19th of December I had my first day of periods, as it was due. And on the second day I had so much blood and so many clots that I went
Shadaelle
in
Endometriosis UK
8 months ago
Omeprazole query
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Wheelygood99
in
PMRGCAuk
8 months ago
Zoledronic acid plus teriparatide
Hi everyone, newbie here. My wife is about to go onto treatment for fairly severe osteoporosis after a fall involving fractures to 3 lumbar vertebrae. According to a letter from her consultant to her GP, the consultant seemingly wants her to go onto zoledronic acid plus teriparatide. We're due to discuss
Hi everyone, newbie here. My wife is about to go onto treatment for fairly severe osteoporosis after a fall involving fractures to 3 lumbar vertebrae. According to a letter from her consultant to her GP, the consultant seemingly wants her to go onto zoledronic acid plus teriparatide. We're due to discuss
tcpace
in
Osteoporosis Support
8 months ago
Smart Protein and amino acids
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
Spud68
in
Thyroid UK
2 months ago
DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
38yroldmale
in
Cure Parkinson's
8 months ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
2 months ago
Has anyone done an Organic Acid Test(OAT)?
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
Debgiffen
in
Cure Parkinson's
2 months ago
Good news on the bone density front
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Animalover65
in
PMRGCAuk
8 months ago
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